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15 Reviews
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November 14, 2013
1 person found this review helpful

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November 14, 2013
1 person found this review helpful

I am eternally grateful to the ERC. This organization has made such a tremendous and positive difference in my life. I have learned so much about endometriosis, and have found great support in my endo journey.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 2, 2013

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July 2, 2013

Be careful. At first glance I noticed nothing wrong. As time has gone by I have noticed that they tell women scary things such as "there are no risks to excision surgery" This is simply not true. There are risks to any surgery. There are always risks to anesthesia. This seems to be part of some hidden agenda to get everyone to go have excision surgery with one of the doctors that they recommend. I found this reckless and irresponsible. Not every individual is a good candidate for surgery. There also appears to be many conflicts of interest between members of the ERC and the doctors they recommend. The ERC often makes negative and rude remarks about physicians that are not part of their associations. This does not see warranted or fair.

Ways to make it better...

If I had to make changes to this organization, I would...

They should present all the information out there to young women in an unbiased medium. Currently there is nothing set instone about endometriosis. I would also make programs for just support not just for education.

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How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

June 2, 2010
1 person found this review helpful

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Review from Guidestar
June 2, 2010
1 person found this review helpful

I have Endometriosis and thanks to the ERC I am helping others who have it by setting up a fundraiser. I am also doing an awareness gettogether. The ERC has helped me get information that I need. Hallmark doesn't make a card to describe how I feel. I am thankful and greatful that the ERC is here to help..

The Great!

I've personally experienced the results of this organization in...

I take part in the message boards and h=they help me day by day.

Ways to make it better...

If I had to make changes to this organization, I would...

change nothing. Everything they do is for others.

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What I've enjoyed the most about my experience with this nonprofit is...

They are helping people become aware, people not feel alone, and helping other to spread awareness.

The kinds of staff and volunteers that I met were...

very helpful.

If this organization had 10 million bucks, it could...

give more to research endometriosis so that one day people don't have to live in pain.

Ways to make it better...

nothing. evrything was wonderful.

In my opinion, the biggest challenges facing this organization are...

getting the knowledge out there for people to know. BUt this is something every organization faces.

One thing I'd also say is that...

the ERC is one of the best things I have in my life..

When was your last experience with this nonprofit?

2010

June 2, 2010

ERC has really been a blessing. I get so much comfort knowing I am not alone! And because I am on FB alot I love that they have their FB page. I can get the most up-to-date relevant info on endo and it is truley appreciated! I have even meet women just like me on the other side of the world!

The Great!

I've personally experienced the results of this organization in...

my own spiritual and mental well being!

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When was your last experience with this nonprofit?

2010

June 2, 2010

ERC is making a difference in my life. They are helping me get the right information to find the right doctors that will help improve the quality of my life.

The Great!

I've personally experienced the results of this organization in...

I am now more informed

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When was your last experience with this nonprofit?

2010

June 2, 2010

I am grateful for the ERC being on facebook and providing me w/ up to date information on what is going on in the field! Also, it is like a family of support!

The Great!

I've personally experienced the results of this organization in...

my experiences with others

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When was your last experience with this nonprofit?

2010

June 2, 2010

ERC has been a huge help in this hard journey. They have provided me information and support that has made me understand just what it is I have been going through for the past 2 years.

The Great!

I've personally experienced the results of this organization in...

In my personal life they have made me feel like I'm not alone. Knowing there is someone out there trying to help people like me makes it easier to get through everyday.

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When was your last experience with this nonprofit?

2010

June 2, 2010

The ERC has been an amazing help in my struggle with endometriosis. They have so much information and support. They are such a wonderful group that helps so many women.

The Great!

I've personally experienced the results of this organization in...

Getting information and gaining knowledge about my disease and how to cope and find treatment.

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When was your last experience with this nonprofit?

2010

June 2, 2010

The ERC has helped me wonderfully with basic information, self help, support and latest research regarding endometriosis, a crippling disease. It allows me to stay in contact with other sufferers and keep up to date with the latest information and medical progress.

The Great!

I've personally experienced the results of this organization in...

Giving me information that I could pass onto my doctors and research possibilities for treatments and management strategies.

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If this organization had 10 million bucks, it could...

Help towards more research into a disease that affects up to 15% of all women, and can be utterly crippling (I know - I am bed bound, can only move with assistance, need 24 hour care, can only leave the house in a wheelchair despite high doses of morphine and similar strong painkillers).

When was your last experience with this nonprofit?

2010

June 2, 2010

ERC is a really great resource for info on endo. I was diagnosed with Stage 4 after 6 years of miscarriages. Since then, I've been involved in research thanks to ERC. Otherwise, I'd have never known about it. It's a great community as well as information resource!

The Great!

I've personally experienced the results of this organization in...

my personal life. I participated in a research opportunity devoted to the genetic link associated with endometriosis.

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When was your last experience with this nonprofit?

2010

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