Down Syndrome Network

Rating: 5 stars   23 reviews

Issues:

Location: 4025 East Chandler Boulevard Suite #70-C3 Phoenix AZ 85048 USA

Mission: Our mission at DSNetwork is to educate, support and advocate for those in our community whose lives are impacted by Down syndrome. DSNetwork is committed to providing a balance of life to those impacted by Down syndrome. DSNetwork will achieve this goal through an open, supportive and collaborative network that will connect individuals and families with needed resources and information.
Results: Monthly educations seminars for families Medical lecture series to healthcare professionals Free Medical Conference for families Monthly play groups and quarterly social events Step Up for Down syndrome Walk for Awareness and Acceptance in October Young Adult Group
Target demographics: Support, advocate and educate individuals and families whose lives are impacted by Down syndrome. We provide services for children through adults with Down syndrome.
Direct beneficiaries per year: Thousands of individuals with Down syndrome and their families, immediate and indirect.
Geographic areas served: Maricopa County, AZ
Programs: Parents and Schools in Partnership, New Parent Outreach, Parent to Parent Outreach, Community Education Workshops, Medical Education and Outreach, Young Adult Group, Family Connections, Interactive Social Networking, DSNetwork Calendar, A Day in the Life Elementary Education, Affiliates in Action, Step Up for Down Syndrome Walk for Awareness and Acceptance
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EIN 61-1409048
480.759.9150
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Community Reviews

Rating: 5 stars  

10 people found this review helpful

Our middle son was born with DS and it was quite a shock. We were quickly introduced to a parents organization - Down Syndrome Network. We were impressed with the quality of the information and its members and joined the Board to help with growth and development. Since that time, DS Network has grown significantly and has secured the attention of many donors, healthcare providers and educatiors. The organization is building managerial depth and is poised for tremendous growth.

I've personally experienced the results of this organization in...

Information packets and seminars, speaking engagements, networking and advocacy opportunities

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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1 previous review
Rating: 5 stars  

21 people found this review helpful

When my son was born we were overwhelmed upon learning he had Down syndrome. DS Network helped us navigate through the maze of government agencies and paperwork to start early intervention therapy and provided a forum for discussing issues with other parent. We immediately got involved with the organization and it has since grown into a group that educates teachers and parents, maintains a medical and education directors and has ambitions of building a DS center in Arizona. It is the best organization I have worked with and has helped our family immensely. I am proud to be a part of this organization.

I've personally experienced the results of this organization in...

the development of my son Casey (DS) through the sharing of ideas and expert testimony.

If I had to make changes to this organization, I would...

I am part of the group that runs this organization. :)

What I've enjoyed the most about my experience with this nonprofit is...

The positive outlook that members have toward their challenges and the growth and development of the kids and adults with Down syndrome.

The kinds of staff and volunteers that I met were...

Professional caring and dedicated. The best!

If this organization had 10 million bucks, it could...

open a DS center to provide therapy and a forum for advancing the development of individuals with Down syndrome.

Ways to make it better...

We had more funding and were able to do more!

In my opinion, the biggest challenges facing this organization are...

Funding for our lofty goals

One thing I'd also say is that...

Our organization takes its fiscal and professional responsibilities seriously, spends very little on administration. It is run largely by caring parents and volunteers; however, because those parents have diverse skills we have a professional management and leadership team.

When was your last experience with this nonprofit?

2009-5-01

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Rating: 5 stars  

22 people found this review helpful

Down Syndrome Network is an amazing organization. The board members in this organization are incredibly well-informed and fantastic networkers. This group provides social events, educational events, national news, local news, as well as medical talks and information. This group supports DS research. The connecting of so many people with so much info. makes it a progressive group.

I've personally experienced the results of this organization in...

Spreading the news about best practices for working with students with Down syndrome.

What I've enjoyed the most about my experience with this nonprofit is...

I have made some incredible friendships.

If this organization had 10 million bucks, it could...

increase the educational functions so more people would know how to work with students with Down syndrome.

When was your last experience with this nonprofit?

2009-5-01

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Rating: 5 stars  

18 people found this review helpful

When our son was born with Down syndrome, my husband and I had many questions and we were in need of information and support. I spoke with many people from this group after our son was born and started attending playgroups, workshops and other fun events. Our son has brought us many blessings including the people we have met and the information we have gained through DSNetwork.

I've personally experienced the results of this organization in...

a number of ways! New parents have received information and support that was crucial in getting through the first few months. Other families have received information on educational opportunities, playgroups, and social activities

What I've enjoyed the most about my experience with this nonprofit is...

gaining information and knowledge to help our son and other children born with disabilities

The kinds of staff and volunteers that I met were...

patient, kind, understanding and supportive

If this organization had 10 million bucks, it could...

Build a center where children and adults with Down syndrome and their families could receive support, therapy, and educational services. This center could also provide young adults with Down syndrome a place to work, meet others and socialize. This group could work within the community to raise awareness for Down syndrome, help others with disabilities, and make a difference in their community.

When was your last experience with this nonprofit?

2009-5-01

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Rating: 5 stars  

18 people found this review helpful

DSNetwork is an amazaing organization. They provide information to assist people with DS and their families to better understand and arrange for services. They provide networking opportunities for people with DS and their families. They promote greater public understanding of people with DS and the syndrome itself. They effect change in policies and behavior to improve services, education, employment and overall quality of life for people with DS and their families. The organization has provided my family and my son Adam, who has Down syndrome with support and seminars and services. Thank you DSNetwork!!

I've personally experienced the results of this organization in...

Support new parents with information about Down syndrome. Provide seminars and conferences about issues with Down syndrome. Adovacate and promote social awareness of Down syndrome.

If I had to make changes to this organization, I would...

find a way to get more funding to increase programs.

What I've enjoyed the most about my experience with this nonprofit is...

The connection with other families affected with Down syndrome.

The kinds of staff and volunteers that I met were...

high energy, kind, compassionate and non-discrimatory towards disabilities

If this organization had 10 million bucks, it could...

start Arizona's first Down syndrome Medical Clinic and Down Syndrome Center.

Ways to make it better...

I have had a wonderful experience

In my opinion, the biggest challenges facing this organization are...

Funding.

One thing I'd also say is that...

With the recent state budget cuts our families need to work together with DSNetwork to find solutions

When was your last experience with this nonprofit?

2009-1-01

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