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Saundra - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Saundra

April 8, 2013

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1 previous review
January 6, 2011

We have been involved with the Epilepsy Association of Central Florida since the inception. There was no place to turn for advice, support and understanding when our daughter was diagnosed in 1960. ... more

April 8, 2013

I have been involved with this organization from the beginning. In the early 60's there was no place to turn for support and little information available. That is when I met Merle Evanchyck who founded the Central Florida movement. It has progressed from her kitchen table to a responsible, dynamic organization that, thanks to our Executive Director, Chuck Carmen, has started far reaching progressive ideas like Epilepsy U, an online place for information and interaction. He also engineered the making of the video,
"Shaken Baby" to educate how dangerous that practice is. With better education we have been able to shed light on this far too common disorder, encourage research, early diagnosis, better treatment, and of course understanding. We have been involved as a family with personal experience but our interest goes beyond personal to understanding that this is a problem that needs to be solved, especially with so many wounded warriors coming home with traumatic brain injury. Peace, Saundra Gray

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

January 6, 2011

We have been involved with the Epilepsy Association of Central Florida since the inception. There was no place to turn for advice, support and understanding when our daughter was diagnosed in 1960. Much has changed since then and information is available, but the person to person support is so important for the patient and family when a diagnosis of epilepsy is delivered.
Epilepsy is a complex problem affecting all aspects of life. EACF is a lifeline for many patients and their loved ones. The organization helps save taxpayer funds by managing care, giving patients an opportunity to find the best possible solutions to their disorder.
We look forward to the day a cure is found but until then we applaud the Epilepsy Association of Central Florida for their fine work.

The Great!

I've personally experienced the results of this organization in...

I have seen many patients helped with their challenges and families given understanding and hope.

Ways to make it better...

If I had to make changes to this organization, I would...

If I could make changes I would expand public knowledge of epilepsy, how common it is, and how more research is needed to find answers to all seizure disorders. Many of our service members will suffer from seizures due to head trauma in the battlefield.

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brevardx

July 2, 2012
1 person found this review helpful

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July 2, 2012
1 person found this review helpful

I was turned down because a lady was having a bad day.I was treated like a crook and a bigot. Melbourne is not a good place to visit. Worst time I ever had.And this is what they say.---The Epilepsy Association of Central Florida, Inc. (EACF) is dedicated to improving the quality of life of persons affected by epilepsy/seizure disorders. EACF identifies, defines, and advocates the needs of persons with epilepsy, as well as planning and implementing strategies to meet those needs. ----- It is a total lie. I have only been shunned and talked bad to.

More feedback...

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2011

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Dtaylordo

October 26, 2011

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October 26, 2011

The Epilepsy Association of Central Florida is a wonderful resource for patients, families, and professionals.

The Great!

I've personally experienced the results of this organization in...

Brevard Epilepsy Walk and on line webinars.

Ways to make it better...

If I had to make changes to this organization, I would...

....

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Brian Doherty

October 19, 2011

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October 19, 2011

The Epilepsy Assoc. of Central Florida is a great organization and is doing great things here in Central Florida. Chuck Carmen works non stop to bring atttention to the organization and does everything in his power to raise money for the organization.

It has been a my pleasure to be associated with this organization and look forward to doing more to help it's cause.

SIncerely,
Brian

The Great!

I've personally experienced the results of this organization in...

I have seen great results, but I do not have Epilepsy so I personally have not experienced the results.

Ways to make it better...

If I had to make changes to this organization, I would...

I believe the people involved starting with Chuck Carmen do all they can to reach and help as many people with Epilepsy as possible.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

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Biking

June 8, 2011

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June 8, 2011

Thank you for all you do in our community. You continue to make a tremendous difference in many lives.

The Great!

I've personally experienced the results of this organization in...

I saw what they did for her.

Ways to make it better...

If I had to make changes to this organization, I would...

Get them more funding.

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cfada

June 8, 2011

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June 8, 2011

For thirty-five years, we have sponsored the AutoClassic Golf Tournament benefitting the Epilepsy Association of Central Florida, During this time, we have seen the EACF grow in professionalism and services provided to their clients and the community. They are continually developing new programs benefiting their clients and are recognized as a leader by not only Epilepsy Associations but other groups and individuals as well. They are caring, knowledgeable and are there to help those in need. We are proud to be associated with this great organization.

The Great!

I've personally experienced the results of this organization in...

seeing the many programs and services they provide. Also have a family member that has benefited from the information they received from the EACF.

Ways to make it better...

If I had to make changes to this organization, I would...

no changes. Only wish more donors gave their time, talent and money to this outstanding organization.

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Elle

June 7, 2011

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June 7, 2011

Central Florida Epilepsy Association provides to the community what most clients have to be without. The professional team is always available to answer any question one might have, they provide current and updated information to the layman and other professional teams,as well as distrubuting easy to read brochures. If someone needs follow up medical care or medications, arrangements are made. If current updated eduation or continuing educaton is needed a Health Educator is provided. This organization continually meets the needs of the community.

Because of CFEA people understand what is happening to them, are compliant with their medications and are getting their follow up examinations. A Big Thanks goes to these dedicated professionals who work very hard to take care of our community.

The Great!

I've personally experienced the results of this organization in...

I have personally experienced the results of this organization and seen what influence and impact it has had on the community for over a decade.

Ways to make it better...

If I had to make changes to this organization, I would...

If I had the opportunity to make any changes to this organization, I would see to it that our Rrepresentatives in the Legislature understood that we need to be fully funded.

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Ardit

June 7, 2011

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June 7, 2011

EACF is a great organization that has left a positive mark for many decades in the community. It is professionally run and financially well administered which means that the funds go where they're needed most to the people with epilepsy in the community and into the educational and prevention programs. The organization has taken on challenges that that weren't being addressed such educating the public on the shaken baby syndrome which increases the chances of epilepsy episodes for that individual. The organization has gone through very positive restructuring and has advanced it's information technology outreach to the 21st century with it's new educational website and social media integration. There can only be better things to come in the future. So please join us in our events and donate and volunteer to make us even stronger.

Proud member of the board.

The Great!

I've personally experienced the results of this organization in...

The people in the community whose lives are better because of EACF

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't change a thing especially we need Chuck, the managing director, to stay with the organization for many years to come as he has been as he has been a superb asset and a force to be reckoned with which puts EACF in a league of its own in terms management best practices.

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

How did you learn about this organization?

School

What is this organization's top short-term priority?

Integration of client services and overall improvement in providing services more efficiently

What is its top priority in the long run?

advanced and thorough eduction and prevention of epilepsy through new technologies

When was your last experience with this nonprofit?

2011

Aaron T. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Aaron T.

May 18, 2011

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Review from Guidestar
May 18, 2011

An excellent organization with caring employees providing necessary and unique services throughout Central Florida. Epilepsy is widespread but relatively unknown. The EACF fights the stigma and supports the sufferers of epilepsy.

The Great!

I've personally experienced the results of this organization in...

Their many fundraising events and support groups.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide it better funding.

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pedneuro

May 17, 2011

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May 17, 2011

The medical care associated with this organization is top notch. EEG's are done in the facility, referrals are made to excellent physicians in the community and the best medical advice is available. I thank them for their involvement with all the epilepsy patients, the schools and the community.

The Great!

I've personally experienced the results of this organization in...

their fund raising walk, it is exceptional.

Ways to make it better...

If I had to make changes to this organization, I would...

do whatever I could to help expand their services to all in need.

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3 hours of volunteer time for this nonprofit will...

We can use volunteers on clinic days to function as a greeter and assistant to our social workers and physician.