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15 Reviews
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May 15, 2010

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May 15, 2010

I was recently diagnosed after many years of looking towards doctors to figure something out, something more than just putting me on b/c and telling me it was "normal" or, my favorite, "it's all in your head." Now that I have been diagnosed, I am fighting for relief. My 1st doctor gave up on me after 2 shots of lupron (did not laser the endo off during surgery) didn't help my pain, and now refuses to treat me as she has "cured" my endo and the pain is caused by something else (colon/bowel) and that the extreme pain during intimate acts with my husband is normal and after I loosen up and get used to it the pain will cease (not the case.) After that appointment, I was in disbelief. I felt like I was starting at square one again, but this time I KNEW I have endo. So I went looking for support, someone who might know a bit more than I do and ask for advice. I must say, the ladies of the ERC and all the ladies involved are so kindhearted and welcoming. They are all so caring and supportive, it made me feel like I still have hope. I still have a chance of finding some relief-even if only temporary. It feels like such a bond - like an unspoken family or sisterhood. I finally feel as if I belong - I'm not crazy and people do understand me. The ERC has restored my hope and faith that one day, I may be able to live a semi-normal life and the ladies are pushing me to look this disease head on, not let it defeat me. This I will not do. I have been defeated long enough, and now I am going to take life by the horns and stare Endo right in the face and let it know that it will NOT win. Thank you for all you do, everything you do is such a huge help to all of the ladies fighting this disease daily. I can only hope that soon enough the world will begin to learn more and more about this crippling disease so that they can begin to understand even only a tiny bit about Endo and those of us living with it.

The Great!

I've personally experienced the results of this organization in...

Feeling empowered again. Feeling like I have somewhere I belong and I'm no longer an outsider. There are women out there that actually do understand what I am going through and it isn't all in my head.

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What I've enjoyed the most about my experience with this nonprofit is...

having a sense that I belong, that other women actually understand what I am going through.

The kinds of staff and volunteers that I met were...

I have not met any yet. Just recently found the group.

If this organization had 10 million bucks, it could...

h

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

May 14, 2010

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May 14, 2010

The ERC is so helpful. When I was diagnosed with Endometriosis earlier this year I was lost and didn't know anything about the disease. The ERC provided wonderful information for me so I know what I am dealing with now.

Photos

The Great!

I've personally experienced the results of this organization in...

Getting knowledge/information on Endometriosis when I was diagnosed.

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If this organization had 10 million bucks, it could...

change the world of endometriosis. Allow more women to have knowledge aobut the disease. And be closer to a possible cure.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 14, 2010

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May 14, 2010

The ERC has been an important part of my journey towards coping with endometriosis. Soon after diagnosis, I found their website and benefitted greatly from the factual, current information shared there. Later I discovered their Facebook page, which has been a constant source of updates on new studies and social discussion of the disease, but also a welcome and comforting source of support from the comments and discussion of so many women who share and understand what I am going through. The ERC encourages open discussion and advocates for improved social understanding of and research regarding the painful condition endometriosis.

The Great!

I've personally experienced the results of this organization in...

learning to understand, cope with, and educate others about endometriosis.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 13, 2010

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May 13, 2010

I was diagnosed with endometriosis in 2000. Before then, I knew that something was wrong but didn't know why I was in such pain. This organization answered all of my questions before each one of my surgeries (January 2000, August 2002, and July 2008). They helped me understand endometriosis better by having important information on their website and in print. I was always afraid to speak in public and still am at times. They gave me my voice to help others with this disease. I spoke in front of the Lincoln Memorial in 2001 because of them at an National Endo walk. I opened up to family and friends about my disease and what it has done to me. I would have never done that before. I participated in every candle fundraiser that I could since my official diagnosis because I feel that this organization definitely could use the help. To this day, ERC have continued to be there for me answering my questions, lending a shoulder (be it a long distance one) to cry on, be a sounding board, be supportive of my husband as I go down this road of endometriosis, and more. I don't know where I (or my family) would be without them.

The Great!

I've personally experienced the results of this organization in...

in my daily outlook on life. This organization taught me to stand up and stay strong even when faced with horrible news. They educated me on endometriosis so that I don't have to be a victim of this disease but somebody who takes action.

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What I've enjoyed the most about my experience with this nonprofit is...

the friendships that I have struck up because of this organization. They have been there when we adopted our 3 children and have been extremely supportive through everything that I have been going through.

The kinds of staff and volunteers that I met were...

very kind, helpful, and if they didn't know the information immediately they would get back to me asap.

If this organization had 10 million bucks, it could...

change the world of endometriosis. Help millions of women here by empowering themselves more, research a cause/cure for this disease, and more.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

May 13, 2010

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May 13, 2010

The ERC has been an absolute godsend for me. I was diagnosed with endometriosis early this year after suffering symptoms for an extended period of time. I felt so confused and alone and had no idea what my options were. The ERC provides support and extensive information which has allowed me to educate myself and make informed decisions about my care, as well as helping me find others dealing with the same problems I have to share experiences and emotions. I don't feel there is anyone else out there who does this as effectively and selflessly as the ERC

The Great!

I've personally experienced the results of this organization in...

Helping me find a highly qualified doctor to treat my endo. Informing me of the side effects of drugs my first doctor had suggested for treatment of my endometriosis. Keeping me up to date on the latest research and media on endo. Connections made...

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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