Down Syndrome Network
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DSNetwork is a great organization. They are able to support not only families with individuals with Down syndrome, but they provide information and programs to the community to better understand what Down syndrome is.
The Great!
I've personally experienced the results of this organization in...
My oldest son has Down syndrome (DS). When we moved to Arizona, we were unsure as to what type of services were available. I was able to join the DSNetworkAZ Yahoo Forum which allowed for me to ask other families with individuals with DS for guidance and information as they pertained to pediatricians, dentists, therapists, schools, and all the other services that go hand-in-hand with having a child with different abilities.
Ways to make it better...
If I had to make changes to this organization, I would...
DSNetwork relies on the generosity of those in the community in order to fund the various programs they offer. Please consider a donation of time or financial support to help DSNetwork to accomplishing their mission to educate, support, and advocate for those in the community whose lives are impacted by Down syndrome.
When I joined up with Down Syndrome Network I was in need of opportunities to socialize as a family and feel acceptance. I craved education so I could feel confident in myself as a mom of a child with a disability who had abilities. I also desired a place where I could give back by share my talents. A few years later I am still socializing, gaining confidence and giving back as my talents develop. I greatly appreciate what Down Syndrome Network has provided as our family travels the wonderful journey of Down syndrome.
The Great!
I've personally experienced the results of this organization in...
the lives of my family.
Ways to make it better...
If I had to make changes to this organization, I would...
work just as hard to improve the lives of individuals with Down syndrome
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What I've enjoyed the most about my experience with this nonprofit is...
the confidence I received to raise a child with a disability.
The kinds of staff and volunteers that I met were...
go getters and dedicated to their cause
If this organization had 10 million bucks, it could...
reach its goals.
Ways to make it better...
I had gotten involved earlier
In my opinion, the biggest challenges facing this organization are...
people who are prejudice of individuals with disabilities and funding to reach the larger goals.
One thing I'd also say is that...
having a child with Down syndrome is a big time opportunity for happiness and growth.
When was your last experience with this nonprofit?
2009
We have been very blessed to be a part of the DS Network "family" for almost 3 years now. My husband & I joined the fantastic online support forum before my 2 1/2 yr old was even born. My son was diagnosed with having Down Syndrome in my 27th week of pregnancy and right away I found a wonderful support system and tons of information supplied by this organization. DS Network provides very informative speakers, social gathering, and a support forum that is wonderful. DS Network has truly been a wonderful guide on many levels in our life journey with our amazing little boy and I'm looking forward to participating in future events.
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What I've enjoyed the most about my experience with this nonprofit is...
The wonderful parent support groups & online support forum.
The kinds of staff and volunteers that I met were...
Exceptionally informative and friendly.
If this organization had 10 million bucks, it could...
Open a Down Syndrome Clinic in Arizona, help families that do not recieve therapy services, help educate teachers & professionals about children with Down Syndrome, the list goes on and on......
When was your last experience with this nonprofit?
2009
Down Syndrome Network has been a God-send to my wife and I as we've groped with the challenges of raising our 15 month old, Anabel, who has Down Syndrome. They've given us support emotionally with personal phone calls, but also in assisting us as we navigate the labyrinth of services that are needed.
The Great!
I've personally experienced the results of this organization in...
volunteer talks by an estate planning expert that changed how we're doing estate planning, and by a speech therapist who showed us some tricks to get our Anabel to drink from a straw, which will help her eventually develop language skills.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Personal interest, phone calls and emails to help support.
The kinds of staff and volunteers that I met were...
Loving and motivated.
If this organization had 10 million bucks, it could...
Help those whose DDD services were just cut, so these kids don't get any further behind developmentally.
When was your last experience with this nonprofit?
2009
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