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December 13, 2012

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December 13, 2012

I attended a wonderful conference put on by the Epilepsy Foundation of AZ that helped me a great deal as the wife of a husband with epilepsy. The speakers were wonderful (several Dr.'s who specialize in epilepsy) and several people who gave moving stories of their struggles with epilepsy. I found out at this conference that Dilantin can cause osteoporos, and I am so thankful for that information and subsequently had my husband tested and he does have osteoporosis. He had numerous falls and fractured his pelvis in one fall. I was so glad to learn this about his medication, and so glad for the support I got at the confetemce! This is a great organization and I hope it gets the recognition and support it deserves for being an advocate for all those living with epilepsy. Thank-you.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2009

December 12, 2012

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December 12, 2012

I was initially acquainted with the Epilepsy Foundation in 2010, when I had my first seizure. Up to that point, I wasn't even sure what epilepsy was, and I had no idea how to deal with it. The Epilepsy Foundation was quite helpful, friendly, and encouraging in getting me back to normal and teaching me more about the condition, as well as how to go about my daily life with it. Since then, I've taken the opportunity to work as a counselor at their summer camp, "Camp Candlelight", as well as volunteer in their office a couple times a week. They are a small organization, yes, and have limited resources to work with in assisting all who need assistance, but they are quite focused on their goals, very willing to help you. If you are interested in volunteering with this organization, I would strongly suggest it; you will always feel as if you are contributing to something larger, and the extra hands are definitely needed here.

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Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

December 12, 2012

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December 12, 2012

The Epilepsy Foundation of Arizona may be a small organization with a tiny office and a short employee list, however, they don't let that limit their reach or impact on the market they serve. If you have questions or need any information regarding epilepsy, they are the best source of information. The Foundation is always happy to help with any issue or project that is taken to them.

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How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

May 10, 2010

The EFAZ has a strong mission but unfortunately does not have the support it needs from the community. In over 20 years in the non-profit sector have I ever experienced a board that was disconnected from the organization. They did not participate in fundraising or assist in recruiting corporate partners or solicit new members. I fear that this organization may not have enough sustainability to make it through 2010.

The Great!

I've personally experienced the results of this organization in...

almost a year and yet it has not grown.

Ways to make it better...

If I had to make changes to this organization, I would...

Revamp the board and review the military program that does not generate any income.

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What I've enjoyed the most about my experience with this nonprofit is...

meeting new people.

The kinds of staff and volunteers that I met were...

helpful yet cynical.

If this organization had 10 million bucks, it could...

Sustain itself for years to come.

Ways to make it better...

Board members were more engaged in the Foundation strategic plan.

In my opinion, the biggest challenges facing this organization are...

Recruiting board members and corporate partners.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers

3 hours of volunteer time for this nonprofit will...

start and lead a Support & Empowerment Group, help prepare or work at our annual summer camp, stuff envelopes, reply to online inquiries, visit Neurology Centers to drop off Foundation materials, visit a patient in an Epilepsy Monitoring Unit to deliver fun items to make their stay more pleasant, give seizure trainings, assist with event planning, fundraise, etc, etc... Volunteer