Epilepsy Services Foundation, Inc.
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What a wonderful organization! For over 10 years I have had the pleasure of seeing this Foundations volunteer efforts go to work. My family (3 generations) have been involved in the NAIFA Tampa Golf Classic, Hare Racing Experience and the Ribs for Kid's Fundraising events for many years now. Although none of our immediate family or friends are challanged with this illness, we have nevertheless felt the impact of the work ESF does as expressed in the Boggy Creek camp we have been able to help send kids to every year.
The Great!
I've personally experienced the results of this organization in...
The impact they've made on the chioldren who attend Boggy Creek Camp every Summer.
Ways to make it better...
If I had to make changes to this organization, I would...
none
Epilepsy services is the best. I have worked with my professional association, the National Association of Insurance and Financial Advisors for more than 10 years to promote Epilepsy Services. We sponsor a golf tournament to send children with epilepsy to camp. We have raised over $400,000 in our 23 year partnership. I have seen a video of the children at camp and what an experience they have. Over the years we are always aware of the need for them and work to fill in the gap of monies needed.
The Great!
I've personally experienced the results of this organization in...
watching children enjoy camp.
Ways to make it better...
If I had to make changes to this organization, I would...
think of a way to involve more people for the cause.
As both a volunteer and a mother of a child with epilepsy, I cannot begin to explain the impact that Epilepsy Services Foundation (ESF) has had on my life. When my husband and I first found out that our daughter was diagnosed with epilepsy at the age of 7 we did not know how to handle the news. Would she be normal and would the seizures have long term effects on her growth, learning process and ability to make friends and interact with other children? I work for a company that donates and volunteers their time to ESF and attended the Hare Racing Experience three years ago. Since that event, I have gained knowledge and information that has helped not only my husband and I but my daughter in understanding and dealing with her epilepsy in a positive and healthy way. I have met various healthcare professionals, counselors and parents through this wonderful organization who have touched my life in ways that some people would not even imagine. My daughter who is now 10 years old has such a positive outlook on her epilepsy and understands that it cannot and will not stop her in her every day life. She has been seizure free for a year and a half now and thanks to the tools and information provided to our family through ESF we are looking forward to the years to come. Please endorse Epilepsy Services Foundation so that other families, like mine, dealing with epilepsy can benefit from the wonderful services that they provide on a daily basis.
Karly A. Thompson
The Great!
I've personally experienced the results of this organization in...
Being able to have the strength, knowledge and positive outlook on epilepsy in order to help my family.
Ways to make it better...
If I had to make changes to this organization, I would...
Make it known to everyone who has been diagnosed with epilepsy just how great of an organization Epilepsy Services Foundation is.
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2011
I recently got involved with the Epilepsy Services Foundation to help fight for those living with this condition. My best friend's sweet little boy, Jake from Texas, was diagnosed with Epilepsy when he was 3. From that moment on I set out to find a way for me to be involved and to learn more. I knew the moment I met Tom Orth it was calling my name. The genuine passion, care and concern for the Epilepsy community is apparent in every little thing the foundation does. Sending kids to camp, spreading awareness, providing scholarships to those entering the neurological field, doctor referrals, mentoring programs, a wealth of knowledge, and so much more...It's quite eye-opening as to what it truly means to give passionately. I am so fortunate to volunteer and be a part of such a great foundation.
The Great!
I've personally experienced the results of this organization in...
many ways. The mentoring program has really helped strengthen my knowledge of the subject. It has helped me feel confident when talking to people and making people aware. I was lucky to be in charge of the Purple Day walk for Epilepsy in Seminole, FL...what a great feeling to walk with those living with Epilepsy and to be there for them as a resource and friend.
Ways to make it better...
If I had to make changes to this organization, I would...
shout what we do from the ROOFTOPS!!! The more people that know about Epilepsy..the better! Talk about it, educate people and HELP people face this topic, rather than avoid it! It knows no boundaries and is more prevalent than anyone knows! WE have got to get more research and awareness going...
I first got involved with Epilepsy Services Foundation after I moved to central FL and began looking for a local epilepsy organization. ESF was taking part in their "Be a Cupcake! Buy a Cupcake!" fund raising and awareness campaign and I thought I can do that! When I contacted ESF I also got information on an upcoming local awareness walk and joined the planning committee. Since my son was diagnosed with epilepsy in 2007 I've wanted to be a part of something to spread awareness and to be able to share experiences with others who understand firsthand. I consider myself so lucky to have found ESF and am proud and excited to become more involved.
The Great!
I've personally experienced the results of this organization in...
the awareness walk for Purple Day. A young mom with a newly diagnosed toddler and I talked near the end of the event. She was overwhelmed and scared and was so happy she had found out about the walk and that she came and saw wasn't alone. It's a great thing, to have been that scared and overwhelmed mom a few years ago and to now be a part of an organization that raises awareness and education and can support someone else as they start this journey.
Ways to make it better...
If I had to make changes to this organization, I would...
I have no changes to suggest at this time
My employer is a large law firm who has sponsored ESF for years with their various fundraisers. I became involved in volunteering with ESF five or six years ago for their annual Hyde Park Music Series event as well as their Hare Race Experience in Tampa. At each event I would always meet someone who shared their story of having epilepsy and the significant help they received from ESF and how it change their lives. I do not suffer from the disease but felt compelled to continue volunteering and helping with this great cause. As fate would have it my husband and I changed churches four years ago and we began attending Sunday service at the James A. Haley Veteran Hospital and there was Tom (ESF Executive Director) and his wife, Carole. We see Tom on a weekly basis and speak about the ongoing good results that occur for this foundation. Tom's demeanor and personality shines in his perseverance and dedication to this cause. I can only hope that he will continue to receive the resources needed to help so many who suffer from this dreaded illness. I recently attended a scholarship reception for several ESF students who will continue to work in the health field looking for a cure for Epilepsy. One particular family touched my heart where both brother and sister were diagnosed with epilepsy in their teen years and are now faced with the loss of privileges most teens take for granted, i.e., a driver's license, etc. I am blessed with good health . . . . they should be too. Any assistance for ESF is always greatly appreciated.
The Great!
I've personally experienced the results of this organization in...
I am a healthy volunteer without the need for this organization's services
Ways to make it better...
If I had to make changes to this organization, I would...
suggest they consider social networking for better exposure.
I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!
The Great!
I've personally experienced the results of this organization in...
the faces of children who can finally go to summer camp with their peers in a safe, friendly and fun environment.
Ways to make it better...
If I had to make changes to this organization, I would...
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
the friends I have made and the reminder that there is so much good in this world working behind the scenes.
The kinds of staff and volunteers that I met were...
absolutely fabulous.
If this organization had 10 million bucks, it could...
bring greater awareness regarding an affliction that affects millions of Americans but which is misunderstood, often misdiagnosed and regularly stigmatized.
Ways to make it better...
I had more money and time to give.
In my opinion, the biggest challenges facing this organization are...
assisting as many people as possible in the face of insufficient heath care and medical assistance.
When was your last experience with this nonprofit?
2009
I have been involved with ESF since early 2000; as a volunteer, as a part-time employee, and as a donor. Wishing that eveyone could see the good works that have been done and are still being done by ESF. The children that have been able to attend camp, the college students that have been given scholarship funds, the medical expenses that have been paid, the social activities for clients at holidays, and the education that has been given to the community. What an amazing organization!
The Great!
I've personally experienced the results of this organization in...
the west coast of Florida.
Ways to make it better...
If I had to make changes to this organization, I would...
spend even more time helping families cope with all the medical and psychological problems that come with the epilepsy.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
attending educational opportunities with persons that have been affected by seizure activity.
The kinds of staff and volunteers that I met were...
so dedicated and caring.
If this organization had 10 million bucks, it could...
help more persons get medical treatment.
Ways to make it better...
I had the $10 million bucks mentioned above, because I would use it to help the cause!
In my opinion, the biggest challenges facing this organization are...
lack of funding sources and the fact that epilepsy seems to be one of the best kept secrets in the world!
One thing I'd also say is that...
I am very proud to be associated with a non-profit as well run and well-governed as Epilepsy Services Foundation, Inc.
When was your last experience with this nonprofit?
2009
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