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March 2, 2011

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March 2, 2011

When our daughter was diagnosed at birth with DS, I knew little and was very afraid and heartbroken. A nurse introduced me to a calendar that this organization put together. It showed kids with DS dressed up as firemen, businessmen, princesses, football players, ballerinas, etc. and it was a turning point for us, showing us it was okay to dream. Not sure what I would have done without them.

After a week in the NICU, we stopped by here and they congratulated us on our child and made us feel at home. Through out the time since then they have regularly organized classes, group therapies, playtime for the kids (meet Santa, etc.) and a chance for parents to network and learn from each other. I learned so much from the parents that saved me hundreds of hours of reading and research on topics like estate planning, navigating early intervention, transitions into schools, best and worst doctors,etc.

This is an awareness center and a support group that changes lives of families and people who have DS for the better. Best charity I have ever come to know!

The Great!

I've personally experienced the results of this organization in...

As mentioned above, they changed our outlook on life and helped us get over the grief and into an awesome life

Ways to make it better...

If I had to make changes to this organization, I would...

Get them to open up on the West Coast. I moved to Ventura County CA and I miss them, nothing like it out here.

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