Eds Today ~ Ehlers-Danlos Advocates

Rating: 5 stars   24 reviews

Nonprofit Issues:

Health, Cancer


PO Box 1382 Mays Landing NJ 08330 USA


Ehler-Danlos Syndrome (EDS) is a genetic connective tissue (collagen) disorder that causes debilitating pain, joint dislocations, arterial/organ ruptures/dissections and has resulted in numerous deaths from a lack of knowledge. EDS TODAY was born in 2000, out of dire necessity to help those with EDS acquire the latest, most up-to-date medical information and contacts in one resource guide, a newsletter. Which is written for, by and about people with EDS, each page is filled with many voices from around the world, sharing their experience, advice, and support for one another. In addition to this newsletter, we have worked tirelessly over the last ten years on outreach, advocacy, support and helping to raise funds for ongoing scientific EDS research. We are fully aware that the ONLY way to improve the future and the quality of life for the EDS patient is through RESEARCH. We are committed to this goal! EDS Today is proud to say that we continue to be staffed 100% by dedicated volunteers.

2013 Top-Rated Nonprofit
Write a Review
Invite Reviews Share This Nonprofit

More Info


Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on

Reviews for Eds Today ~ Ehlers-Danlos Advocates

Get discovered. Invite people to share their experiences about this nonprofit!