Hannah's Hope Fund For GAN

Rating: 5 stars   22 reviews

Issues: Health

Location: PO Box 130 Rexford NY 12148 USA

Mission: HHF is the only organization in the world dedicated to finding a cure for Giant Axonal Neuropathy (GAN). GAN renders it's victims quadriplegics, dependent on feeding and breathing tubes and typically die in their mid 20's. Before HHF there was no hope and we are months away from stopping the progression
Results: we have done in 4 years and 3M what we were told originally would take 10 yrs and 10M. Have aligned with other Rare disease communities and will have efficacy in helping find a cure for many.
Target demographics: patients with GIANT AXONAL NEUROPATHY around the world. They are born with this and typically die in their mid 20's
Geographic areas served: the world
Programs: Collaborative team of scientist world wide Natural History Study is being conducted at Columbia U. Clinical Trial is to start in 2013 at UNC Chapel Hill
2013 Top-Rated Nonprofit
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EIN 45-0593226
518 792 1568
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

Great organization - so happy to participate in their efforts

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I have heard about HHF from a friend and the good work they are doing. I support their efforts in finding a cure for this disease.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful? 
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Role: General Member of the Public
Rating: 5 stars  

I share HHF's goals for finding a cure for GAN. I hope they find the funds needed to continue their efforts.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful?