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15 Reviews
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July 2, 2013

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July 2, 2013

Be careful. At first glance I noticed nothing wrong. As time has gone by I have noticed that they tell women scary things such as "there are no risks to excision surgery" This is simply not true. There are risks to any surgery. There are always risks to anesthesia. This seems to be part of some hidden agenda to get everyone to go have excision surgery with one of the doctors that they recommend. I found this reckless and irresponsible. Not every individual is a good candidate for surgery. There also appears to be many conflicts of interest between members of the ERC and the doctors they recommend. The ERC often makes negative and rude remarks about physicians that are not part of their associations. This does not see warranted or fair.

Ways to make it better...

If I had to make changes to this organization, I would...

They should present all the information out there to young women in an unbiased medium. Currently there is nothing set instone about endometriosis. I would also make programs for just support not just for education.

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How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

June 2, 2010

ERC is making a difference in my life. They are helping me get the right information to find the right doctors that will help improve the quality of my life.

The Great!

I've personally experienced the results of this organization in...

I am now more informed

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When was your last experience with this nonprofit?

2010

June 2, 2010

I am grateful for the ERC being on facebook and providing me w/ up to date information on what is going on in the field! Also, it is like a family of support!

The Great!

I've personally experienced the results of this organization in...

my experiences with others

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When was your last experience with this nonprofit?

2010

June 2, 2010

The ERC has been an amazing help in my struggle with endometriosis. They have so much information and support. They are such a wonderful group that helps so many women.

The Great!

I've personally experienced the results of this organization in...

Getting information and gaining knowledge about my disease and how to cope and find treatment.

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When was your last experience with this nonprofit?

2010

June 2, 2010

The ERC has helped me wonderfully with basic information, self help, support and latest research regarding endometriosis, a crippling disease. It allows me to stay in contact with other sufferers and keep up to date with the latest information and medical progress.

The Great!

I've personally experienced the results of this organization in...

Giving me information that I could pass onto my doctors and research possibilities for treatments and management strategies.

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If this organization had 10 million bucks, it could...

Help towards more research into a disease that affects up to 15% of all women, and can be utterly crippling (I know - I am bed bound, can only move with assistance, need 24 hour care, can only leave the house in a wheelchair despite high doses of morphine and similar strong painkillers).

When was your last experience with this nonprofit?

2010

May 13, 2010

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May 13, 2010

The ERC has been an absolute godsend for me. I was diagnosed with endometriosis early this year after suffering symptoms for an extended period of time. I felt so confused and alone and had no idea what my options were. The ERC provides support and extensive information which has allowed me to educate myself and make informed decisions about my care, as well as helping me find others dealing with the same problems I have to share experiences and emotions. I don't feel there is anyone else out there who does this as effectively and selflessly as the ERC

The Great!

I've personally experienced the results of this organization in...

Helping me find a highly qualified doctor to treat my endo. Informing me of the side effects of drugs my first doctor had suggested for treatment of my endometriosis. Keeping me up to date on the latest research and media on endo. Connections made...

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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