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October 21, 2013

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October 21, 2013

EDS Today is a wonderful organization that helps raise awareness and information about Ehlers-Danlos Syndrome. The one thing that sets EDS Today apart from other charities is its human connection. They are there with you through it all and truly "walk" with you.....and that makes all the difference. Susan Ginley

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 21, 2013

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October 21, 2013

EDS Today is wonderful source for patients that suffer from Ehlers Danlos Syndrome.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not change a thing...

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 20, 2013

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October 20, 2013

My daughter was diagnosed with Vascular Ehlers-Danlos Syndrome at age 6. I had so many questions and was so scared and EDS today gave me the support I needed as a parent. This is where I turn with questions and concerns about my daughter's health.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes! I would just want more people to be aware of this great organization.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 20, 2013

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October 20, 2013

This organization has helped me cope with the unexpected death of my 13 year old son. We did not learn that it was from ehlers - danlos until after the autopsy. Having this organization available helped me to understand this syndrome and be an avenue to one day help others.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 20, 2013

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October 20, 2013

This organization has done a tremendous amount to help me and my family deal with a crippling disease. I am truly grateful for all they do.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 11, 2013

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October 11, 2013

I remember when I first found the EDS site and was so lost with life.i had just lost my rob and had no clue how I could manage. I didn't know what to do then I met all of you. You showed me a new outlook on my life. And how to become a stronger fighter. I've never met such a wonderful caring strong group of people.i now call my family. I'm so happy that GOD helped me in finding all of you way he did. Amazing how our life's work. I went from being a lost soul to a stronger person because of you ,my eds family I love you linda Lenz and Cathy Bowen

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

September 7, 2013

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September 7, 2013

I cant say enough about EDS Today and the help that we have received from them. I only wished they had been around when my daughter was born. Thank you for all your help and advice.

Ways to make it better...

If I had to make changes to this organization, I would...

Not change a thing.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

August 12, 2013

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Review from Guidestar
August 12, 2013

All the ladies on the board of directors are wonderful, compassionate and so helpful. Especially Cathy she has gone above and beyond to educate me on all aspects of EDS, so that I could advocate for my child. I am forever grateful. This knowledge that I obtained from her will help to save my child's life.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2009

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