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46 Reviews
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November 2, 2013

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1 previous review
August 13, 2012

MY DAUGHTER BRITTANY HAS A RARE FORM OF EPILEPSY. THEY HELP ME GET TICKETS TO DISNEY ON ICE FOR MY DAUGHTER. THEY SENT HER TO CAMP BOGGY CREEK AND ALSO HELP US BRING EQUIPMENT FOR FREE INTO OUR HOME F... more

November 2, 2013

I have been volunteering and a board member for two years. This has been a awesome experience. When I needed help and direction for my young daughter they were their to help me. We are greatful for all there support.

Ways to make it better...

If I had to make changes to this organization, I would...

na

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

August 13, 2012

MY DAUGHTER BRITTANY HAS A RARE FORM OF EPILEPSY. THEY HELP ME GET TICKETS TO DISNEY ON ICE FOR MY DAUGHTER. THEY SENT HER TO CAMP BOGGY CREEK AND ALSO HELP US BRING EQUIPMENT FOR FREE INTO OUR HOME FOR HER CARE. I WOULD BE LOST WITH OUT THEM. WHEN I NEED INFO ON NEW MEDS OR HELP WITH A DOCTOR THEY ARE ALWATS THERE FOR ME. THANKS ESF. THE VANHOOK FAMILY

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

September 19, 2013

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2 previous reviews - show all
October 17, 2012

(I apologize in advance for any typos, as I recently dislocated my shoulder during an epileptic seizure and am typing 1 handed.) As both "client" and volunteer with ESF I can honestly say that this ... more

September 19, 2013

I have participated in fundraising walks with ESF for many years and from the very beginning was extremely impressed with how the executive director, Tom Orth, reached out personally to participants to thank them for their support. Over the years I became a regular volunteer in the Purple Day Walk for Epilepsy held annually to raise funds to send kids with epilepsy to summer camp, and in January had the honor of being elected to the Board of Directors. We are a very small non-profit in the traditional sense in that we only have ONE paid employee and are almost completely volunteer driven, yet we have so many programs and events that we help children and adults affected by epilepsy in Hillsborough, Polk, and Pinellas counties (Florida) - which for those not familiar is the Tampa / St. Pete area. I am so privileged and honored to volunteer with this organization and plan to continue to associate myself with them for a very long time!

Ways to make it better...

If I had to make changes to this organization, I would...

open more eyes to what we do so that every day we could help even more people!

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

October 17, 2012

(I apologize in advance for any typos, as I recently dislocated my shoulder during an epileptic seizure and am typing 1 handed.) As both "client" and volunteer with ESF I can honestly say that this is a true non-profit that cares more about the people helped than to ever making $$ for themselves. Through a variety of walks and other events ESF not only brings Epilepsy awareness and education to the community, but also raise funds to send kids with Epilepsy to summer camp, college scholarships for students with Epilepsy as well as for those going into the field of neurology, and more. I am really glad I have become involved with ESF and hope to continue to be for a long time.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 12, 2012

Epilepsy Services Foundation, Inc. of the greater Tampa Bay area is a driving force in education, awareness, and aid for families effected by epilepsy. As a person living with epilepsy, the knowledge base of the organization was immensely helpful to me early in my dealings with my condition. As a volunteer, I have had the pleasure of serving on the planning committee for our annual Purple Day Walk for Epilepsy in Lakeland, FL, through which we not only raise awareness for Epilepsy but also funds to send kids with epilepsy to Camp Boggy Creek - a summer camp in the area for medically needy kids. This year we raised enough money to send 22 kids to summer camp! Other events held throughout the last several years have also provided scholarships to college students planning a career in neurology, and scholarships to students effected by epilepsy. I am very proud to be associated with ESF!!!

Photos

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 13, 2013

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August 13, 2013

As a professional in the Tampa Bay area, I have countless of opportunities to get involved and give back to the community. I am fortunate enough to have met many fund raisers and Executive Directors with numerous organizations. In all my years, however, I have never met a more dedicated, involved, caring and hard working man as Tom Orth (executive Director for Epilepsy Services Foundation). Not having any family members directly impacted by Epilepsy, I am often asked why I devote so much of my time to this organization. The answer is Tom Orth. His enthusiasm and passion is contagious. If you are looking for answers about how to deal with Epilepsy (because it affects the entire family, not just the individual), please call Tom. His compassion will come through during your first conversation.

Ways to make it better...

If I had to make changes to this organization, I would...

Find ways to get the word out even more about the great work being done by ESF.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

June 21, 2012

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1 previous review
June 9, 2011

My connection to Epilepsy Services Foundation (ESF) began when I was diagnosed with epilepsy at age 5 and was told that I would have to take medication for the rest of my life. I had a mild form of s... more

June 21, 2012

A great non-profit starts with a great leader and Tom Orth, Executive Director is one of the best. Within the short time that I've been on the Board, ESF has jumped leaps and bounds in fundraising and awareness. This could not be done without the dedication of our volunteers, Board members and Tom Orth. The future of ESF is bright and I am grateful to be a part of it!

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

June 9, 2011

My connection to Epilepsy Services Foundation (ESF) began when I was diagnosed with epilepsy at age 5 and was told that I would have to take medication for the rest of my life. I had a mild form of seizures called absence seizures which made me "blank out" or lose consciousness for a few seconds. The seizures were more socially disturbing during my childhood than anything, but I was blessed to have outgrown them by the time I reached my teen years. Before meeting Executive Director of ESF, Tom Orth, I was very skeptical about charitable organizations. Since then, however, I've experienced ESF's dedication to serving those with epilepsy first hand. I started with ESF by volunteering at its annual Live Music Series in 2010 and working a concession stand at a Tampa Bay Buc's football game to raise money. I also participated its H.O.P.E. Training (Helping Other People with Epilepsy) where I learned so much more about the disorder. ESF and Tom Orth gave me hope that there are organizations out that there truly care about serving the community.

The Great!

I've personally experienced the results of this organization in...

seeing the faces of those who have received scholarships from ESF.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes. We have great leadership in place.

June 15, 2011

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June 15, 2011

I am a mother of a child with epilepsy and a nurse. I became a board member this year as a way of giving back. My son and our family have personally benefitted from the foundation - he has been able to attend Camp Boggy Creek for the last 8 years. To watch him grow through camp has been the most wonderful thing. This is his last year to attend and he looks forward to going back as a volunteer. I was awarded a scholarship through the foundation to continue my schooling as I work toward my ARNP specializing in pediatric neurology. I am also a member of the HOPE mentoring team - helping the community through teaching and mentoring those in need. I could go on and on about the wonderful things the foundation provides. Let there never be a question that this organization is a vital one in this community. Thank you ESF!

The Great!

I've personally experienced the results of this organization in...

My son has been able to attend camp for 8 years. I have personally received a scholarship for school through ESF.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish I could provide them with more of my time. I think the organization is doing a wonderful job.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Through Camp Boggy Creek

When was your last experience with this nonprofit?

2011

June 14, 2011

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June 14, 2011

In my years as both a volunteer and board member at the Epilepsy Services Foundation, I have learned so much! I have learned about epilespy, how it affects the person affected with it, and the channels these persons go through to receive treatment. The Epilepsy Services Foundation provides invaluable services to the epileptic community. They send kids to Camp Boggy Creek, provide scholarships, and offer guidance to the community they serve. There is not another non-profit that i have been associated with as either a volunteer or board member that is so communited to their cause.

The Great!

I've personally experienced the results of this organization in...

I have personally contributed to this organization by planning the major fundraiser, the Golf Tournament. The funds raised from this tournament send children to Camp Boggy Creek.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish more people were aware of what this organization does. The more people who are involved, the bigger the impact we could make.

June 14, 2011

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June 14, 2011

As a business leader in our community, I am often approached to donate time, money and energy to many different charitable organizations. While all are deserving, I have a special place in my heart for Epilepsy Services Foundation. Every year, thanks to the efforts of Tom Orth, Executive Director, ESF is able to send children affected by Epilepsy to a Summer Camp where for 1 week during the entire year, they feel normal. Notice I did not say special, they feel normal. To see the look on a kid’s face that ordinarily has to be treated special being treated as a normal kid, it really is worth every bit of energy and time.

In addition to the camp, ESF also provides scholarships to people affected by Epilepsy to allow them to further their academic progress. They also provide scholarships to those entering into fields that will help those affected by Epilepsy.

While other organizations are truly deserving, I am especially proud to be on the board of ESF. I see first hand the difference a few people can make in the lives of so many.

The Great!

I've personally experienced the results of this organization in...

Seeing the kids create lifelong memories at camp.

Ways to make it better...

If I had to make changes to this organization, I would...

Recruit more energetic people to help in our cause.

June 8, 2011

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June 8, 2011

I have been involved with The Epilepsy Foundation for a period of 5 years. I am always amazed at the level of concern always about clients, their care and their families. All decisions in the organization are based on service to people affected with Epilepsy and their families and care takers.
In this day and age when bottom line is always the concern, it never superceeds concerns first for the clients.
The Epilepsy Foundation is an example for all organizations to run by

The Great!

I've personally experienced the results of this organization in...

being involved on a board level

Ways to make it better...

If I had to make changes to this organization, I would...

give them a ton more money

September 8, 2009

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September 8, 2009

It is going on six years that I have been involved with this fine organization. The dedication and determination of its volunteers and board members are second to none. I have seen firsthand what a difference a group of caring people, working on behalf of a caring organization, can make in the community. As a parent of a child with epilepsy, I just want to thank Tom Orth and all the volunteers for their incredible perseverance and encourage anyone looking for education, assistance, or just someone to lean on, to consider ESF.

The Great!

I've personally experienced the results of this organization in...

The Executive Director, Thomas Orth.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Feeling that I have helped make a difference.

The kinds of staff and volunteers that I met were...

One of a kind. The desire to make a difference was there every day.

If this organization had 10 million bucks, it could...

Make a difference in the lives of tens of thousands of people.

When was your last experience with this nonprofit?

2009

August 12, 2009

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August 12, 2009

Epilepsy Services Foundation is an organization committed to funding valuable services to all those affected by Epilepsy. The organization raises funds through golf tournaments, an annual "Hare Race", Live Music Series, BBQ ribs for kids and more. Through the funds raised by ESF, people are given the opportunity to continue their education; both those directly impacted by Epilepsy and those looking for ways to help those affected with Epilepsy. Every year through grants given by ESF, kids are given the opportunity to attend Camp Boggy Creek. At this camp, kids with Epilepsy are allowed to be around other kids with Epilepsy and are given the chance to feel "normal". I ask you to visit their website and see for yourself the great experience this offers. For years, Epilepsy Services Foundation has proven to be a strong member of the Tampa Bay area. With the guidance and direction of the Executive Directo, Tom Orth, ESF remains at the forefront of reputable and honorable organizations.

The Great!

I've personally experienced the results of this organization in...

The smiles on the faces of kids who might not otherwise have an opportunity to smile. Through Camp Boggy Creek, Epilepsy Services Foundation allows these kids to do something they don't usually get to do... act like kids.

Ways to make it better...

If I had to make changes to this organization, I would...

Look to Tom Orth for advice on a daily basis.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the feeling that I truly make a direct impact on people's lives.

The kinds of staff and volunteers that I met were...

Eager to help. THey all understood the reason we are here is to do good for others.

If this organization had 10 million bucks, it could...

Send more kids to school to learn ways to treat Epilepsy. They could send more kids to camp and allow them to feel good about themselves.

Ways to make it better...

We could have sent more kids to camp.

In my opinion, the biggest challenges facing this organization are...

the lack of knowledge about Epilepsy. I would like to see more of the general public learn more about Epilepsy.

When was your last experience with this nonprofit?

2009

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

1. help with some secretarial duties;2. lead a virtual or face-to-face support group for pre-teens, teens, siblings or families affected by epilepsy;3. organize a party for kids with epilepsy. Volunteer