Gastroparesis Patient Association for Cures and Treatments, Inc.
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October 24, 2012
I was diagnosed with gastroparesis in 2008 and in 2009 joined Gastroparesis Patient Association for Cures and Treatments (G-PACT). It is a wealth of information for those of us with Digestive tract paralysis and other related diseases. People need to be made aware of the disease and how to live with it so G-PACT offers waya to be aware of the disease and how to treat it. We also work on research as to date there is no cuire and the disease has been wreaking havoc on many, of all ages. This non profit is trying to help treat the sympltoms, educate, and promote research. As a member of the BOD for 2 1/2 years I see the importance of these functions and want to see G-PACT on the top of the list.
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Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2012
2 people found this review helpful
October 23, 2012
2 people found this review helpful
I have had Gastroparesis for the past 7 years and GPACT was very critical in the beginning helping me understand what I was facing and how to deal with it. To know that there were so many others who suffered the same thing that I did eased a little bit of my anxiety, but as I delved deeper and deeper into what Gastroparesis was and what I could be dealing with I was horrified. Members of the online group are some of the most uplifting, caring, compassionate people I have ever met. No matter what they are going through, they are ready to set that aside and lift you up and give you information that has helped them. It is never medical advice and if it is a medicine or something else that has helped them, everyone is encouraged to discuss it with their doctor. Almost 2 years ago I decided that I wanted to be a part of this amazing community being able to help others that are just starting to find out they have this, or maybe the ones that are far in it but have gone up against a setback. It is important to make sure we are always encouraging people. I am not someone who is right up front showing everyone what I am doing, I would rather be a "behind the scenes" type of person and the other volunteers were very patient trying to find the perfect fit for me. I am so glad that I have found such an amazing nonprofit that is just trying to help the patients and go to the many different companies and doctors to try and get some funding to get research and better treatment options and hopefully a CURE!!
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
2 people found this review helpful
October 23, 2012
2 people found this review helpful
At the age of 16 my daughter was diagnosed with idiopathic gastroparesis. Gastroparesis in not rare but it is relatively unheard of for some reason and there is very little the medical community can do for GP patients and there is very little research being done. Armed with little information from the medical community I had to search out to find my own, something - anything, to make my daughter's life tolerable. After dropping from 116 pounds to 86 pounds in a little over 2 weeks I was desperate and went online in search of some hope in a seemingly hopeless situation, this is when I found G-PACT. Without this wonderful non-profit and their community of GP patients my daughter would not have near the quality of life that she has today. Everything from tips and tricks, current news to shoulders to cry on, it has given us more to work with than any Doctor, Specialist, Nutritionist of internet search engine ever could.
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
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