Dravet Syndrome Foundation, Inc.
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April 24, 2013
The Dravet Foundation is an invaluable resource for my family. My son was diagnosed in November 2012 with Dravet Syndrome. The foundation has provided us with information on getting insurance coverage for my son's medications. They helped us get in touch with a doctor who specializes in Dravet Syndrome. Most importantly, they have provided support to us as we learn to cope with our son's diagnosis.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2013
November 5, 2012
the dravet syndrome foundation has helped so much with our family. Our daughter daignosed at age 1.5 with dravet syndrome. we were a mess and had no where to turn. We found this foundation and felt we had a family and support that we could never imagine. In most cases people feel that have to go thru things alone and when we found this foundation we were no longer alone. they helped up with sings symptoms and other support to help us find a way to deal with this horrible disease that destroys our kids. We started to show our support back with doing a walk and getting our community involved in this foundation to find a cure. We pray that some day the will find a cure for our kids.
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
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