Epilepsy Services Foundation, Inc.

Rating: 4.98 stars   60 reviews

Issues: Health

Location: 4628 North Armenia Avenue Tampa FL 33603-2706 USA

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida. The office is located in Tampa, FL.
Results: ESF trained 32 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESFprovided 22 camp scholarships and 10 scholarships for families to attend a family weekend retreat. ESF provided 4 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 3 scholarships for 3 persons with epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.
Target demographics: Persons affected by epilepsy, primarily children & families
Direct beneficiaries per year: 800-1,000 persons
Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando, Sumter, Citrus.
Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer
2014 Top-Rated Nonprofit
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EIN 59-1680892
813-374-8907
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Community Reviews

Rating: 5 stars  

I've been involved with the Epilepsy Services Foundation for around 20 years, with their annual golf tournament, Ribs for Kids, etc. They always do an AWESOME job of organizing things, and more importantly, reflecting their genuine heart and concern for others, not just those whom they directly serve, but those whom they work with. Volunteers walk away being valued and knowing that they made a difference. As as professional with limited time to volunteer, I consider my work with ESF to be well worth my time.

If I had to make changes to this organization, I would...

Not sure.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

When we moved to Tampa in 2008 we were advised to hook up with ESF and Tom Orth. We quickly learned about Tom's passion and his dedication for helping children with epilepsy and their families. Tom has given our family and our son, who has epilepsy, some very good connections over the years. We felt so good about what ESF has done and continues to do that my wife has been volunteering for the past four years, and I have helped some over the past three years. We are fortunate to have such a great organization like ESF and it's director Tom Orth

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I have had the honor of volunteering for ESF for several years under the leadership of Tom Orth and his very dedicated staff. Tom and his team exude a passion for this foundation that goes beyond a commitment to raising funds for resources needed for persons suffering with seizure disorders. They provide a caring, personal and meaningful methodology for each candidate and their families. My husband and I happily volunteer for this great cause. We are blessed with good health and continue to hope for continued progressive research for all in need.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

ESF has been helping people with seizure disorders and their families for decades. It has a committed group of volunteers, but more important are the staff who commit themselves every day to improving the lives of their clients. A good portion of ESF's funding comes through private fundraising events, organized and staffed by the Executive Director and lots of volunteers, so a very high percentage of every dollar raised goes directly to benefit the clients. Can't say enough good things about this organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

As a volunteer I have the opportunity to help plan, collect donations, get volunteers and golf in a great outing with some of my fellow colleagues. It's a thrill to see how the community comes together on behalf of the children with epilepsy giving donations, funds, time, raffle prizes, and food! I didn't know much about eplilepsy before volunteering to help make the golf outing a success. It's stunning to hear how many precautions that people with epilepsy have to take to keep from having a seizure. Without this organization there are many children who would never get to experience a camp because the cost is prohibited with the 24/7 medical assistance needed. I was looking for something to give back to the community and even though this is only a once a year event, I am thrilled to participate. This organization is great. Tom Orth who is in charge is the most kind and sincere person you will ever meet. It's not about him. It's about the kids! When the community gives so much it's great just to watch Tom, he's like a kid himself. He gets so excited and never loses gratitude. If you are looking for a solid organization to volunteer or support, I highly recommend this one. Donna B, Tampa FL

If I had to make changes to this organization, I would...

Nothing

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I have participated in fundraising walks with ESF for many years and from the very beginning was extremely impressed with how the executive director, Tom Orth, reached out personally to participants to thank them for their support. Over the years I became a regular volunteer in the Purple Day Walk for Epilepsy held annually to raise funds to send kids with epilepsy to summer camp, and in January had the honor of being elected to the Board of Directors. We are a very small non-profit in the traditional sense in that we only have ONE paid employee and are almost completely volunteer driven, yet we have so many programs and events that we help children and adults affected by epilepsy in Hillsborough, Polk, and Pinellas counties (Florida) - which for those not familiar is the Tampa / St. Pete area. I am so privileged and honored to volunteer with this organization and plan to continue to associate myself with them for a very long time!

If I had to make changes to this organization, I would...

open more eyes to what we do so that every day we could help even more people!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

(I apologize in advance for any typos, as I recently dislocated my shoulder during an epileptic seizure and am typing 1 handed.) As both "client" and volunteer with ESF I can honestly say that this is a true non-profit that cares more about the people helped than to ever making $$ for themselves. Through a variety of walks and other events ESF not only brings Epilepsy awareness and education to the community, but also raise funds to send kids with Epilepsy to summer camp, college scholarships for students with Epilepsy as well as for those going into the field of neurology, and more. I am really glad I have become involved with ESF and hope to continue to be for a long time.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

Epilepsy Services Foundation, Inc. of the greater Tampa Bay area is a driving force in education, awareness, and aid for families effected by epilepsy. As a person living with epilepsy, the knowledge base of the organization was immensely helpful to me early in my dealings with my condition. As a volunteer, I have had the pleasure of serving on the planning committee for our annual Purple Day Walk for Epilepsy in Lakeland, FL, through which we not only raise awareness for Epilepsy but also funds to send kids with epilepsy to Camp Boggy Creek - a summer camp in the area for medically needy kids. This year we raised enough money to send 22 kids to summer camp! Other events held throughout the last several years have also provided scholarships to college students planning a career in neurology, and scholarships to students effected by epilepsy. I am very proud to be associated with ESF!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The Epilepsy Services Foundaiton, Inc. is a unique foundation that supports the need to spread awareness of a very important cause that impacts children of all ages. The executive director, Tom is wonderful and truly cares for the foundation and is very dedicated. I feel honored to be a part of a wonderful team.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The Epilepsy Services Foundation has given me the opportunity to get involved with the community and help other individuals with seizure disorders - like myself - by allowing me to be a part Project Access. As a volunteer, I have witnessed first had the hard work board members put in to assure individuals with seizure disorders receive proper care, put together events that intend to educate others about epilepsy, fund raise, and most importantly provide a loving environment in which a person can feel welcomed and accepted for who they are. The foundation has also granted me a scholarship that will help me further my education in hopes that one day I will be able to create programs to improve the quality of life of persons with seizure disorders through the public health sector. The foundation deserves this award and much more!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I became involved with this foundation through my wife who has epilepsy. Like most people I didn't know much about epilepsy and had very stereo-typical ideas about people with epilepsy. i.e. they look different, they act different, they are constantly having an "episode", they cannot lead a normal life, they are "slow", etc. I know it sounds awful but it's what many people believe. My wife is the very opposite of the above description; she is one of the most physically fit, motivated, disciplined, and intelligent persons I have ever met. She did not tell me about her epilepsy until months after dating and even after getting married I sometimes learn of old adversities that she has had to face due to others prejudices. This foundation has taught me so much about this condition and has encouraged me to give back in both my professional life and personal life. I am a chiropractor and have dedicated a significant portion of my practice to helping those that have epilepsy through spinal and cervical adjustments. It's no cure but the research shows there are benefits. Without this foundation, my wife would still be the incredible person she is today, she's a fighter, but I'm not sure I would be the husband that I am today. Thank-you Epilepsy Services Foundation.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

My story starts when I was diagnosed with Juvenile Myoclonic Epilepsy at the age of eight. Luckily for me my condition was so minor that even my closest friends were not aware that I had epilepsy; epilepsy in a way became my dark secret in life. I led a very normal active life. I began my college career with the intention of becoming a lawyer, but subsequently determined that my passion at that time lied in a career in law enforcement. I applied for a very competitive scholarship with the Tampa Police Department. After a year-long background screening process that involved numerous psychological, fitness, and academic testing I eagerly accepted TPD’s scholarship offer. I had graduated from the police academy third in my class academically. A week after getting sworn in, I received a phone call from the doctor informing me that he would not be able to approve me medically fit to receive the pension. Consequently I lost my job. My worst nightmare had come true in the worst possible way. The doctor said that my condition was a “disability” and the department said that they would not be able to make any accommodations for me. I had never been called disabled before or treated in such a way, and now I was losing my job over my so called “disability”. Looking back I now realize that this was a turning point in my life. Before, I never considered myself an epileptic, but I was now forced to realize that I was. I was angry and realized that I shouldn’t be ashamed to have epilepsy and that I needed to fight back not just for myself, but for others with epilepsy that either had or will eventually be discriminated against as I was. This experience had given me a new perspective on life and illuminated a new career path in law. This was when I became involved with the Epilepsy Services Foundation. For six years now I have volunteered and have committed myself to this Foundation, but this foundation has helped me more emotionally, psychologically, and philosophically than I can ever return. I will be graduating from Stetson University Of Law in December and will continue to volunteer, support, and promote those that have epilepsy. I'm a living example; I'm epileptic and yes I can!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?