Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
48 Reviews
1234.979175
| 1 ... 3 4 5 |
Write A Review
June 15, 2011

more

June 15, 2011

As both a volunteer and a mother of a child with epilepsy, I cannot begin to explain the impact that Epilepsy Services Foundation (ESF) has had on my life. When my husband and I first found out that our daughter was diagnosed with epilepsy at the age of 7 we did not know how to handle the news. Would she be normal and would the seizures have long term effects on her growth, learning process and ability to make friends and interact with other children? I work for a company that donates and volunteers their time to ESF and attended the Hare Racing Experience three years ago. Since that event, I have gained knowledge and information that has helped not only my husband and I but my daughter in understanding and dealing with her epilepsy in a positive and healthy way. I have met various healthcare professionals, counselors and parents through this wonderful organization who have touched my life in ways that some people would not even imagine. My daughter who is now 10 years old has such a positive outlook on her epilepsy and understands that it cannot and will not stop her in her every day life. She has been seizure free for a year and a half now and thanks to the tools and information provided to our family through ESF we are looking forward to the years to come. Please endorse Epilepsy Services Foundation so that other families, like mine, dealing with epilepsy can benefit from the wonderful services that they provide on a daily basis.

Karly A. Thompson

The Great!

I've personally experienced the results of this organization in...

Being able to have the strength, knowledge and positive outlook on epilepsy in order to help my family.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it known to everyone who has been diagnosed with epilepsy just how great of an organization Epilepsy Services Foundation is.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

June 15, 2011

more

June 15, 2011

I am a mother of a child with epilepsy and a nurse. I became a board member this year as a way of giving back. My son and our family have personally benefitted from the foundation - he has been able to attend Camp Boggy Creek for the last 8 years. To watch him grow through camp has been the most wonderful thing. This is his last year to attend and he looks forward to going back as a volunteer. I was awarded a scholarship through the foundation to continue my schooling as I work toward my ARNP specializing in pediatric neurology. I am also a member of the HOPE mentoring team - helping the community through teaching and mentoring those in need. I could go on and on about the wonderful things the foundation provides. Let there never be a question that this organization is a vital one in this community. Thank you ESF!

The Great!

I've personally experienced the results of this organization in...

My son has been able to attend camp for 8 years. I have personally received a scholarship for school through ESF.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish I could provide them with more of my time. I think the organization is doing a wonderful job.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Through Camp Boggy Creek

When was your last experience with this nonprofit?

2011

June 14, 2011

more

June 14, 2011

I recently got involved with the Epilepsy Services Foundation to help fight for those living with this condition. My best friend's sweet little boy, Jake from Texas, was diagnosed with Epilepsy when he was 3. From that moment on I set out to find a way for me to be involved and to learn more. I knew the moment I met Tom Orth it was calling my name. The genuine passion, care and concern for the Epilepsy community is apparent in every little thing the foundation does. Sending kids to camp, spreading awareness, providing scholarships to those entering the neurological field, doctor referrals, mentoring programs, a wealth of knowledge, and so much more...It's quite eye-opening as to what it truly means to give passionately. I am so fortunate to volunteer and be a part of such a great foundation.

The Great!

I've personally experienced the results of this organization in...

many ways. The mentoring program has really helped strengthen my knowledge of the subject. It has helped me feel confident when talking to people and making people aware. I was lucky to be in charge of the Purple Day walk for Epilepsy in Seminole, FL...what a great feeling to walk with those living with Epilepsy and to be there for them as a resource and friend.

Ways to make it better...

If I had to make changes to this organization, I would...

shout what we do from the ROOFTOPS!!! The more people that know about Epilepsy..the better! Talk about it, educate people and HELP people face this topic, rather than avoid it! It knows no boundaries and is more prevalent than anyone knows! WE have got to get more research and awareness going...

June 14, 2011

more

June 14, 2011

In my years as both a volunteer and board member at the Epilepsy Services Foundation, I have learned so much! I have learned about epilespy, how it affects the person affected with it, and the channels these persons go through to receive treatment. The Epilepsy Services Foundation provides invaluable services to the epileptic community. They send kids to Camp Boggy Creek, provide scholarships, and offer guidance to the community they serve. There is not another non-profit that i have been associated with as either a volunteer or board member that is so communited to their cause.

The Great!

I've personally experienced the results of this organization in...

I have personally contributed to this organization by planning the major fundraiser, the Golf Tournament. The funds raised from this tournament send children to Camp Boggy Creek.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish more people were aware of what this organization does. The more people who are involved, the bigger the impact we could make.

June 14, 2011

more

June 14, 2011

As a business leader in our community, I am often approached to donate time, money and energy to many different charitable organizations. While all are deserving, I have a special place in my heart for Epilepsy Services Foundation. Every year, thanks to the efforts of Tom Orth, Executive Director, ESF is able to send children affected by Epilepsy to a Summer Camp where for 1 week during the entire year, they feel normal. Notice I did not say special, they feel normal. To see the look on a kid’s face that ordinarily has to be treated special being treated as a normal kid, it really is worth every bit of energy and time.

In addition to the camp, ESF also provides scholarships to people affected by Epilepsy to allow them to further their academic progress. They also provide scholarships to those entering into fields that will help those affected by Epilepsy.

While other organizations are truly deserving, I am especially proud to be on the board of ESF. I see first hand the difference a few people can make in the lives of so many.

The Great!

I've personally experienced the results of this organization in...

Seeing the kids create lifelong memories at camp.

Ways to make it better...

If I had to make changes to this organization, I would...

Recruit more energetic people to help in our cause.

June 8, 2011

more

June 8, 2011

I have been involved with The Epilepsy Foundation for a period of 5 years. I am always amazed at the level of concern always about clients, their care and their families. All decisions in the organization are based on service to people affected with Epilepsy and their families and care takers.
In this day and age when bottom line is always the concern, it never superceeds concerns first for the clients.
The Epilepsy Foundation is an example for all organizations to run by

The Great!

I've personally experienced the results of this organization in...

being involved on a board level

Ways to make it better...

If I had to make changes to this organization, I would...

give them a ton more money

June 8, 2011

more

June 8, 2011

I first got involved with Epilepsy Services Foundation after I moved to central FL and began looking for a local epilepsy organization. ESF was taking part in their "Be a Cupcake! Buy a Cupcake!" fund raising and awareness campaign and I thought I can do that! When I contacted ESF I also got information on an upcoming local awareness walk and joined the planning committee. Since my son was diagnosed with epilepsy in 2007 I've wanted to be a part of something to spread awareness and to be able to share experiences with others who understand firsthand. I consider myself so lucky to have found ESF and am proud and excited to become more involved.

The Great!

I've personally experienced the results of this organization in...

the awareness walk for Purple Day. A young mom with a newly diagnosed toddler and I talked near the end of the event. She was overwhelmed and scared and was so happy she had found out about the walk and that she came and saw wasn't alone. It's a great thing, to have been that scared and overwhelmed mom a few years ago and to now be a part of an organization that raises awareness and education and can support someone else as they start this journey.

Ways to make it better...

If I had to make changes to this organization, I would...

I have no changes to suggest at this time

June 8, 2011

more

June 8, 2011

My employer is a large law firm who has sponsored ESF for years with their various fundraisers. I became involved in volunteering with ESF five or six years ago for their annual Hyde Park Music Series event as well as their Hare Race Experience in Tampa. At each event I would always meet someone who shared their story of having epilepsy and the significant help they received from ESF and how it change their lives. I do not suffer from the disease but felt compelled to continue volunteering and helping with this great cause. As fate would have it my husband and I changed churches four years ago and we began attending Sunday service at the James A. Haley Veteran Hospital and there was Tom (ESF Executive Director) and his wife, Carole. We see Tom on a weekly basis and speak about the ongoing good results that occur for this foundation. Tom's demeanor and personality shines in his perseverance and dedication to this cause. I can only hope that he will continue to receive the resources needed to help so many who suffer from this dreaded illness. I recently attended a scholarship reception for several ESF students who will continue to work in the health field looking for a cure for Epilepsy. One particular family touched my heart where both brother and sister were diagnosed with epilepsy in their teen years and are now faced with the loss of privileges most teens take for granted, i.e., a driver's license, etc. I am blessed with good health . . . . they should be too. Any assistance for ESF is always greatly appreciated.

The Great!

I've personally experienced the results of this organization in...

I am a healthy volunteer without the need for this organization's services

Ways to make it better...

If I had to make changes to this organization, I would...

suggest they consider social networking for better exposure.

September 8, 2009

more

September 8, 2009

It is going on six years that I have been involved with this fine organization. The dedication and determination of its volunteers and board members are second to none. I have seen firsthand what a difference a group of caring people, working on behalf of a caring organization, can make in the community. As a parent of a child with epilepsy, I just want to thank Tom Orth and all the volunteers for their incredible perseverance and encourage anyone looking for education, assistance, or just someone to lean on, to consider ESF.

The Great!

I've personally experienced the results of this organization in...

The Executive Director, Thomas Orth.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Feeling that I have helped make a difference.

The kinds of staff and volunteers that I met were...

One of a kind. The desire to make a difference was there every day.

If this organization had 10 million bucks, it could...

Make a difference in the lives of tens of thousands of people.

When was your last experience with this nonprofit?

2009

August 28, 2009

more

August 28, 2009

I have never worked with a more caring and dedicated group of people who desire only to help individuals affected by epilepsy, whether directly or indirectly through their loved ones. My participation with ESF began by virtue of the fact that my employer, Fowler White Boggs P.A., has been a long time sponsor and supporter of this organization. However, even if I did not have professional ties to ESF, I would gladly volunteer to assist this non-profit, which is comprised of giving and selfless individuals who make this world a better place on a daily basis. Unlike well-known national non-profit organizations, ESF is striving to expand through grass root connections and local/regional awareness with the ultimate goal of providing a wider range of support, assistance, and educational services. In my brief time volunteering with ESF, I have seen the efforts of its volunteers deeply touch the lives of children and adults who are affected one way or the other by epilepsy. Dedicating my time to this organization has been nothing but a pleasure. Please support our cause!

The Great!

I've personally experienced the results of this organization in...

the faces of children who can finally go to summer camp with their peers in a safe, friendly and fun environment.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the friends I have made and the reminder that there is so much good in this world working behind the scenes.

The kinds of staff and volunteers that I met were...

absolutely fabulous.

If this organization had 10 million bucks, it could...

bring greater awareness regarding an affliction that affects millions of Americans but which is misunderstood, often misdiagnosed and regularly stigmatized.

Ways to make it better...

I had more money and time to give.

In my opinion, the biggest challenges facing this organization are...

assisting as many people as possible in the face of insufficient heath care and medical assistance.

When was your last experience with this nonprofit?

2009

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

1. help with some secretarial duties;2. lead a virtual or face-to-face support group for pre-teens, teens, siblings or families affected by epilepsy;3. organize a party for kids with epilepsy. Volunteer