EDS Today is a wonderful organization that helps raise awareness and information about Ehlers-Danlos Syndrome. The one thing that sets EDS Today apart from other charities is its human connection. They are there with you through it all and truly "walk" with you.....and that makes all the difference. Susan Ginley
Sue, Thank you so very much for taking the time to post this kind, touching message. We deeply appreciate it. Thanks again!!!
EDS Today is wonderful source for patients that suffer from Ehlers Danlos Syndrome.
Thank you so very much for taking the time to post this kind message. We deeply appreciate it. Thanks again!!!
My daughter was diagnosed with Vascular Ehlers-Danlos Syndrome at age 6. I had so many questions and was so scared and EDS today gave me the support I needed as a parent. This is where I turn with questions and concerns about my daughter's health.
Amy, Thank you so very much for taking the time to post this kind message. We deeply appreciate it. We're thankful that we were able to be here for you and your daughter. You're in our ♥ Thanks again!!!
This organization has done a tremendous amount to help me and my family deal with a crippling disease. I am truly grateful for all they do.
I remember when I first found the EDS site and was so lost with life.i had just lost my rob and had no clue how I could manage. I didn't know what to do then I met all of you. You showed me a new outlook on my life. And how to become a stronger fighter. I've never met such a wonderful caring strong group of people.i now call my family. I'm so happy that GOD helped me in finding all of you way he did. Amazing how our life's work. I went from being a lost soul to a stronger person because of you ,my eds family I love you linda Lenz and Cathy Bowen
I cant say enough about EDS Today and the help that we have received from them. I only wished they had been around when my daughter was born. Thank you for all your help and advice.
All the ladies on the board of directors are wonderful, compassionate and so helpful. Especially Cathy she has gone above and beyond to educate me on all aspects of EDS, so that I could advocate for my child. I am forever grateful. This knowledge that I obtained from her will help to save my child's life.
Review from Guidestar