Rating: 4.86 stars 7 7 reviews
10 Schalks Crossing Rd. Suite 501-283 Plainsboro NJ 08536 USA
At EDSers United, our mission is to generate international awareness, education, and support for Ehlers-Danlos Syndrome by providing resources, databases of information, inspiration, and counseling. In addition, we promote local community networks that encourage awareness, support, sharing of information, and self-preservation globally. We represent and advocate on behalf of individuals afflicted with Ehlers-Danlos Syndrome (EDS), and other related connective tissue disorders world-wide working to establish a future where a cure for EDS exists. By joining our voices, we create a powerful force for recognition, encouraging awareness. We strive to educate the world about Ehlers-Danlos Syndrome patient's need for treatment options and an eventual cure.
We have spent a lot of time this past year assisting local awareness efforts throughout the United States in addition to developing a Research Library for health care professionals to reference for treatment purposes.
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Reviews for Edsers United
My daughter was born with EDS. She was diagnosed as a child but there wasn't much support back then for this condition. For a while, before EDSers United, I lost hope for any patient support as the organizations that claim to be for EDS really didn't do much for our community. This year, EDSers United's work really touched my family. For the first time in 29 years, my daughter received one on one support counseling for EDS. She found true friends and support in the volunteers at EDSers United. She also received two FREE EDS Awareness Packages via mail from EDSers United which helped us to better explain her condition to family, friends, and her doctors! I cannot thank EDSers United enough for all they have done and continue to do and my family and I will continue to donate to this organization. I can see our donations go directly to the EDS community and I am honored to be a Zebra Sponsor!
If I had to make changes to this organization, I would...
I would change the shop so that I can input my own dollar amount to be donated. Right now I have to choose from given amounts what I would like to donate. I know I can mail a check for the amount I want to donate but its more convenient to donate online.
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