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Nonprofit Overview

Causes: Epilepsy, Health, Health Care, Public Health

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida, including children, teens, young adults and their families. The office is located in Tampa, FL.

Results: ESF trained over 50 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESF provided 25 camp scholarships and 15 scholarships for families to attend a family weekend retreat in 2016. ESF provided 5 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus in 2016. ESF provided 7 scholarships for persons affected by epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics: Persons affected by epilepsy, primarily children, teens, young adults & their families

Direct beneficiaries per year: 800-1,000 persons

Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando counties.

Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

Community Stories

17 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

This is a great organization that has helped our son with epilepsy in so many ways over the years. When he was a young child, they took him to Lightning and Bucs games, they sponsored him to go to summer camp and family weekends at Boggy Creek. This year he will be attending college, and he was awarded a scholarship through ESF.

Client Served

Rating: 5

Growing up with a brother who has been diagnosed with Epilepsy for the last 18 years, I have come to know Tom Orth and the work that they do at the Epilepsy Service Foundation. They have helped so many children, teens, and young adults strive. The Epilepsy Service Foundation portrays a positive impact by promoting awareness through newsletters and Easter day 1mile and 5Ks runs. My brother has gone to Camp Boggy Creek, where families don't have to worry about leaving their kids because there is an around the clock care for them. In addition, it allowed my brother to be around kids with a similar diagnosis, so he was able to interact with others without judgment. Tom Orth has made a positive impact to those not only diagnosed with Epilepsy, but also their families. Recently, I was awarded a Beacon of Hope Scholarship to use towards College in order to become a Doctor. Tom Orth and the Volunteers at the Epilepsy Service Foundation have made a lasting impact on my family’s life.

Tiphanie H.

Client Served

Rating: 5

The Epilepsy Services Foundation is one that truly loves and works for epileptics and their families everywhere. They sacrifice on a consistent basis so that people like myself, who has been diagnosed with epilepsy for the past 17 years, can have a chance at a normal life. Most recently, I was awarded a $250 scholarship. Being someone who lives on a fixed income with one child and one on the way, this not only makes a difference for me, but also for all the people I intend to help as a future physician's assistant. Epilepsy is still so very unaware among he public and therefore does not see the same donations that other charities see, but they are more than deserving. Please do all you can to help.

Client Served

Rating: 5

ESF is a fantastic service organization. Their work, scholarships, social events, counseling and friendship has given my son with epilepsy newfound hope, friendship, and education. They are a bright spot in an otherwise traumatic experience. Keep up the good work.

Daniel Roberts, Wimauma, FL.

1

Client Served

Rating: 5

my daughter has epilepsy. We go to the family meet and greet and we love all the information. They are super compassioned. Tom who runs it is just a lovely man. They help us with the school system for a IEP for my daughter.

1

Client Served

Rating: 5

I just love ESF . They have help us with meeting other family's. They have paid for my daughter to go to camp boggy creek. They can answer questions better then the doctor. They are always just a phone call away. They have family outings. They do a epilepsy education day.

1

Client Served

Rating: 5

My 10 year old son was diagnosed this summer with epilepsy. Fortunately my family had done volunteer work with ESF over the past years and knew who to reach out to. We knew we had a family thru them and the support we would need to help us get through this. It helps to know that we are not alone. Knowing that we have trusted friends, families and the many wonderful people that volunteer at ESF here for us has made this transition of living with epilepsy so much easier for our son and the rest of our family. Being a part of this organization is such a blessing.

1 Natasha11

Client Served

Rating: 5

My son was diagnosed at 14 with seizures and from the outset, the support we have had from the ESF has been incredible. They are not only a source of information but we really feel they care, and go above and beyond my expectations. It is so reassuring to know that there is an organization out there that can guide, support, and help us not only as a family, but as individuals too.

1

Client Served

Rating: 5

I work collaboratively with this organization to help provide free retreat weekends to the families ESF serves. They are very attentive to their clients needs and really listen. What a wonderful organization. I look forward to working with them in the future.

1 Andraya C.

Client Served

Rating: 5

I was an epilepsy patient at the time about two or three years ago. I didn't know I had epilepsy until my mom saw one happen. For some reason my neurologist didn't suggest this foundation until a year or two into the process. After we found this opportunity it worked out well, it helped pay for eeg's either in the hospital, at the doctor;s office or at home. It helped me determine what type of seizure i had. My seizures were so small that nobody noticed them until my mom saw me had one.