Epilepsy Services Foundation, Inc.

Rating: 4.98 stars   60 reviews

Issues: Health

Location: 4628 North Armenia Avenue Tampa FL 33603-2706 USA

Mission: The Epilepsy Services Foundation, Inc. is committed to creating a better future and environment for persons affected by epilepsy in West Central Florida. The office is located in Tampa, FL.
Results: ESF trained 32 mentors who can provide education and support to other parents, families and children affected by epilepsy. ESF trained 18 volunteers to meet with families of newly diagnosed children with epilepsy at the St. Joseph Children's Hospital ESFprovided 22 camp scholarships and 10 scholarships for families to attend a family weekend retreat. ESF provided 4 scholarships for University of South Florida medical students and residents to continue their pursuit of neurology as a medical focus. ESF provided 3 scholarships for 3 persons with epilepsy to pursue their college degrees. ESF provided numerous epilepsy education programs to students, teachers, childcare workers and nurses in West Central Florida.
Target demographics: Persons affected by epilepsy, primarily children & families
Direct beneficiaries per year: 800-1,000 persons
Geographic areas served: West Central Florida: Hillsborough, Polk, Hardee, Highlands, Pinellas, Pasco, Hernando, Sumter, Citrus.
Programs: Information and Referral Education & Awareness Graces' Hope Hospital Visitation Program Support Groups Mentoring Project Access Emergency medications Fundraising Volunteer
2014 Top-Rated Nonprofit
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EIN 59-1680892
813-374-8907
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Community Reviews

Rating: 5 stars  

I wanted to get involved in awarness for Epilepsy in the local communnity. I researched and came across Epilepsy Service Foundation (ESF) and met Tom Orth. I was very impressed on the great job he has done organizing the events for ESF. I was able to volunteer at the Golfing for Kids Classic on May 9th, 2014 .... I was very impressed on what a great turnout and had so much fun ! I recently attended ESF SeptemBEERfest......another great event !I believe that there should be more awarness of Epilepsy and so does my company..... When I found out that ESF also helps fund scholarships to send 25 kids to Camp Boggy Creek ,,,,, I was more excited to get involved. If you do not know about Camp Boggy Creek ,,,, it is a AMAZING camp that kids can be kids !!! I was so impressed !!!!! I look forward to working with Tom and the ESF .... next few events count me in ! Lets Walk Together for Epilepsy Saturday March 7th 2015 in Lakeland & Seminole. Also on March 28th, 2015 at USF Track and field in Tampa, Fl. Count me in as a volunteer for all future events !!! Thanks Tom for all your help !!!

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Rating: 5 stars  

I learned about ESF last year when my daughter was diagnosed with epilepsy. Tom Orth and the other families have served as an excellent resource for me and my family with regard to finding a doctor or just basic questions regarding my daughter's seizures and her care. My experience with this organization has been so positive and comforting, especially for my daughter. I am certainly looking forward to being a more active participant with all the events they have planned, as well as to one day serve as a resource for other families. I can honestly say that when I walked out of my first support group meeting with my daughter, I felt as though a huge weight had been lifted off my shoulders. It was extremely emotional for me and the outpouring of care and sincere concern that I felt from the other families present was overwhelming. I now know I have an additional support system and am so happy to have found ESF.

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Rating: 5 stars  

I cannot say enough for the Epilepsy Services Foundation I am involved in. I decided to get involved in the foundation after being referred to Tom Orth through my neurologists. After battling epilepsy all through out my teen years and even through college I decided I wanted to help and get involved. It wasn't until I had epilepsy surgery that I was cured. It really is a disease that needs more attention and education. It is hard to know what your options are and to deal with living on a day to day basis when so many people know so little about the disease. The Epilepsy Services Foundation is truely dedicated to educating and spreading awareness. We have a wonderful team of volunteers that are living with or know someone who has epilepsy and want to help others with the disease. Everyone is truely motivated and this is a 100% honest foundation. I have no question everyone who is involved is in it for the right reasons!

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Rating: 5 stars  

My family and I have been involved with ESF over the last few years, as they had renamed their camp scholarship in honor of my brother Joseph, who passed away in 2010 from a silent seizure. Since then, we hold a fundrasier each January to raise money and help send children with epilepsy to camp. Working with Tom Orth, director of ESF is a wonderful, easy, stress free experience. He truly cares about the success of our event, and makes so much effort to keep in contact with my family and I. We are so grateful to Tom and the members of ESF for supporting a cause that is so dear to us.

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Rating: 5 stars  

I have volunteered and known the organization for many years. I have been at the HARE Racing Experience many times. It is always a pleasure to work with Tom and be at these events. Everything is so organized and well planned out. They are very passionate about everything they do and are extremely committed to doing their best for everyone affected by epilepsy.

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Rating: 5 stars  

I found out about the Epilepsy Services Foundation due to their SeptemBEERfest fundraising event and expressed interest in getting involved. They were very receptive and made it easy to get involved. Since then, I have seen first hand how many lives this foundation touches and how it helps our community. The people that work with this foundation are nothing but helpful, kind and generous. It has been such a joy to work with the Epilepsy Services Foundation and see how they aid those persons affected by epilepsy.

If I had to make changes to this organization, I would...

A little more tech-savvy to include mobile giving opportunities to aid with donations.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

I am a new volunteer with the Epilepsy Services Foundation; however, I have had experience with them before through the support and care provided to my younger brother. As a new volunteer, with the exposure to their services through my brother's epilepsy, I can say that The Epilepsy Services Foundation is a wonderful organization aimed at providing care, support, and resources. I wish I had known of this organization sooner, at least for my brother, so that we could have found the support for him earlier, but I'm glad we found the ESF. Members of the ESF display qualities longed for among professional medical providers-- compassion, above all, patience, open-mindedness, and a sense of reassuring calm and hope. Training with them has been most enlightening, and I cannot wait to volunteer more with the organization.

If I had to make changes to this organization, I would...

Would not change anything.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

I am a volunteer, I also serve on the Executive Boards, and 3 other committees with this organization. My two children have had epilepsy since they were 1 years old. They also have autism, however with my family & their fathers have a strong history of epilepsy in our families this is an issue dear to my heart. I moved to tampa and looked for a support group of some sort and I found ESF. I can't begin to tell you how this amazing organization saved me, my life, and my kids. I volunteer and do all I can to help raise awareness. They have been an asset to me to help others, raise awareness, give support. I am proud to be part of this organization. I am at home with both my kids, the go to school at home so life is not what I ever thought it would be & I would not change a thing. This organization has helped me in finding ways for my kids to be a part of something bigger and not feel strange. Tom Orth, Executive Director, is amazing. He even just sits and has coffee to provide 30 minutes for me to gather myself. I love being part of this organization, the information, support, and dedication have fulfilled a part of me in a way that can never be replaced.

If I had to make changes to this organization, I would...

None... we bring changes up, they ask for changes, they are change agents.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

I have been volunteering for ESF with the organization of the HARE Racing Experience since 2009. This event has been very successful in helping children with epilepsy attend Camp Boggy Creek. Tom Orth (Executive Director for Epilepsy Services Foundation) works extremely hard and is dedicated to making this event successful for the children. It is a pleasure to work with Tom who is dedicated to raising funds needed to serve the people with epilepsy.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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