EPILEPSY FOUNDATION OF MINNESOTA INC
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In 2003 I suffered a aseizure at age 30. One year later I had another and was diganosed with Epilepsy. Around this time my little girl was having 50 to 100 seizures per day. I knew I wanted to be her voice. So I went to EFMN to get more info and to give back. Thru EFMN's many programs like the Stroll for Epilepsy or Family Fun events we have met people who have gone thru the same thing. And being a Volunteer Educator has allowed me to give back. It has allowed me to break the myths about epilpesy and teach other on the proper techinques about seizure responses. More importantly EFMN has allowed me to be a voice for my little girl.
The Great!
I've personally experienced the results of this organization in...
A Day at the Capital, Shining Star program, Light up the night event, creating inspiring videos for them.
Ways to make it better...
If I had to make changes to this organization, I would...
have more funds for EFMN. So they can hire more staff to supports the many cutting edge ideas that come their way.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Being able to educate people about epilepsy.
The kinds of staff and volunteers that I met were...
awesome and continue to be awesome. They care about every person that makes contact with them
If this organization had 10 million bucks, it could...
Be a leader in the non-profit community. Hire more staff. Creating a podcast show or a cable access show.
Ways to make it better...
There was more staff to support all the ideas...
In my opinion, the biggest challenges facing this organization are...
The economic times we live in and people not truly understanding epilepsy
One thing I'd also say is that...
There is no foundation in the country that works harder than them.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
EFM adheres to an excellent mission statement, is well managed, and has excellent motivated staff. Their programs are well designed and implemented. It has been an honor to serve and participate with EFM.
The Great!
I've personally experienced the results of this organization in...
Amazing testimonies from patients via the creative arts programs.
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How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
The Epilepsy Foundation is a wonderful organization which helps many of my patients on a daily basis. I am a neurologist and specialize in the treatment of epilepsy and other seizure disorders. When patients are diagnosed, getting accurate and useful information is absolutely necessary. The Epilepsy Foundation provides free service to our community, putting family and individuals who are affected by epilepsy in contact with one another so they know they are not alone. They provide numerous programs including Camp Oz a summer camp staffed by nurses and physicians for children with epilepsy. They also have seizure smart programs that go into schools, work places, daycares, ect... to education care providers about epilepsy, what to do in the event of seizure, and get a seizure plan in place for the individuals they serve. They support advocacy for epilepsy patients including A Day At The Capital where volunteers meet with their state representatives and discuss issues affecting epilepsy patients in our communities. These are just a few examples of how the Epilepsy Foundation of Minnesota is improving lives of thousands of Minnesotans on a daily basis.
The Great!
I've personally experienced the results of this organization in...
the reviews and feedback I receive from my patients who appreciate the education, support, and joy this organization brings to them.
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What I've enjoyed the most about my experience with this nonprofit is...
the diversity of experiences and knowledge that each volunteer, program participants, and team member bring to the organization.
The kinds of staff and volunteers that I met were...
joyful and full of life. Many have epilepsy or family members with epilepsy. They are normal people with jobs, hobbies, and passions like everyone else.
If this organization had 10 million bucks, it could...
provide patient assistance for medication cost; provide more non-English information for our diverse population; and better education the community about epilepsy.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2007
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