Down Syndrome Network

Rating: 5 stars   23 reviews

Issues:

Location: 4025 East Chandler Boulevard Suite #70-C3 Phoenix AZ 85048 USA

Mission: Our mission at DSNetwork is to educate, support and advocate for those in our community whose lives are impacted by Down syndrome. DSNetwork is committed to providing a balance of life to those impacted by Down syndrome. DSNetwork will achieve this goal through an open, supportive and collaborative network that will connect individuals and families with needed resources and information.
Results: Monthly educations seminars for families Medical lecture series to healthcare professionals Free Medical Conference for families Monthly play groups and quarterly social events Step Up for Down syndrome Walk for Awareness and Acceptance in October Young Adult Group
Target demographics: Support, advocate and educate individuals and families whose lives are impacted by Down syndrome. We provide services for children through adults with Down syndrome.
Direct beneficiaries per year: Thousands of individuals with Down syndrome and their families, immediate and indirect.
Geographic areas served: Maricopa County, AZ
Programs: Parents and Schools in Partnership, New Parent Outreach, Parent to Parent Outreach, Community Education Workshops, Medical Education and Outreach, Young Adult Group, Family Connections, Interactive Social Networking, DSNetwork Calendar, A Day in the Life Elementary Education, Affiliates in Action, Step Up for Down Syndrome Walk for Awareness and Acceptance
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EIN 61-1409048
480.759.9150
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Community Reviews

Rating: 5 stars  

21 people found this review helpful

DS Network is such an amazing organization. With all the cuts to EVERYTHING theraputic for our special needs children, they stepped up to the plate an are offering so many events to help in the growth and development of our kiddo's, with little or no cost. The parents and professionals involved are the most giving and charitable people I have ever come into contact with. Thank you all for your help and support, I only wish I would have found you sooner. Cheer's to a great future.

I've personally experienced the results of this organization in...

Everything they do is for the benefit of Down Syndrome research.

If I had to make changes to this organization, I would...

Keep doing what they do in remembering that Down Syndrome effects all races and religions and we need to be supportive of everyone and their needs.

What I've enjoyed the most about my experience with this nonprofit is...

The support on I can get 27/7.

The kinds of staff and volunteers that I met were...

The most genuine and caring of individuals wearing their hearts out on their sleeves.

If this organization had 10 million bucks, it could...

Help build an even brighter future for the Down Syndrome community.

Ways to make it better...

There were more events on Sunday's.

In my opinion, the biggest challenges facing this organization are...

Who has the cuttest picture, and where to place it on their web site.

One thing I'd also say is that...

We should have a contest to see who has the best way of raising contributions for the buddy walk. Thus far I believe Jason is the winner. Way to go Doc!

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

24 people found this review helpful

Down Syndrome Network has been there for me and my family right from the start! My son, Jacob, was born with Down syndrome in April, 2006. We were shocked and saddened, and didn't know what to do first. Someone told me to call DSNetwork, and I'm so grateful that I did. Through this group, I have received so much helpful advice from other parents. I've been to educational seminars on a wide range of topics that are all helpful for raising my son. I've found a solid community of people to support me and for me to support as well. This group has been a huge help for us in so many ways!

I've personally experienced the results of this organization in...

The top notch speakers they bring into town to educate and support the families with DS children. Also, in the way DSNetwork promotes acceptance of individuals with DS in the community at large.

If I had to make changes to this organization, I would...

do all I could to promote it everywhere I went.

What I've enjoyed the most about my experience with this nonprofit is...

I've enjoyed the family fun events where we can get together with other families and meet their children as well. I really enjoy the pride I feel about my son in a community that really promotes acceptance.

The kinds of staff and volunteers that I met were...

Excellent! All are very caring, strong, and helpful. It's a close knit group in which we all support each other.

If this organization had 10 million bucks, it could...

Open up a center to support the DS community. This center could be a place for these individuals to go for therapy, socials, support, etc. It would be great!

Ways to make it better...

My experiences are great. I think they'll get even better as DSNetwork gets more funds to support their dreams of an actual center for support.

In my opinion, the biggest challenges facing this organization are...

the budget cuts right now, and the tough economy. We have big ideas and great people willing to do them, but the money isn't there.

One thing I'd also say is that...

DSnetwork not only supports people with DS, but also includes others in the community in their workshops, etc.

When was your last experience with this nonprofit?

2009-5-01

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Rating: 5 stars  

22 people found this review helpful

My husband and I were blessed with the birth of our first child, a baby girl, on December 9, 2008. She was diagnosed as Down Syndrome at delivery which threw us for a complete loop. Our doctor introduced us to a mutual friend, also a mother of a baby with DS, who then introduced us to the DS Network. The DS Network has been such a blessing to our family. DS Network maintains a very informative website and offers valuable information by way of an email distribution list. We have found the other families to be supportive, compassionate, and willing to help out in any way possible. We are thankful for this new "family" and truly appreciate the ability to walk this path with such kind people.

I've personally experienced the results of this organization in...

DS Network keeps our family (and others) up-to-date with current information associated with the early intervention programs. DS Network also has shown its effectiveness in scheduling activities hosted by medical and other professionals.

If I had to make changes to this organization, I would...

I would outsource activities, much like is already being done, to pull professionals from various fields to keep educating parents about the latest techniques of working with a child with DS. I am especially interested in the early intervention process.

What I've enjoyed the most about my experience with this nonprofit is...

We have met so many kind and caring familiies through this organizaion. We have also learned very useful information from various speakers and/or professionals who volunteer their time to educate the parents of children with DS.

The kinds of staff and volunteers that I met were...

The group has been so supportive to us from the time our daughter was born. We involved ourselves from the start when our baby was only 4 weeks old. Since that time, we receive emails from those we've met through the DS Network always wondering how our daughter is doing. Everyone is very positive and loves to see our daughter.

If this organization had 10 million bucks, it could...

DS Network could provide further educational opportunities to all families. It could also provide the various therapies specific to the early development of each child, including but not limited to, PT, OT, and speech therapy. The potential financial burden to families would be lessened given a well-funded organization.

Ways to make it better...

I have found DS Network to be valuable in their efforts in keeping families informed of events, state budget cuts, and networking.

In my opinion, the biggest challenges facing this organization are...

DS Network relies on donations. An organization as such is always looking for more money to help fund programs for our families.

One thing I'd also say is that...

Early intervention is crucial in the development of each child. We have only had the pleasure of working with one therapist, and yet I look forward to watching my daughter develop and grow to her highest potential. We hope that these early intervention programs are still available to special infants, toddlers, school-age children, and adults for as long as they need them.

When was your last experience with this nonprofit?

2009-4-01

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Rating: 5 stars  

24 people found this review helpful

Down Syndrome Network has made such a big difference in my life and the life of my family. My experience with DS would have been so much different, more difficult, and less meaningful. Down Syndrome Network has helped me emotionally, finding resources, education, friends and strength to face life. I cannot imagine people dealing with Down Syndrome without an organization like this one by their side.

I've personally experienced the results of this organization in...

my own life

If I had to make changes to this organization, I would...

feel overwhelmed... too much need and not enough resources

What I've enjoyed the most about my experience with this nonprofit is...

the care and interest for one and other. even though we dont know each other in person, we are there to help....

The kinds of staff and volunteers that I met were...

amazing!

If this organization had 10 million bucks, it could...

touch so many people in true need!

Ways to make it better...

they get enough funding for medical services for kids/people with DS under one roof

In my opinion, the biggest challenges facing this organization are...

financially

One thing I'd also say is that...

I hope every family with a child with DS finds an organization like DS Network

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

21 people found this review helpful

I have been apart of DSNetwork AZ since my son with DS was born 6 years ago. This group has been instumental in providing me and my family with timely information about helath concerns, education, and local resources. We have participated in seminars, fund raisers, and other awareness activities. Without DSNetwork I believe many parents would feel lost and alone in their pursuit to provide their child with the best possible chance.

I've personally experienced the results of this organization in...

how it has grown in the past few years.

What I've enjoyed the most about my experience with this nonprofit is...

access to information and experiences shared by other parents.

The kinds of staff and volunteers that I met were...

always willing to provide advise.

If this organization had 10 million bucks, it could...

open a DS clinic in Phoenix.

When was your last experience with this nonprofit?

2009-4-01

Was this review helpful? 
Rating: 5 stars  

22 people found this review helpful

Without Down Syndrome Network, I wouldn't have met so many great families that are in the same situation that I am in- raising a child with Down Syndrome. From this group, I have been able to attend social activities from playgroups to Christmas parties to swim parties. I have attended workshops where I gained tips on how to potty train my child and most recently how to teach my children to read. This group is wonderful!

I've personally experienced the results of this organization in...

teaching parents with children who have Down Syndrome how to be better advocates for our children and how to improve our daily lives with our special children.

What I've enjoyed the most about my experience with this nonprofit is...

meeting other parents and having my child play with other children where he can be just like any other child.

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

24 people found this review helpful

This is such an active and informative group. I have a son w/down syndrome. Whenever I have a question, or need someone's previous experience, everyone is so helpful. They have so many ways for us to learn, and many fun activities for the whole family. We moved here to AZ 4 years ago, and got connected before the move. I don't know what we'd have done without the DS Network!

I've personally experienced the results of this organization in...

I have attended many of the education seminars, and have been able to implement many things in our daily lives that have helped us help our son. Also going to all the family fun nights is fun for everyone and gives me as a parent time to connect with other parents.

If I had to make changes to this organization, I would...

follow those who have been doing such a great job.

What I've enjoyed the most about my experience with this nonprofit is...

All the information passed along, and the peace of mind knowing there is a place to ask for help.

The kinds of staff and volunteers that I met were...

Wonderful and helpful!

If this organization had 10 million bucks, it could...

Reach more uneducated people about ds, and help even more parents and people living with family members who have ds.

Ways to make it better...

I had more time to attend more events!

In my opinion, the biggest challenges facing this organization are...

I don't really know, I am sure the recent economic challenges have affected everyone.

One thing I'd also say is that...

I really don't know what we would do without this support system!

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

23 people found this review helpful

I recently relocated to Arizona and contacted this organization which provided me with resources and contact information of services. I would not have known this information or been able to find it on my own. I appreciate there involvement with me.

I've personally experienced the results of this organization in...

the people and resources that they led me to. They were perfect for what I needed. They also have kept me informed of issues that are important to my son and others.

If I had to make changes to this organization, I would...

want a lot more funding

What I've enjoyed the most about my experience with this nonprofit is...

they respond quickly and informatively to all questions asked. Also, the chat site keeps a network of parents and professionals in touch with each other so you don't feel alone or abandoned.

The kinds of staff and volunteers that I met were...

compassionate, informative, and there. I was most pleased in the quick turn around of answers to my questions as well as the resources that others can provide.

If this organization had 10 million bucks, it could...

Develop a center, similar to the one in Illinois that deals with Down Syndrome. As my son ages, I see that this is a greater need than ever before.

Ways to make it better...

Could not have been better

In my opinion, the biggest challenges facing this organization are...

funding for a center that we could go to for issues and care providers that directly effect and know how to care for the people with Down Syndrome.

One thing I'd also say is that...

Down Syndrome has been around a long time and with all of the publicity about children with Autism and its prevelance it seems that we are forgotten and not as politically worthwhile.

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

24 people found this review helpful

Before I found DS Network, I did not have information to help me with new strategies I could use with my 4 year old daughter Erica. DS Network has been a very helpful and valuable organization for my family. DS Network puts together conferences and workshops to help families with needed information to help deal with the challenges we face with our special needs children. DS Network assists with providing and sharing information to families so that families don’t have to re-invent the wheel instead this organization helps families with providing support and sharing valuable information. I am proud to be a member of this wonderful organization.

If this organization had 10 million bucks, it could...

continue working extremely hard to continue to serving families affected by Down syndrome. We could start Arizona's first Down Syndrome Medical Clinic. We could start up a program providing therapy for our families that have young children that do not qualify for services. We could provide more seminars. We could host Social family programs like a Holiday Party and a Back to School Pool Party. We could fulfill our dreams of having a Down syndrome Center in Arizona for families and support programs.

When was your last experience with this nonprofit?

2009-5-01

Was this review helpful? 
Rating: 5 stars  

23 people found this review helpful

Very nice and informed group. Very helpful with advice and Yahoogroup that answers my questions very quickly. More like a family than an organization. LOVE THIS GROUP!!!

I've personally experienced the results of this organization in...

answering questions about my child with Down syndrome

If I had to make changes to this organization, I would...

give everyone a raise

What I've enjoyed the most about my experience with this nonprofit is...

they are informed and pleasant

The kinds of staff and volunteers that I met were...

friendly and professional

If this organization had 10 million bucks, it could...

open a medical clinic to overcome the obstacles of medical care for people with Down syndrome

Ways to make it better...

I knew more about computers

In my opinion, the biggest challenges facing this organization are...

lack of funds

One thing I'd also say is that...

they made me laugh

When was your last experience with this nonprofit?

2009-4-01

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