I found out about the Epilepsy Services Foundation due to their SeptemBEERfest fundraising event and expressed interest in getting involved. They were very receptive and made it easy to get involved. Since then, I have seen first hand how many lives this foundation touches and how it helps our community. The people that work with this foundation are nothing but helpful, kind and generous. It has been such a joy to work with the Epilepsy Services Foundation and see how they aid those persons affected by epilepsy.
I am a new volunteer with the Epilepsy Services Foundation; however, I have had experience with them before through the support and care provided to my younger brother. As a new volunteer, with the exposure to their services through my brother's epilepsy, I can say that The Epilepsy Services Foundation is a wonderful organization aimed at providing care, support, and resources. I wish I had known of this organization sooner, at least for my brother, so that we could have found the support for him earlier, but I'm glad we found the ESF. Members of the ESF display qualities longed for among professional medical providers-- compassion, above all, patience, open-mindedness, and a sense of reassuring calm and hope. Training with them has been most enlightening, and I cannot wait to volunteer more with the organization.
I am a volunteer, I also serve on the Executive Boards, and 3 other committees with this organization. My two children have had epilepsy since they were 1 years old. They also have autism, however with my family & their fathers have a strong history of epilepsy in our families this is an issue dear to my heart. I moved to tampa and looked for a support group of some sort and I found ESF. I can't begin to tell you how this amazing organization saved me, my life, and my kids. I volunteer and do all I can to help raise awareness. They have been an asset to me to help others, raise awareness, give support. I am proud to be part of this organization. I am at home with both my kids, the go to school at home so life is not what I ever thought it would be & I would not change a thing. This organization has helped me in finding ways for my kids to be a part of something bigger and not feel strange. Tom Orth, Executive Director, is amazing. He even just sits and has coffee to provide 30 minutes for me to gather myself. I love being part of this organization, the information, support, and dedication have fulfilled a part of me in a way that can never be replaced.
I have participated in fundraising walks with ESF for many years and from the very beginning was extremely impressed with how the executive director, Tom Orth, reached out personally to participants to thank them for their support. Over the years I became a regular volunteer in the Purple Day Walk for Epilepsy held annually to raise funds to send kids with epilepsy to summer camp, and in January had the honor of being elected to the Board of Directors. We are a very small non-profit in the traditional sense in that we only have ONE paid employee and are almost completely volunteer driven, yet we have so many programs and events that we help children and adults affected by epilepsy in Hillsborough, Polk, and Pinellas counties (Florida) - which for those not familiar is the Tampa / St. Pete area. I am so privileged and honored to volunteer with this organization and plan to continue to associate myself with them for a very long time!
(I apologize in advance for any typos, as I recently dislocated my shoulder during an epileptic seizure and am typing 1 handed.) As both "client" and volunteer with ESF I can honestly say that this is a true non-profit that cares more about the people helped than to ever making $$ for themselves. Through a variety of walks and other events ESF not only brings Epilepsy awareness and education to the community, but also raise funds to send kids with Epilepsy to summer camp, college scholarships for students with Epilepsy as well as for those going into the field of neurology, and more. I am really glad I have become involved with ESF and hope to continue to be for a long time.
I have been volunteering for ESF with the organization of the HARE Racing Experience since 2009. This event has been very successful in helping children with epilepsy attend Camp Boggy Creek. Tom Orth (Executive Director for Epilepsy Services Foundation) works extremely hard and is dedicated to making this event successful for the children. It is a pleasure to work with Tom who is dedicated to raising funds needed to serve the people with epilepsy.
I've been involved with the Epilepsy Services Foundation for around 20 years, with their annual golf tournament, Ribs for Kids, etc. They always do an AWESOME job of organizing things, and more importantly, reflecting their genuine heart and concern for others, not just those whom they directly serve, but those whom they work with. Volunteers walk away being valued and knowing that they made a difference. As as professional with limited time to volunteer, I consider my work with ESF to be well worth my time.
When we moved to Tampa in 2008 we were advised to hook up with ESF and Tom Orth. We quickly learned about Tom's passion and his dedication for helping children with epilepsy and their families. Tom has given our family and our son, who has epilepsy, some very good connections over the years. We felt so good about what ESF has done and continues to do that my wife has been volunteering for the past four years, and I have helped some over the past three years. We are fortunate to have such a great organization like ESF and it's director Tom Orth
I have had the honor of volunteering for ESF for several years under the leadership of Tom Orth and his very dedicated staff. Tom and his team exude a passion for this foundation that goes beyond a commitment to raising funds for resources needed for persons suffering with seizure disorders. They provide a caring, personal and meaningful methodology for each candidate and their families. My husband and I happily volunteer for this great cause. We are blessed with good health and continue to hope for continued progressive research for all in need.
ESF has been helping people with seizure disorders and their families for decades. It has a committed group of volunteers, but more important are the staff who commit themselves every day to improving the lives of their clients. A good portion of ESF's funding comes through private fundraising events, organized and staffed by the Executive Director and lots of volunteers, so a very high percentage of every dollar raised goes directly to benefit the clients. Can't say enough good things about this organization.
As a volunteer I have the opportunity to help plan, collect donations, get volunteers and golf in a great outing with some of my fellow colleagues. It's a thrill to see how the community comes together on behalf of the children with epilepsy giving donations, funds, time, raffle prizes, and food! I didn't know much about eplilepsy before volunteering to help make the golf outing a success. It's stunning to hear how many precautions that people with epilepsy have to take to keep from having a seizure. Without this organization there are many children who would never get to experience a camp because the cost is prohibited with the 24/7 medical assistance needed. I was looking for something to give back to the community and even though this is only a once a year event, I am thrilled to participate. This organization is great. Tom Orth who is in charge is the most kind and sincere person you will ever meet. It's not about him. It's about the kids! When the community gives so much it's great just to watch Tom, he's like a kid himself. He gets so excited and never loses gratitude. If you are looking for a solid organization to volunteer or support, I highly recommend this one. Donna B, Tampa FL