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15 Reviews
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November 14, 2013
1 person found this review helpful

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November 14, 2013
1 person found this review helpful

I am eternally grateful to the ERC. This organization has made such a tremendous and positive difference in my life. I have learned so much about endometriosis, and have found great support in my endo journey.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

June 2, 2010

ERC has really been a blessing. I get so much comfort knowing I am not alone! And because I am on FB alot I love that they have their FB page. I can get the most up-to-date relevant info on endo and it is truley appreciated! I have even meet women just like me on the other side of the world!

The Great!

I've personally experienced the results of this organization in...

my own spiritual and mental well being!

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When was your last experience with this nonprofit?

2010

June 2, 2010

ERC has been a huge help in this hard journey. They have provided me information and support that has made me understand just what it is I have been going through for the past 2 years.

The Great!

I've personally experienced the results of this organization in...

In my personal life they have made me feel like I'm not alone. Knowing there is someone out there trying to help people like me makes it easier to get through everyday.

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When was your last experience with this nonprofit?

2010

June 2, 2010

ERC is a really great resource for info on endo. I was diagnosed with Stage 4 after 6 years of miscarriages. Since then, I've been involved in research thanks to ERC. Otherwise, I'd have never known about it. It's a great community as well as information resource!

The Great!

I've personally experienced the results of this organization in...

my personal life. I participated in a research opportunity devoted to the genetic link associated with endometriosis.

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When was your last experience with this nonprofit?

2010

May 15, 2010

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May 15, 2010

I was recently diagnosed after many years of looking towards doctors to figure something out, something more than just putting me on b/c and telling me it was "normal" or, my favorite, "it's all in your head." Now that I have been diagnosed, I am fighting for relief. My 1st doctor gave up on me after 2 shots of lupron (did not laser the endo off during surgery) didn't help my pain, and now refuses to treat me as she has "cured" my endo and the pain is caused by something else (colon/bowel) and that the extreme pain during intimate acts with my husband is normal and after I loosen up and get used to it the pain will cease (not the case.) After that appointment, I was in disbelief. I felt like I was starting at square one again, but this time I KNEW I have endo. So I went looking for support, someone who might know a bit more than I do and ask for advice. I must say, the ladies of the ERC and all the ladies involved are so kindhearted and welcoming. They are all so caring and supportive, it made me feel like I still have hope. I still have a chance of finding some relief-even if only temporary. It feels like such a bond - like an unspoken family or sisterhood. I finally feel as if I belong - I'm not crazy and people do understand me. The ERC has restored my hope and faith that one day, I may be able to live a semi-normal life and the ladies are pushing me to look this disease head on, not let it defeat me. This I will not do. I have been defeated long enough, and now I am going to take life by the horns and stare Endo right in the face and let it know that it will NOT win. Thank you for all you do, everything you do is such a huge help to all of the ladies fighting this disease daily. I can only hope that soon enough the world will begin to learn more and more about this crippling disease so that they can begin to understand even only a tiny bit about Endo and those of us living with it.

The Great!

I've personally experienced the results of this organization in...

Feeling empowered again. Feeling like I have somewhere I belong and I'm no longer an outsider. There are women out there that actually do understand what I am going through and it isn't all in my head.

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What I've enjoyed the most about my experience with this nonprofit is...

having a sense that I belong, that other women actually understand what I am going through.

The kinds of staff and volunteers that I met were...

I have not met any yet. Just recently found the group.

If this organization had 10 million bucks, it could...

h

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

May 14, 2010

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May 14, 2010

The ERC is so helpful. When I was diagnosed with Endometriosis earlier this year I was lost and didn't know anything about the disease. The ERC provided wonderful information for me so I know what I am dealing with now.

Photos

The Great!

I've personally experienced the results of this organization in...

Getting knowledge/information on Endometriosis when I was diagnosed.

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If this organization had 10 million bucks, it could...

change the world of endometriosis. Allow more women to have knowledge aobut the disease. And be closer to a possible cure.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 14, 2010

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May 14, 2010

The ERC has been an important part of my journey towards coping with endometriosis. Soon after diagnosis, I found their website and benefitted greatly from the factual, current information shared there. Later I discovered their Facebook page, which has been a constant source of updates on new studies and social discussion of the disease, but also a welcome and comforting source of support from the comments and discussion of so many women who share and understand what I am going through. The ERC encourages open discussion and advocates for improved social understanding of and research regarding the painful condition endometriosis.

The Great!

I've personally experienced the results of this organization in...

learning to understand, cope with, and educate others about endometriosis.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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