Years ago I had the opportunity to attend a day long session at Camp Boggy Creek with Tom Orth of the Epilepsy Services Foundation. This camp allows children that may otherwise be considered different from other kids to feel "normal". Each week there is a different group of kids to come to the camp. We obviously were able to observe the week when kids with Epilepsy were there. The staff was amazing, there were doctors and nurses on site the entire time, but the most noticeable thing at the camp were the smile on every one of the children's faces.
I have helped Tom with many events throughout the years. When I had a chance to see the end results of all our hard work, it made everything worth while. Epilepsy Services Foundation is EXTREMELY well run and always keeps the mission of helping kids and their families impacted by Epilepsy at the forefront. Kudos to Tom Orth and Epilepsy Services Foundation!
The individuals who run the Epilepsy Services Foundation in Tampa go the extra mile for patients and families dealing with all aspects of Epilepsy. They continue to educate past the initial diagnosis of the disease to help families try to live normal lives. Their work in the community, from fundraising to collaboration with healthcare professionals, shows their commitment to patients and families. It has been an honor to work with ESF and to be part of their mission.
The Epilepsy Services Foundation does not only help individuals that are dealing with Epilepsy but they go the extra mile to help educate any individual that is interested in Epilepsy. I have been volunteering with the Epilepsy Services Foundation for several months now, and Tom and every other employee and member of this Foundation work to make it the best it can be.
I have been a volunteer at ESF for almost two years. I have watch them help family's with meet and greet groups. They provide a education program and help with medical test. Most of all they give the family's hope.
Best charity I've ever known. They actually provide services like health care. Other local charities seem to just provide information.
I wanted to get involved in awarness for Epilepsy in the local communnity. I researched and came across Epilepsy Service Foundation (ESF) and met Tom Orth. I was very impressed on the great job he has done organizing the events for ESF. I was able to volunteer at the Golfing for Kids Classic on May 9th, 2014 .... I was very impressed on what a great turnout and had so much fun ! I recently attended ESF SeptemBEERfest......another great event !I believe that there should be more awarness of Epilepsy and so does my company..... When I found out that ESF also helps fund scholarships to send 25 kids to Camp Boggy Creek ,,,,, I was more excited to get involved. If you do not know about Camp Boggy Creek ,,,, it is a AMAZING camp that kids can be kids !!! I was so impressed !!!!! I look forward to working with Tom and the ESF .... next few events count me in ! Lets Walk Together for Epilepsy Saturday March 7th 2015 in Lakeland & Seminole. Also on March 28th, 2015 at USF Track and field in Tampa, Fl. Count me in as a volunteer for all future events !!! Thanks Tom for all your help !!!
I learned about ESF last year when my daughter was diagnosed with epilepsy. Tom Orth and the other families have served as an excellent resource for me and my family with regard to finding a doctor or just basic questions regarding my daughter's seizures and her care. My experience with this organization has been so positive and comforting, especially for my daughter. I am certainly looking forward to being a more active participant with all the events they have planned, as well as to one day serve as a resource for other families. I can honestly say that when I walked out of my first support group meeting with my daughter, I felt as though a huge weight had been lifted off my shoulders. It was extremely emotional for me and the outpouring of care and sincere concern that I felt from the other families present was overwhelming. I now know I have an additional support system and am so happy to have found ESF.
I cannot say enough for the Epilepsy Services Foundation I am involved in. I decided to get involved in the foundation after being referred to Tom Orth through my neurologists. After battling epilepsy all through out my teen years and even through college I decided I wanted to help and get involved. It wasn't until I had epilepsy surgery that I was cured. It really is a disease that needs more attention and education. It is hard to know what your options are and to deal with living on a day to day basis when so many people know so little about the disease. The Epilepsy Services Foundation is truely dedicated to educating and spreading awareness. We have a wonderful team of volunteers that are living with or know someone who has epilepsy and want to help others with the disease. Everyone is truely motivated and this is a 100% honest foundation. I have no question everyone who is involved is in it for the right reasons!
My family and I have been involved with ESF over the last few years, as they had renamed their camp scholarship in honor of my brother Joseph, who passed away in 2010 from a silent seizure. Since then, we hold a fundrasier each January to raise money and help send children with epilepsy to camp. Working with Tom Orth, director of ESF is a wonderful, easy, stress free experience. He truly cares about the success of our event, and makes so much effort to keep in contact with my family and I. We are so grateful to Tom and the members of ESF for supporting a cause that is so dear to us.
I have volunteered and known the organization for many years. I have been at the HARE Racing Experience many times. It is always a pleasure to work with Tom and be at these events. Everything is so organized and well planned out. They are very passionate about everything they do and are extremely committed to doing their best for everyone affected by epilepsy.