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June 18, 2010

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June 18, 2010

My name is Gina and I have suffered from Fibromyalgia for about five years and not diagnosed until 15 months ago. I actually had several people suggest this before diagnosis and I hadn't heard of it before then. I'm just glad to find so many organizations out there however on this site there are no reviews, participants, patients, or fundraisers out there for this terrible syndrome. They say there is no cure, there is no result in death either, BUT it's miserable and really effects your life and the people in it as well. I continue to work daily now that I'm on pain management medicine. The dosage has gone up 3 times since I've started on it, strong pain meds to help me through the day on bad days, and sleeping meds at night so I can sleep! It's non-stop pill popping and it wears you down.! I really thought for two years I was losing my mind because every week and sometimes day to day my horrid pain was in a different spot! I just got to the point I was in tears all the time! Missing work for 3 days at times in the winter because it felt like the flu, strept throat, and like I had been in a wreck two days before that threw me across the street but yet NO FEVER! There must be something out there that can help stop this madness for us. I do exercise a lot and it helps keep me feeing good. Basically fighting it all the time. However, I always exercised daily anyway and have been a dance instructor for 25 years! but meds and exercise don't make it go away....it helps keep it under control. Every six weeks or so, I'm toast. Out of control unable to function PERIOD. Does anyone out there have luck with certain things or a certain drug?

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

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