EDSers United

Rating: 4.86 stars   7 reviews

Issues:

Location: 10 Schalks Crossing Rd. Suite 501-283 Plainsboro NJ 08536 USA

Mission: At EDSers United, our mission is to generate international awareness, education, and support for Ehlers-Danlos Syndrome by providing resources, databases of information, inspiration, and counseling. In addition, we promote local community networks that encourage awareness, support, sharing of information, and self-preservation globally. We represent and advocate on behalf of individuals afflicted with Ehlers-Danlos Syndrome (EDS), and other related connective tissue disorders world-wide working to establish a future where a cure for EDS exists. By joining our voices, we create a powerful force for recognition, encouraging awareness. We strive to educate the world about Ehlers-Danlos Syndrome patient's need for treatment options and an eventual cure.
Results: We have spent a lot of time this past year assisting local awareness efforts throughout the United States in addition to developing a Research Library for health care professionals to reference for treatment purposes.
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EIN 45-2918197
201-702-4075
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Community Reviews

Rating: 5 stars  

Our son was diagnosed in July with EDS/ hypermobility type 3. This group has been very helpful in getting the information we needed to understand this disease. They work hard in getting this information out there. Trying to raise money for research, with is much needed!!! They are an amazing organization!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

EDSers United has done so much for my family and the EDS Community. I am so grateful to their team and for all of the free awareness materials they sent me to give out to my doctors, family, friends, and community businesses. EDSers United obviously cares about our community and for raising awareness for EDS. I am proud to be called one of their volunteers.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I personally do not have Ehlors-Danlos Syndrome, however my wife does. This organization has done a tremendous job in assisting me with better understanding not only my wife, but what she goes through on a daily basis. Through their resources we were able to educate everyone around us including our doctors. Thank you EDSers United for all of your hard work and dedication.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?