Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
22 Reviews
12345
Previous | Next
Write A Review
September 13, 2013

more

September 13, 2013

Global Genes is an a true assist and leader in the rare disease community. They offer support, resources and information to both patients and rare disease organizations. When I began my work as an advocate for Cryoglobulinemia they shared with me the contacts and network connections that would benefit me most at the time. Through their support and those within that network the Alliance for Cryoglobulinemia is establish. It is my honor as a Global Genes Advocacy leader and committee head to join their efforts as they develop and strengthen strategies for the Rare Disease community.


More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

September 11, 2013

more

September 11, 2013

Most non-profit organizations for rare diseases are started by a family or family member that is affected in some way by that disease. These organizations are typically small, they operate on shoestring budgets, and they work their missions form grassroots efforts.

Global Genes is an
incredible organization that advocates for all rare diseases and their non-profit support groups. Global Genes enables these grassroots groups to advocate for their disease and educate at a level that is very difficult to reach for smaller organizations. Through fulfilling their mission, Global Genes brings a level of impact that could only be achieved through teamwork and collaboration.

Ways to make it better...

If I had to make changes to this organization, I would...

Make sure every single family/person fighting a rare disease knows about Global Genes and the incredible work they do on behalf of the rare disease community.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Previous | Next
Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers