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Donna Y. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Donna Y.

April 5, 2013

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2 previous reviews - show all
November 7, 2012

FAST in 100% non profit and ran strictly by a board of highly professional, motivated parents and business people striving to raise awareness and fund pertinent research towards finding therapeutic tr... more

April 5, 2013

I nominate the Foundation for Angelman Syndrome Therapeutics for their continued outstanding support of my granddaughter and her fellow angels born with Angelman Syndrome. It is because of this organization that we just completed the first ever human clinical trial on a medication that may bring hope to her and all her friends with AS. This organization has been in existence less than 5 yrs and is totally nonprofit, ran by parents and friends of those with AS and ALL funds go for research projects. Not one board member collects a pay check. They are all volunteers working towards a cure for AS.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

November 7, 2012

FAST in 100% non profit and ran strictly by a board of highly professional, motivated parents and business people striving to raise awareness and fund pertinent research towards finding therapeutic treatments to enhance the lives of all children born with this rare genetic disorder. They are currently funding the first human clinical trial with Dr Edwin Weeber for which my granddaughter is one of 24 participants. This is HUGE for a organization that is less than 5yrs old and my family like many others are beyond grateful to FAST for the amount of public awareness they have raised regarding Angelman Syndrome in their short existence. They are currently bringing together researchers from around the world to work as a team sharing their individual expertise in hopes of reaching the ultimate goal of finding the cure for all our angels. May God be with them as they push forward in the days ahead. Hope Reigns Supreme, thanks to FAST's dedication and strive towards excellence.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 20, 2012

The Foundation for Angelman Syndrome Therapeutics and its entire board are the most dedicated organization for Angelman Syndrome to date. They work endlessly towards funding clinical trials to improve the lives of every single angel across the world. They ARE the greatest Non profit organization in existence when it comes to support of our angels. Every single dime is utilized towards finding a cure and not one single board member receives a penny in compensation. Thank God for F.A.S.T. and their desire to think out of the box and push towards curing AS.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Ana Maria G. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Ana Maria G.

November 10, 2012

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November 10, 2012

Soy abuela de una niña con Sindrome de Angelman. FAST está realizando actualmente un ensayo clínico en humanos con minociclina, que nos llena de esperanzas en cuanto a la cura de este sindrome. Puede suceder pronto y será gracias al esfuerzo, dedicación y duro trabajo desarrolado por FAST , conseguir un futuro mejor para todas las personas afectadas. Gracias.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Juan Jose Palomares - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Juan Jose Palomares

November 10, 2012

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November 10, 2012

Tengo una hija que padece el sindrome de Angelman y gracias a la FAST ahora por primera vez en toda su vida tenemos la esperanza de que pueda tener un futuro mejor. GRACIAS FAST!!!. Juan Jose Palomares - Madrid - Spain.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

danielpg - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

danielpg

November 10, 2012

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November 10, 2012

Tengo una hermana que padece el Sindrome de Angelman y gracias a la FAST ahora por primera vez tenemos la esperanza de que tenga un futuro mejor. Gracias FAST!. Daniel-Madrid-Spain

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Cristina Palomares - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Cristina Palomares

November 10, 2012

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November 10, 2012

Tengo una hermana, Elena, que tiene el síndrome de Angelman y gracias a la Foundation for Angelman Syndrome Therapeutics por primera vez tenemos la esperanza de que mi hermana pueda tener un futuro mejor. Gracias FAST!!. Cristina - Madrid (Spain).

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Maria Galan - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Maria Galan

November 10, 2012

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November 10, 2012

Soy madre de una niña de 28 años que padece el síndrome de Angelman. Foundation for Angelman Syndrome Therapeutics nos ha dado por primera vez una esperanza de un futuro mejor para nuestra hija. GRACIAS FAST!!.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

JBull - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

JBull

November 9, 2012

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November 9, 2012

My daughter is 10 and has Angelman Syndrome. When we got her diagnosis 9 years ago, our neurologist cautioned us from reading the reports on the internet about people with Agelman. Since then, research has exploded. Now we expect the development of a therapeutic during her lifetime. FAST is making this possible as they funnel every cent toward research. The icing on the cake is that the staff and support and community of FAST is not just geared toward research; the support they provide (through personal relationships) is immeasurable.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

dplegend - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

dplegend

November 9, 2012

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1 previous review
July 26, 2012

The mission of FAST has brought my family much HOPE during some initial dark days after discovering my son's AS. To learn that FAST is committed to funding the research that will bring meaningful tre... more

November 9, 2012

There was no question that FAST stood for everything that I believed in and wanted to support as a parent of a newly diagnosed little boy with AS. This organization is committed to fighting for our children and spending every cent (100% to be exact) in the most efficient and productive ways that will produce life changing outcomes. The very first potential treatment for AS was funded by FAST and a community that worked hard to raise the funds needed to start the clinical trial that is currently under way. FAST's passion and determination is actually changing the way medical research is being funded and they have completely restored faith and hope that brighter days are ahead.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

July 26, 2012

The mission of FAST has brought my family much HOPE during some initial dark days after discovering my son's AS. To learn that FAST is committed to funding the research that will bring meaningful treatments into the lives of our kids NOW while continuing to find the ultimate cure in the near future--- is simply amazing. What's even more amazing-it's driven by a volunteer board/scientific board & staff. Funds being raised via FAST are making big things happen and truly changing the landscape of our kids futures!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

katur2crazy - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

katur2crazy

November 9, 2012

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November 9, 2012

Great foundation! I have 3 grade kids with Angelman's! Olivia 7 1/2, Harrison 6 and Dennis 4! Stacy R is the same mom of all 3. She is awesome and so is FAST! So very worthy of this praise! FAST gives us HOPE! Olivia's middle name!?

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2011

Sharon57 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Sharon57

November 8, 2012

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November 8, 2012

FAST has helped unify the community that cares about individuals with Angelman Syndrome, with a message of HOPE for a treatment for this devastating neurogenetic disorder. The organization's leadership volunteers the time and skills necessary for running the organization. Many necessary supplies and services are donated, meaning almost all of every dollar donated goes towards our mission of improving the lives of those with Angelman Syndrome and funding research for a cure. Members are empowered and inspired to contribute their own skill sets and resources to assist in the running of the organization and to fundraise creatively. This young and vibrant organization has already supported great progress in awareness and research funding.

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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