Endometriosis Research Center and Women's Hospital, Inc.
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The ERC has been an important part of my journey towards coping with endometriosis. Soon after diagnosis, I found their website and benefitted greatly from the factual, current information shared there. Later I discovered their Facebook page, which has been a constant source of updates on new studies and social discussion of the disease, but also a welcome and comforting source of support from the comments and discussion of so many women who share and understand what I am going through. The ERC encourages open discussion and advocates for improved social understanding of and research regarding the painful condition endometriosis.
The Great!
I've personally experienced the results of this organization in...
learning to understand, cope with, and educate others about endometriosis.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
I was diagnosed with endometriosis in 2000. Before then, I knew that something was wrong but didn't know why I was in such pain. This organization answered all of my questions before each one of my surgeries (January 2000, August 2002, and July 2008). They helped me understand endometriosis better by having important information on their website and in print. I was always afraid to speak in public and still am at times. They gave me my voice to help others with this disease. I spoke in front of the Lincoln Memorial in 2001 because of them at an National Endo walk. I opened up to family and friends about my disease and what it has done to me. I would have never done that before. I participated in every candle fundraiser that I could since my official diagnosis because I feel that this organization definitely could use the help. To this day, ERC have continued to be there for me answering my questions, lending a shoulder (be it a long distance one) to cry on, be a sounding board, be supportive of my husband as I go down this road of endometriosis, and more. I don't know where I (or my family) would be without them.
The Great!
I've personally experienced the results of this organization in...
in my daily outlook on life. This organization taught me to stand up and stay strong even when faced with horrible news. They educated me on endometriosis so that I don't have to be a victim of this disease but somebody who takes action.
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What I've enjoyed the most about my experience with this nonprofit is...
the friendships that I have struck up because of this organization. They have been there when we adopted our 3 children and have been extremely supportive through everything that I have been going through.
The kinds of staff and volunteers that I met were...
very kind, helpful, and if they didn't know the information immediately they would get back to me asap.
If this organization had 10 million bucks, it could...
change the world of endometriosis. Help millions of women here by empowering themselves more, research a cause/cure for this disease, and more.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
The ERC has been an absolute godsend for me. I was diagnosed with endometriosis early this year after suffering symptoms for an extended period of time. I felt so confused and alone and had no idea what my options were. The ERC provides support and extensive information which has allowed me to educate myself and make informed decisions about my care, as well as helping me find others dealing with the same problems I have to share experiences and emotions. I don't feel there is anyone else out there who does this as effectively and selflessly as the ERC
The Great!
I've personally experienced the results of this organization in...
Helping me find a highly qualified doctor to treat my endo. Informing me of the side effects of drugs my first doctor had suggested for treatment of my endometriosis. Keeping me up to date on the latest research and media on endo. Connections made...
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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