Global Genes | RARE Project Reviews
I am father to identical twins with a Rare Disease (Niemann Pick Type-C). The Global Genes Project has been invaluable in helping me to better understand how to make progress. From healthcare, to non-profit creation/management, and legislative action, the Global Genes organization has been there for me. As a result, I agreed to join the Board and work to grow this fantastic and much needed role in our community.
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