Epilepsy Services Foundation, Inc.

Rating: 4.99 stars   75 reviews

Nonprofit Issues:

Health

Address:

4628 North Armenia Avenue Tampa FL 33603-2706 USA

Mission:

The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida. The office is located in Tampa, FL.

Results:

ESF trained 32 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESFprovided 22 camp scholarships and 10 scholarships for families to attend a family weekend retreat. ESF provided 4 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 3 scholarships for 3 persons with epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.

Target demographics:

Persons affected by epilepsy, primarily children & families

Direct beneficiaries per year:

800-1,000 persons

Geographic areas served:

West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando, Sumter, Citrus.

Programs:

Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer

2015 Top-Rated Nonprofit
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More Info

813-374-8907
http://www.epilepsysf.org

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Reviews for Epilepsy Services Foundation, Inc.

Rating: 5 stars  

ESF is a fantastic service organization. Their work, scholarships, social events, counseling and friendship has given my son with epilepsy newfound hope, friendship, and education. They are a bright spot in an otherwise traumatic experience. Keep up the good work.

Daniel Roberts, Wimauma, FL.

 
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Rating: 5 stars  

1 person found this review helpful

my daughter has epilepsy. We go to the family meet and greet and we love all the information. They are super compassioned. Tom who runs it is just a lovely man. They help us with the school system for a IEP for my daughter.

 
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Rating: 5 stars  

1 person found this review helpful

I just love ESF . They have help us with meeting other family's. They have paid for my daughter to go to camp boggy creek. They can answer questions better then the doctor. They are always just a phone call away. They have family outings. They do a epilepsy education day.

 
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Rating: 5 stars  

1 person found this review helpful

My 10 year old son was diagnosed this summer with epilepsy. Fortunately my family had done volunteer work with ESF over the past years and knew who to reach out to. We knew we had a family thru them and the support we would need to help us get through this. It helps to know that we are not alone. Knowing that we have trusted friends, families and the many wonderful people that volunteer at ESF here for us has made this transition of living with epilepsy so much easier for our son and the rest of our family. Being a part of this organization is such a blessing.

 
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Rating: 5 stars  

1 person found this review helpful

My son was diagnosed at 14 with seizures and from the outset, the support we have had from the ESF has been incredible. They are not only a source of information but we really feel they care, and go above and beyond my expectations. It is so reassuring to know that there is an organization out there that can guide, support, and help us not only as a family, but as individuals too.

 
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Rating: 5 stars  

1 person found this review helpful

I work collaboratively with this organization to help provide free retreat weekends to the families ESF serves. They are very attentive to their clients needs and really listen. What a wonderful organization. I look forward to working with them in the future.

 
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Rating: 5 stars  

1 person found this review helpful

I was an epilepsy patient at the time about two or three years ago. I didn't know I had epilepsy until my mom saw one happen. For some reason my neurologist didn't suggest this foundation until a year or two into the process. After we found this opportunity it worked out well, it helped pay for eeg's either in the hospital, at the doctor;s office or at home. It helped me determine what type of seizure i had. My seizures were so small that nobody noticed them until my mom saw me had one.

 
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Rating: 5 stars  

1 person found this review helpful

Since 2005, it has been my profound pleasure to be involved with Tom Orth and the Epilepsy Services Foundation in Tampa, FL. With Tom's help 24/7, I was able to take my son, Joseph McElroy, to the best doctors. Tom always made himself available to attend these appointments with us. My son passed away on September 4, 2010, but the best part of his life was being introduced to Camp Boggy Creek through Tom. Joseph attended Camp Boggy Creek for two summers through the Epilepsy Services Foundation and all this was done at no charge to us. No words can describe all that Tom and the Epilepsy Services Foundation did for Joseph and my family. Tom still remains in contact with us and we are forever grateful. Tom and the Foundation have superbly exceeded our expectations and are truly worthy of remaining on the Nonprofits 2014 Top-Rated List.

Sincerely,

Roseanne Marchesiello-Prusher

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
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Rating: 5 stars  

1 person found this review helpful

Thank You Epilepsy Services Foundation, Inc. for providing the grant for my son and other children with epilepsy to go to Camp Boggy Creek. This was Jason's second year going there and I can tell you that it positively changed his life. He was diagnosed with epilepsy about 3 years ago without any known cause. At age 12, he just had a drop-attack on a school field trip and then he started to have more frequent seizures. The medication finally got most of his seizures under control but one of the hardest things to deal with was his feelings of isolation or depression and feeling that others didn't understand. Camp Boggy Creek changed all that and he had such a fun time that he forgot all about his epilepsy. It is such a positive environment. The staff is outstanding. For a kid with epilepsy to go horseback riding, climbing a tower and zip-lining down, swimming, playing sports, going to wood-shop and his favorite - archery- is such an amazing accomplishment. We appreciate all the support that Epilepsy Services Foundation, Inc. has given our family. We see first-hand on how the money raised is used to support children with epilepsy. My son could not have attended without the grant from the Epilepsy Services Foundation, Inc. I would rate this a top nonprofit organization. Thank You so much, The Patella Family.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

2 people found this review helpful

Thanks to the wonderful program, the Epilepsy Services Foundation my son has been able to attend a great camp, Boggy Creek Camp. My son was diagnosed with epilepsy one week after his first birthday. He then over the years increased the different types of seizures and added additional medical issues. He is a wonderful teenager with a heart of gold. With the issues my son has without the support of the foundation my son would not be able to participate in a camp like other normal children. This is such a fantastic program supporting all individuals with epilepsy. I really appreciate everything Tom Orth and the foundation have done for my son.

If I had to make changes to this organization, I would...

Change nothing!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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