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August 14, 2012

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August 14, 2012

I became involved with this foundation through my wife who has epilepsy. Like most people I didn't know much about epilepsy and had very stereo-typical ideas about people with epilepsy. i.e. they look different, they act different, they are constantly having an "episode", they cannot lead a normal life, they are "slow", etc. I know it sounds awful but it's what many people believe. My wife is the very opposite of the above description; she is one of the most physically fit, motivated, disciplined, and intelligent persons I have ever met. She did not tell me about her epilepsy until months after dating and even after getting married I sometimes learn of old adversities that she has had to face due to others prejudices. This foundation has taught me so much about this condition and has encouraged me to give back in both my professional life and personal life. I am a chiropractor and have dedicated a significant portion of my practice to helping those that have epilepsy through spinal and cervical adjustments. It's no cure but the research shows there are benefits. Without this foundation, my wife would still be the incredible person she is today, she's a fighter, but I'm not sure I would be the husband that I am today. Thank-you Epilepsy Services Foundation.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 14, 2012

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August 14, 2012

My story starts when I was diagnosed with Juvenile Myoclonic Epilepsy at the age of eight. Luckily for me my condition was so minor that even my closest friends were not aware that I had epilepsy; epilepsy in a way became my dark secret in life. I led a very normal active life. I began my college career with the intention of becoming a lawyer, but subsequently determined that my passion at that time lied in a career in law enforcement. I applied for a very competitive scholarship with the Tampa Police Department. After a year-long background screening process that involved numerous psychological, fitness, and academic testing I eagerly accepted TPD’s scholarship offer. I had graduated from the police academy third in my class academically. A week after getting sworn in, I received a phone call from the doctor informing me that he would not be able to approve me medically fit to receive the pension. Consequently I lost my job. My worst nightmare had come true in the worst possible way. The doctor said that my condition was a “disability” and the department said that they would not be able to make any accommodations for me. I had never been called disabled before or treated in such a way, and now I was losing my job over my so called “disability”. Looking back I now realize that this was a turning point in my life. Before, I never considered myself an epileptic, but I was now forced to realize that I was. I was angry and realized that I shouldn’t be ashamed to have epilepsy and that I needed to fight back not just for myself, but for others with epilepsy that either had or will eventually be discriminated against as I was. This experience had given me a new perspective on life and illuminated a new career path in law. This was when I became involved with the Epilepsy Services Foundation. For six years now I have volunteered and have committed myself to this Foundation, but this foundation has helped me more emotionally, psychologically, and philosophically than I can ever return. I will be graduating from Stetson University Of Law in December and will continue to volunteer, support, and promote those that have epilepsy. I'm a living example; I'm epileptic and yes I can!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 13, 2012

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August 13, 2012

This charity is amazing! As the mother of a teenager recently diagnosed wiith Epilepsy, which was the result of a head injury sustained while wrestling around with friends, I decided that I wanted to become involved with anything to help raise awareness and funding for Epilespy. I volunteered for an event, an Epilepsy fundraising race, and instantly felt like one of the family. Everyone was very welcoming, and each had their own stories of how Epilespy has touched their lives. Epilepsy Services Foundation has opened my family's eyes to resources available to us in the community and support groups that we were previously unaware of. They even told us about a camp specifically for children with Epilepsy, Camp Boggy Creek, which my daughter attended in July, and she had a blast!!! For the first time since her head injury, she was able to relax and not be afraid of her seizures. Epilepsy Services Foundation has really helped my daughter to see that she is not alone, that there is help for her, and that people really do care and want to help find a cure for her and others dealing with Epilepsy.

The Great!

I've personally experienced the results of this organization in...

that my daughter was accpeted as a camper at Camp Boggy Creek.

Ways to make it better...

If I had to make changes to this organization, I would...

not make any changes at all- they are awesome!!!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

What one change could this group make that would improve your volunteer experience?

I truly cannot think of one change.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Yes, I met a lot of people dealing with the same issues as my family.

How did this volunteer experience make you feel?

Meeting others dealing with similar issues has made my family feel less alone in our struggles and it has given me hope about my daughter's future.

August 13, 2012

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August 13, 2012

Tom Orth does an amazing job as an administrator and this is the only group I commit personal time to. I have lived with my seizure disorder for almost 40 years and the quality of the relationships I have is why I am so committed to the Epilepsy Services Foundation.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 15, 2012

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June 15, 2012

I have been involved with ESF over the years and helped in several ways, one of which is the Golfing for Kids Classic. I also served on the committee and have volunteered at the Classic and the Hare Racing Experience. While working on these wonderful events, I have grown to love this organization and have seen 1st hand the difference it has made in so many peoples lives. The money helped raise scholarships for Boggy Creek and future educational goals. Our Tampa Bay organization has been a blessing for those effected by Epilepsy.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 12, 2012

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June 12, 2012

To keep this short and sweet I see the work that Tom and Epilepsy Services Foundation accomplish on a daily basis. His passion to help the epilepsy community is infectious and we are lucky to have such a supportive group as Epilepsy Services Foundation right here in the Tampa Bay area. While at an event I was able to see first hand the help that Tom and his group brings to the community - a mother of a newly diagnosed epilepsy patient was nervous and lost with their new challenge. Tom was able to bring together some other families who had already learned to deal with Epilepsy and help this scared mother. She left the meeting feeling empowered and confident that they would be able to meet this challenge head on. It still puts a smile on my face. Good work Tom.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 12, 2012

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June 12, 2012

I have worked with Tom Orth for the past three years helping out at their annual golf tournament. It's heartwarming to know that the money we raise will allow children with epilepsy to attend a summer camp, Camp Boggy Creek, just like other children. We just had our 24th Annual Golfing for Kids tournament and I believe we raised enough to help send 22 kids to camp this summer. We changed our venue this year and I believe we will be bigger and better again next year.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 24, 2011

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June 24, 2011

What a wonderful organization! For over 10 years I have had the pleasure of seeing this Foundations volunteer efforts go to work. My family (3 generations) have been involved in the NAIFA Tampa Golf Classic, Hare Racing Experience and the Ribs for Kid's Fundraising events for many years now. Although none of our immediate family or friends are challanged with this illness, we have nevertheless felt the impact of the work ESF does as expressed in the Boggy Creek camp we have been able to help send kids to every year.

The Great!

I've personally experienced the results of this organization in...

The impact they've made on the chioldren who attend Boggy Creek Camp every Summer.

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 16, 2011

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June 16, 2011

Epilepsy services is the best. I have worked with my professional association, the National Association of Insurance and Financial Advisors for more than 10 years to promote Epilepsy Services. We sponsor a golf tournament to send children with epilepsy to camp. We have raised over $400,000 in our 23 year partnership. I have seen a video of the children at camp and what an experience they have. Over the years we are always aware of the need for them and work to fill in the gap of monies needed.

The Great!

I've personally experienced the results of this organization in...

watching children enjoy camp.

Ways to make it better...

If I had to make changes to this organization, I would...

think of a way to involve more people for the cause.

June 15, 2011

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June 15, 2011

As both a volunteer and a mother of a child with epilepsy, I cannot begin to explain the impact that Epilepsy Services Foundation (ESF) has had on my life. When my husband and I first found out that our daughter was diagnosed with epilepsy at the age of 7 we did not know how to handle the news. Would she be normal and would the seizures have long term effects on her growth, learning process and ability to make friends and interact with other children? I work for a company that donates and volunteers their time to ESF and attended the Hare Racing Experience three years ago. Since that event, I have gained knowledge and information that has helped not only my husband and I but my daughter in understanding and dealing with her epilepsy in a positive and healthy way. I have met various healthcare professionals, counselors and parents through this wonderful organization who have touched my life in ways that some people would not even imagine. My daughter who is now 10 years old has such a positive outlook on her epilepsy and understands that it cannot and will not stop her in her every day life. She has been seizure free for a year and a half now and thanks to the tools and information provided to our family through ESF we are looking forward to the years to come. Please endorse Epilepsy Services Foundation so that other families, like mine, dealing with epilepsy can benefit from the wonderful services that they provide on a daily basis.

Karly A. Thompson

The Great!

I've personally experienced the results of this organization in...

Being able to have the strength, knowledge and positive outlook on epilepsy in order to help my family.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it known to everyone who has been diagnosed with epilepsy just how great of an organization Epilepsy Services Foundation is.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

1. help with some secretarial duties;2. lead a virtual or face-to-face support group for pre-teens, teens, siblings or families affected by epilepsy;3. organize a party for kids with epilepsy. Volunteer