The money this nonprofit collects ALL goes to research for a cure for Angelman Syndrome. They are tireless in getting the word out about the syndrome and are very supportive for families of Angels.
My beautiful granddaughter has Angelman Syndrome. Living far away, I feel helpless. It is wonderful to know that the Foundation for Angelman Syndrome Therapeutics is doing so much to find a cure, to educate, and to support families and caregivers. The volunteers who run it take their only reward in a job well done. I don't know another group that does as much for our Angels or is getting us closer to a cure. I congratulate them and thank God FAST is doing so much for our Angels.
When our son Ryland was diagnosed we were devastated! Then we were introduced to FAST! We actually have hope Ryland might one day lead a normal life. The entire FAST Organization if filled with wonderful dedicated people, without them we wouldn't have hope for a cure. We thank them from the bottom of hearts for working so hard and being so dedicated in helping our children.
Anybody who's ever received a diagnosis of a developmental and/or neurological disorder for their child knows how incredibly difficult those first few days/months are. It was no different for myself, as I can still remember the sensation of being gut punched, curled up in a corner and distraught, not even trying to contain my anger and fear.
It was only after I'd summoned up the courage to look up Angelman Syndrome online, to actually commit to understanding what life for my son (and for the rest of our family) was going to look like from here on out, that I came across FAST and their mission to fund research into Angelman Syndrome therapies. It sounded too good to be true; I went from the lowest point in my life to something resembling elation. I had to do background research on the organization to make sure that the information on the site was legitimate and not pandering to the hopes and dreams of Angelman caregivers and parents. After getting in touch with several members of the FAST board (all of whom reached out to me personally after seeing my facebook post on my son's diagnosis), I was sold on the goals and mission of FAST.
The foundation has provided hope, education and a community that galvanizes whenever there is something that can help those afflicted with Angelman Syndrome and I'm not sure where we would be right now without their hard work and commitment.
Tengo una hija que padece el sindrome de Angelman y gracias a la FAST ahora por primera vez en toda su vida tenemos la esperanza de que pueda tener un futuro mejor. GRACIAS FAST!!!. Juan Jose Palomares - Madrid - Spain.
Tengo una hermana, Elena, que tiene el síndrome de Angelman y gracias a la Foundation for Angelman Syndrome Therapeutics por primera vez tenemos la esperanza de que mi hermana pueda tener un futuro mejor. Gracias FAST!!. Cristina - Madrid (Spain).
Soy madre de una niña de 28 años que padece el síndrome de Angelman. Foundation for Angelman Syndrome Therapeutics nos ha dado por primera vez una esperanza de un futuro mejor para nuestra hija. GRACIAS FAST!!.
Great foundation! I have 3 grade kids with Angelman's! Olivia 7 1/2, Harrison 6 and Dennis 4! Stacy R is the same mom of all 3. She is awesome and so is FAST! So very worthy of this praise! FAST gives us HOPE! Olivia's middle name!?
FAST has been wonderfully effective in raising awareness of Angelman Syndrome and funding studies aimed at mitigating the very difficult symptoms of this condition. The board and administrators are 100% volunteer and all monies raised go directly to services. In addition to raising awareness and funding studies, they provide information, support and hope to families (and professionals) dealing with Angelman Syndrome.
FAST me ha dado la Esperanza que ya no tenía,pero gracias a Dios conocí de ellos pronto.Mi hija es un Ángel Angelman syndrome y cada dia lucho duro por mantenerla saludable y pronto pueda ser candidatA a cualquier avance que FAST tenga, pues trabajan muy duro para avanzar y pronto encontrar un tratamiento que por Qué No,pueda ser la cura pronto. FAST we Love You All.Thank you for giving Us Hope.