Fraxa Research Foundation

Rating: 5 stars   34 reviews

Issues: Disabilities, Health, Philanthropy

Location: 10 Prince Place, Suite 203 Newburyport MA 01950 USA

Mission: FRAXA was founded in 1994 by three parents of children with Fragile X. Our mission is to accelerate research aimed at finding effective treatments and a cure for Fragile X and related disorders, by directly funding grants and fellowships at top universities around the world.
Results: We have funded $23 Million in targeted research and are on the verge of bringing a treatment for Fragile X - and perhaps also autism - to patients.
Target demographics: find effective treatments and ultimately a cure for all children and adults who have Fragile X syndrome
Direct beneficiaries per year: 20 research teams to find new treatments for Fragile X; half of them have now gone on to receive large grants from the National Institutes of Health.
Geographic areas served: the U.S., Canada, Europe, South America, and Australia
Programs: 1) Research grants and fellowships to fund research on Fragile X Syndrome, autism, and related disorders at universities around the world. 2) The FRAXA drug validation initiative (FRAXA-DVI), where we can provide preclinical testing of potential new medications for Fragile X; we have provided this service to a dozen pharmaceutical companies and now several of them are conducting clinical trials.
2014 Top-Rated Nonprofit
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EIN 04-3222167
9784621866
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Community Reviews

Rating: 5 stars  

Having opportunity to participate in essential clinical trials sponsored by FRAXA.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

FRAXA was created by parents of a child with Fragile X and it shows. This organization is dedicated to the treatment and cure of Fragile X Syndrome and they work towards this goal with a drive that only a person with personal involvement could have. As the mother of a child with Fragile X Syndrome, I can say with personal experience that FRAXA is not only out there raising money for treatments, but was there for me when I needed to find a clinical trial that was right for my son. A donation to FRAXA is money well spent and I recommend them to all of my family and friends.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful?