Endometriosis Research Center and Women's Hospital, Inc.
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June 2, 2010
I have Endometriosis and thanks to the ERC I am helping others who have it by setting up a fundraiser. I am also doing an awareness gettogether. The ERC has helped me get information that I need. Hallmark doesn't make a card to describe how I feel. I am thankful and greatful that the ERC is here to help..
The Great!
I've personally experienced the results of this organization in...
I take part in the message boards and h=they help me day by day.
Ways to make it better...
If I had to make changes to this organization, I would...
change nothing. Everything they do is for others.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
They are helping people become aware, people not feel alone, and helping other to spread awareness.
The kinds of staff and volunteers that I met were...
very helpful.
If this organization had 10 million bucks, it could...
give more to research endometriosis so that one day people don't have to live in pain.
Ways to make it better...
nothing. evrything was wonderful.
In my opinion, the biggest challenges facing this organization are...
getting the knowledge out there for people to know. BUt this is something every organization faces.
One thing I'd also say is that...
the ERC is one of the best things I have in my life..
When was your last experience with this nonprofit?
2010
June 2, 2010
ERC has really been a blessing. I get so much comfort knowing I am not alone! And because I am on FB alot I love that they have their FB page. I can get the most up-to-date relevant info on endo and it is truley appreciated! I have even meet women just like me on the other side of the world!
The Great!
I've personally experienced the results of this organization in...
my own spiritual and mental well being!
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When was your last experience with this nonprofit?
2010
June 2, 2010
ERC is making a difference in my life. They are helping me get the right information to find the right doctors that will help improve the quality of my life.
The Great!
I've personally experienced the results of this organization in...
I am now more informed
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When was your last experience with this nonprofit?
2010
June 2, 2010
I am grateful for the ERC being on facebook and providing me w/ up to date information on what is going on in the field! Also, it is like a family of support!
The Great!
I've personally experienced the results of this organization in...
my experiences with others
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When was your last experience with this nonprofit?
2010
June 2, 2010
ERC has been a huge help in this hard journey. They have provided me information and support that has made me understand just what it is I have been going through for the past 2 years.
The Great!
I've personally experienced the results of this organization in...
In my personal life they have made me feel like I'm not alone. Knowing there is someone out there trying to help people like me makes it easier to get through everyday.
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When was your last experience with this nonprofit?
2010
June 2, 2010
The ERC has been an amazing help in my struggle with endometriosis. They have so much information and support. They are such a wonderful group that helps so many women.
The Great!
I've personally experienced the results of this organization in...
Getting information and gaining knowledge about my disease and how to cope and find treatment.
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When was your last experience with this nonprofit?
2010
June 2, 2010
The ERC has helped me wonderfully with basic information, self help, support and latest research regarding endometriosis, a crippling disease. It allows me to stay in contact with other sufferers and keep up to date with the latest information and medical progress.
The Great!
I've personally experienced the results of this organization in...
Giving me information that I could pass onto my doctors and research possibilities for treatments and management strategies.
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If this organization had 10 million bucks, it could...
Help towards more research into a disease that affects up to 15% of all women, and can be utterly crippling (I know - I am bed bound, can only move with assistance, need 24 hour care, can only leave the house in a wheelchair despite high doses of morphine and similar strong painkillers).
When was your last experience with this nonprofit?
2010
June 2, 2010
ERC is a really great resource for info on endo. I was diagnosed with Stage 4 after 6 years of miscarriages. Since then, I've been involved in research thanks to ERC. Otherwise, I'd have never known about it. It's a great community as well as information resource!
The Great!
I've personally experienced the results of this organization in...
my personal life. I participated in a research opportunity devoted to the genetic link associated with endometriosis.
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When was your last experience with this nonprofit?
2010
May 15, 2010
I was recently diagnosed after many years of looking towards doctors to figure something out, something more than just putting me on b/c and telling me it was "normal" or, my favorite, "it's all in your head." Now that I have been diagnosed, I am fighting for relief. My 1st doctor gave up on me after 2 shots of lupron (did not laser the endo off during surgery) didn't help my pain, and now refuses to treat me as she has "cured" my endo and the pain is caused by something else (colon/bowel) and that the extreme pain during intimate acts with my husband is normal and after I loosen up and get used to it the pain will cease (not the case.) After that appointment, I was in disbelief. I felt like I was starting at square one again, but this time I KNEW I have endo. So I went looking for support, someone who might know a bit more than I do and ask for advice. I must say, the ladies of the ERC and all the ladies involved are so kindhearted and welcoming. They are all so caring and supportive, it made me feel like I still have hope. I still have a chance of finding some relief-even if only temporary. It feels like such a bond - like an unspoken family or sisterhood. I finally feel as if I belong - I'm not crazy and people do understand me. The ERC has restored my hope and faith that one day, I may be able to live a semi-normal life and the ladies are pushing me to look this disease head on, not let it defeat me. This I will not do. I have been defeated long enough, and now I am going to take life by the horns and stare Endo right in the face and let it know that it will NOT win. Thank you for all you do, everything you do is such a huge help to all of the ladies fighting this disease daily. I can only hope that soon enough the world will begin to learn more and more about this crippling disease so that they can begin to understand even only a tiny bit about Endo and those of us living with it.
The Great!
I've personally experienced the results of this organization in...
Feeling empowered again. Feeling like I have somewhere I belong and I'm no longer an outsider. There are women out there that actually do understand what I am going through and it isn't all in my head.
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What I've enjoyed the most about my experience with this nonprofit is...
having a sense that I belong, that other women actually understand what I am going through.
The kinds of staff and volunteers that I met were...
I have not met any yet. Just recently found the group.
If this organization had 10 million bucks, it could...
h
How frequently have you been involved with the organization?
One time
When was your last experience with this nonprofit?
2010
May 14, 2010
The ERC is so helpful. When I was diagnosed with Endometriosis earlier this year I was lost and didn't know anything about the disease. The ERC provided wonderful information for me so I know what I am dealing with now.
Photos
The Great!
I've personally experienced the results of this organization in...
Getting knowledge/information on Endometriosis when I was diagnosed.
More feedback...
If this organization had 10 million bucks, it could...
change the world of endometriosis. Allow more women to have knowledge aobut the disease. And be closer to a possible cure.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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