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June 18, 2011

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June 18, 2011

Being diagnosed with lung cancer is a lonely and scary situation and that is why I am so thankful to have found the GRACE site. It has been such an valuable resource to me; Dr. West and his colleagues are incredibly generous with their time, expertise, commitment and compassion. The members on the site are also wonderful.

The Great!

I've personally experienced the results of this organization in...

I feel more knowlegable about what is going on and what options and new treatments are available

Ways to make it better...

If I had to make changes to this organization, I would...

not do a thing

June 8, 2011

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June 8, 2011

As a 7 year lung cancer survivor GRACE has, over the years, provided excellent and timely information about treatments present and future. It has allowed me to open a more informed and positive dialog with my oncologist. He often now asks, "what do you hear from the West Coast."

The Great!

I've personally experienced the results of this organization in...

In building confidence in my treatments for lung cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

They are constantly improving their web site and adding to their faculty. I would just salute these efforts.

May 26, 2011

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May 26, 2011


GRACE provides an excellent educational forum for cancer survivors to deal with lung cancer. After speaking with five doctors and getting many different opinions, Dr. West at GRACE helped greatly with sorting out the differing opinions and understanding why there is a difference of opinion.
I was shocked when I sent an email and a highly informed, well respected oncologist gave me a clear, concise explanation of my situation within a couple of hours. Unfortunately, with lung cancer there are more unknown issues than known answers, but if we are ever to find a cure for this disease it will be by using the creative, rational, well thought out approach applied by the doctors who work for GRACE.

The Great!

I've personally experienced the results of this organization in...

Helping me sort out conflicting opinions of various doctors.

Ways to make it better...

If I had to make changes to this organization, I would...

Every person diagnosed with lung cancer should be given information about GRACE by their doctor.

May 26, 2011

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May 26, 2011

Lung Cancer is a very complicated disease with many confusing varieties and one of the most deadliest killers. GRACE provides an excellent educational forum for cancer survivors and caretakers to navigate this complicated disease. This is a great resource which brings clarities to the underlying disease and provides available options especially for those who are recently diagnosed.

This site is founded by a very compassionate oncologist who dedicated susubstantial amount of his time with a goal to educate survivors caretakers such that they can be a proactive partner in the battle against cancer. Questions posted on this site are often answered within a few hours within the same day by the founder or a panel of faculty who are all qualified and credible practicing oncologlsts.

The often hostd podcasts and webinars on GRACE with guests from the industry experts are great resources to stay up to date in the latest trend in battling this beast.

I owed it to this site in my effort to climb the steep learning curve in understanding my own disease while searching for solutions to prolong my life. A big thank you to all the compassionate doctors at Grace and all the volunteers in making this the best luing cancer research web site, in my humble opinion.

The Great!

I've personally experienced the results of this organization in...

- Received expert opinions from the panel of oncologists validating my approach to tackle this dreadful disease - A great source of research to find available options specific to my diagnosis

Ways to make it better...

If I had to make changes to this organization, I would...

None that I can think of. Keep up the good work!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Referral from a family member

What, if any, change in your life has this group encouraged?

Armed myself with knowledge in finding the best available options

When was your last experience with this nonprofit?

2011

May 25, 2011

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May 25, 2011

CancerGRACE is a wonderful resource for cancer patients and their caregivers. As a person diagnosed with stage IIIB lung cancer, I was so happy to find a website that is not just a place for patients to share, but is led by and moderated by medical doctors. It provides much more than just patient-to-patient communication - there are regular podcasts, interviews with medical professionals, and links to other resources. The doctor who started the site and those who contribute are so helpful, humane, and knowledgeable. It's especially great to have a chance to get support and advice from professionals who also are very caring. It's also a very good site when questions about alternative treatments, possible scams, and questionable treatments arise.
There is also a social worker who contributes to the site, one who has years of experience with cancer patients and families.
CancerGRACE gives us advice, comfort, and a safe place to turn.

The Great!

I've personally experienced the results of this organization in...

When I've asked questions about cancer treatments, they have been answered quickly and thoroughly by the doctors and other patients.

Ways to make it better...

If I had to make changes to this organization, I would...

I honestly can't think of any changes.

July 5, 2010

GRACE has been a most valuable source of information and education throughout my lung cancer journey. The generosity of the doctors (and fellow travelers) of their time and knowledge is remarkable. You can find inspiration and personal experiences here and elsewhere. You can find data and facts here and elsewhere. But to find a place that can answer questions knowledgeably and translate the data into words that I can understand? GRACE is the place. GRACE has made me a much better informed patient and has made it far easier for me to have valuable discussions with my oncologist during our appointments.

The Great!

I've personally experienced the results of this organization in...

my understanding of treatment options for advanced lung cancer.

More feedback...

If this organization had 10 million bucks, it could...

offer the same personalized assistance to people with other medical conditions.

When was your last experience with this nonprofit?

2010

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