Epilepsy Services Foundation, Inc.
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This is one of the finest groups of people that I have worked with...the passion to help others is paralleled by none. By treating patients with epilepsy, I came to see more activity and assistance for those in need than any other support agency I know. The grass-roots approach of caring, and the cost-effectiveness with the case-management program should be a model applied on a large-scale to PWE to help advance our current outcomes based goals. It is a pleasure and privilege to have worked with this great team of dedicated professionals.
The Great!
I've personally experienced the results of this organization in...
direct observation and participation as volunteer, physician, and board-member help people with epilepsy who would have been lost to health care
Ways to make it better...
If I had to make changes to this organization, I would...
Lobby heavily to obtain necessary financial support,unify providers in the state, develop tighter allegiance with the national organization,and try to instill values of agencies elsewhere to adopt similar principals and programs.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The people and their insatiable desire to help those in need.
The kinds of staff and volunteers that I met were...
Outstanding
If this organization had 10 million bucks, it could...
Change the lives significantly of patients with uncontrolled seizures, channel patients to epileptologists to ensure adequacy of treatment,develop projects that would improve cost-effective patient care through research
Ways to make it better...
Funding allowed for the opportunity to "cure" individuals with surgically remediable uncontrolled seizures.
In my opinion, the biggest challenges facing this organization are...
Financial
One thing I'd also say is that...
I am thankful to have had the opportunity to work with Tom Orth (past executive director for ESWCF) and Michael Finch (current director for SEA) during the many years of my involvement with the agency that helped so many people with epilepsy.
When was your last experience with this nonprofit?
2009
I have been involved with ESF since early 2000; as a volunteer, as a part-time employee, and as a donor. Wishing that eveyone could see the good works that have been done and are still being done by ESF. The children that have been able to attend camp, the college students that have been given scholarship funds, the medical expenses that have been paid, the social activities for clients at holidays, and the education that has been given to the community. What an amazing organization!
The Great!
I've personally experienced the results of this organization in...
the west coast of Florida.
Ways to make it better...
If I had to make changes to this organization, I would...
spend even more time helping families cope with all the medical and psychological problems that come with the epilepsy.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
attending educational opportunities with persons that have been affected by seizure activity.
The kinds of staff and volunteers that I met were...
so dedicated and caring.
If this organization had 10 million bucks, it could...
help more persons get medical treatment.
Ways to make it better...
I had the $10 million bucks mentioned above, because I would use it to help the cause!
In my opinion, the biggest challenges facing this organization are...
lack of funding sources and the fact that epilepsy seems to be one of the best kept secrets in the world!
One thing I'd also say is that...
I am very proud to be associated with a non-profit as well run and well-governed as Epilepsy Services Foundation, Inc.
When was your last experience with this nonprofit?
2009
I am a proud parent of a young adult who has lived with the daily challenges of refractory epilepsy since early childhood. In addition, I have had the honor and privilege to work as an active board member, both local and state wide, with the executive director of Epilepsy Services Foundation, Inc. I have witnessed the good work this organization does. This is a grassroots Foundation created, run, and governed by persons affected by epilepsy; a caring and dedicated organization that has the commitment to improve the lives of all persons served through a variety of quality programs. As a donor and accountable board member,I can state with confidence that the gifts this Foundation receives are returned to the community so that persons affected by epilepsy can receive services that may not otherwise be possible. Linda Landreth-Harris Niceville, Florida
The Great!
I've personally experienced the results of this organization in...
While raising awareness and educating others about epilepsy, ESF raises funds to provide grants to other epilepsy charities to provide medical services to indigent persons with epilepsy and their families, children’s and family camp, college/technical scholarships and grants for funding educational programs that promote new medical initiatives and partnerships.
Ways to make it better...
If I had to make changes to this organization, I would...
Only hope to be able to carry out the excellent work of the current executive director.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Each person involved has a passion and dedication to the mission of the Foundation: to help all persons affected by epilepsy.
The kinds of staff and volunteers that I met were...
Intelligent,vibrant,talented, and caring individuals.
If this organization had 10 million bucks, it could...
Correctly inform people about epilepsy and its consequences for the individual, the family, and the community; to give them a sense of hope as they deal with the day-in-and day-out situations that affect their loved ones and not to fear this diagnosis.
Ways to make it better...
I could replicate this organization in my community !
In my opinion, the biggest challenges facing this organization are...
The tough economic times we are facing; it is our charge to maintain the quality services that ESF has provided since 1973.
One thing I'd also say is that...
I have never served on a Board equal to this Foundation's. ESF is truly a group that works together to maintain community relations and quality services for persons with epilepsy. I am honored to be a small part of this outstanding organziation.
When was your last experience with this nonprofit?
2009
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