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August 13, 2012

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August 13, 2012

Our family's experience with the Epilepsy Services Foundation (ESF) has been a very positive one. They have made it possible for our daughter, Samantha, to attend Camp Boggy Creek for many summers now and it truly has been a life changing event for her. Samantha has been able to interact and see that she is not alone with her disease. She faces challenges but it has opened her eyes to the more difficult challenges that others with epilepsy face. We are so grateful for ESF and specifically Tom Orth and the many opportunities that have come our way including informative seminars, workshops, newsletters, etc.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 21, 2012

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1 previous review
June 9, 2011

My connection to Epilepsy Services Foundation (ESF) began when I was diagnosed with epilepsy at age 5 and was told that I would have to take medication for the rest of my life. I had a mild form of s... more

June 21, 2012

A great non-profit starts with a great leader and Tom Orth, Executive Director is one of the best. Within the short time that I've been on the Board, ESF has jumped leaps and bounds in fundraising and awareness. This could not be done without the dedication of our volunteers, Board members and Tom Orth. The future of ESF is bright and I am grateful to be a part of it!

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

June 9, 2011

My connection to Epilepsy Services Foundation (ESF) began when I was diagnosed with epilepsy at age 5 and was told that I would have to take medication for the rest of my life. I had a mild form of seizures called absence seizures which made me "blank out" or lose consciousness for a few seconds. The seizures were more socially disturbing during my childhood than anything, but I was blessed to have outgrown them by the time I reached my teen years. Before meeting Executive Director of ESF, Tom Orth, I was very skeptical about charitable organizations. Since then, however, I've experienced ESF's dedication to serving those with epilepsy first hand. I started with ESF by volunteering at its annual Live Music Series in 2010 and working a concession stand at a Tampa Bay Buc's football game to raise money. I also participated its H.O.P.E. Training (Helping Other People with Epilepsy) where I learned so much more about the disorder. ESF and Tom Orth gave me hope that there are organizations out that there truly care about serving the community.

The Great!

I've personally experienced the results of this organization in...

seeing the faces of those who have received scholarships from ESF.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes. We have great leadership in place.

June 15, 2012

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June 15, 2012

I have been involved with ESF over the years and helped in several ways, one of which is the Golfing for Kids Classic. I also served on the committee and have volunteered at the Classic and the Hare Racing Experience. While working on these wonderful events, I have grown to love this organization and have seen 1st hand the difference it has made in so many peoples lives. The money helped raise scholarships for Boggy Creek and future educational goals. Our Tampa Bay organization has been a blessing for those effected by Epilepsy.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 12, 2012

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June 12, 2012

To keep this short and sweet I see the work that Tom and Epilepsy Services Foundation accomplish on a daily basis. His passion to help the epilepsy community is infectious and we are lucky to have such a supportive group as Epilepsy Services Foundation right here in the Tampa Bay area. While at an event I was able to see first hand the help that Tom and his group brings to the community - a mother of a newly diagnosed epilepsy patient was nervous and lost with their new challenge. Tom was able to bring together some other families who had already learned to deal with Epilepsy and help this scared mother. She left the meeting feeling empowered and confident that they would be able to meet this challenge head on. It still puts a smile on my face. Good work Tom.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 12, 2012

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June 12, 2012

I have worked with Tom Orth for the past three years helping out at their annual golf tournament. It's heartwarming to know that the money we raise will allow children with epilepsy to attend a summer camp, Camp Boggy Creek, just like other children. We just had our 24th Annual Golfing for Kids tournament and I believe we raised enough to help send 22 kids to camp this summer. We changed our venue this year and I believe we will be bigger and better again next year.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 6, 2012

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June 6, 2012

The Epilepsy Services Foundation is an organization I am willing to contribute to. The have a very small staff and a large number of volunteers who are dedicated to the children and families needing help. The staff and volunteers go out to the community to provide education and awareness programs about epilepsy. They mentor volunteers and encourage them to meet with the newly diagnosed children with epilepsy and their families to give them support and to provide information about epilepsy. They also do fundraising for a number of programs, one of which is the camp program that sends kids with epilepsy to a camp that cares for the needs of kids with a chronic condition. The camp is Camp Boggy Creek.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

June 24, 2011

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June 24, 2011

What a wonderful organization! For over 10 years I have had the pleasure of seeing this Foundations volunteer efforts go to work. My family (3 generations) have been involved in the NAIFA Tampa Golf Classic, Hare Racing Experience and the Ribs for Kid's Fundraising events for many years now. Although none of our immediate family or friends are challanged with this illness, we have nevertheless felt the impact of the work ESF does as expressed in the Boggy Creek camp we have been able to help send kids to every year.

The Great!

I've personally experienced the results of this organization in...

The impact they've made on the chioldren who attend Boggy Creek Camp every Summer.

Ways to make it better...

If I had to make changes to this organization, I would...

none

June 16, 2011

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June 16, 2011

Epilepsy services is the best. I have worked with my professional association, the National Association of Insurance and Financial Advisors for more than 10 years to promote Epilepsy Services. We sponsor a golf tournament to send children with epilepsy to camp. We have raised over $400,000 in our 23 year partnership. I have seen a video of the children at camp and what an experience they have. Over the years we are always aware of the need for them and work to fill in the gap of monies needed.

The Great!

I've personally experienced the results of this organization in...

watching children enjoy camp.

Ways to make it better...

If I had to make changes to this organization, I would...

think of a way to involve more people for the cause.

June 15, 2011

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June 15, 2011

As both a volunteer and a mother of a child with epilepsy, I cannot begin to explain the impact that Epilepsy Services Foundation (ESF) has had on my life. When my husband and I first found out that our daughter was diagnosed with epilepsy at the age of 7 we did not know how to handle the news. Would she be normal and would the seizures have long term effects on her growth, learning process and ability to make friends and interact with other children? I work for a company that donates and volunteers their time to ESF and attended the Hare Racing Experience three years ago. Since that event, I have gained knowledge and information that has helped not only my husband and I but my daughter in understanding and dealing with her epilepsy in a positive and healthy way. I have met various healthcare professionals, counselors and parents through this wonderful organization who have touched my life in ways that some people would not even imagine. My daughter who is now 10 years old has such a positive outlook on her epilepsy and understands that it cannot and will not stop her in her every day life. She has been seizure free for a year and a half now and thanks to the tools and information provided to our family through ESF we are looking forward to the years to come. Please endorse Epilepsy Services Foundation so that other families, like mine, dealing with epilepsy can benefit from the wonderful services that they provide on a daily basis.

Karly A. Thompson

The Great!

I've personally experienced the results of this organization in...

Being able to have the strength, knowledge and positive outlook on epilepsy in order to help my family.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it known to everyone who has been diagnosed with epilepsy just how great of an organization Epilepsy Services Foundation is.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

June 15, 2011

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June 15, 2011

I am a mother of a child with epilepsy and a nurse. I became a board member this year as a way of giving back. My son and our family have personally benefitted from the foundation - he has been able to attend Camp Boggy Creek for the last 8 years. To watch him grow through camp has been the most wonderful thing. This is his last year to attend and he looks forward to going back as a volunteer. I was awarded a scholarship through the foundation to continue my schooling as I work toward my ARNP specializing in pediatric neurology. I am also a member of the HOPE mentoring team - helping the community through teaching and mentoring those in need. I could go on and on about the wonderful things the foundation provides. Let there never be a question that this organization is a vital one in this community. Thank you ESF!

The Great!

I've personally experienced the results of this organization in...

My son has been able to attend camp for 8 years. I have personally received a scholarship for school through ESF.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish I could provide them with more of my time. I think the organization is doing a wonderful job.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

Through Camp Boggy Creek

When was your last experience with this nonprofit?

2011

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
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3 hours of volunteer time for this nonprofit will...

1. help with some secretarial duties;2. lead a virtual or face-to-face support group for pre-teens, teens, siblings or families affected by epilepsy;3. organize a party for kids with epilepsy. Volunteer