Fraxa Research Foundation

Rating: 5 stars   34 reviews

Issues: Disabilities, Health, Philanthropy

Location: 10 Prince Place, Suite 203 Newburyport MA 01950 USA

Mission: FRAXA was founded in 1994 by three parents of children with Fragile X. Our mission is to accelerate research aimed at finding effective treatments and a cure for Fragile X and related disorders, by directly funding grants and fellowships at top universities around the world.
Results: We have funded $23 Million in targeted research and are on the verge of bringing a treatment for Fragile X - and perhaps also autism - to patients.
Target demographics: find effective treatments and ultimately a cure for all children and adults who have Fragile X syndrome
Direct beneficiaries per year: 20 research teams to find new treatments for Fragile X; half of them have now gone on to receive large grants from the National Institutes of Health.
Geographic areas served: the U.S., Canada, Europe, South America, and Australia
Programs: 1) Research grants and fellowships to fund research on Fragile X Syndrome, autism, and related disorders at universities around the world. 2) The FRAXA drug validation initiative (FRAXA-DVI), where we can provide preclinical testing of potential new medications for Fragile X; we have provided this service to a dozen pharmaceutical companies and now several of them are conducting clinical trials.
2014 Top-Rated Nonprofit
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EIN 04-3222167
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Role: Professional with expertise in this field
Rating: 5 stars  

1 person found this review helpful

As a FRAXA staff member for the past year, I have seen first hand what a wonderful organization this truly is. Katie and Mike, both the founders of FRAXA and parents of a young man with Fragile X, have shown extraordinary compassion and gratitude towards the families and donors affiliated with FRAXA. We work diligently alongside our donors, and consider them to be members of our family here at FRAXA. I'm proud to be a member of the FRAXA team, and am looking forward to our continued progress!

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