As an Ophthalmologist dealing with patients with Keratoconus, I cannot emphasize enough how much the discovery eye foundation has been helping these patients in ways complementing their medical and surgical treatment thereby obtaining better outcomes both in the patients' function and in their quality of life
NKCF is a wonderful part of this non-profit. I applaud this organization's ability to reach patients with this condition who can not find eye doctors with the skills needed to help them see. I just finished fitting a young adult who found me through NKCF. This patient can now see well enough to drive with an unrestricted license; a world of difference for this young parent who works full-time! I look forward to the continued efforts made on patients' behalf by NKCF, especially the work with insurance companies and corresponding legislation to try to get this affordable care covered that allows working adults to remain productive and provide for their families.
I find the National Keratoconus Foundation a great organization. They help people finding professionals that can help them manage their disease through contact lenses and other options. They keep up to date on research, and act as a clearing house of information for their clients. They have very helpful booklets that are in plain language on Keratoconus and Corneal Grafts that I give out to my new patients who have this disease. Although I discuss these options with my patients, I find it very helpful to have a booklet that also has these options in writing that they can refer back to. They are also great booklets for family, and friends so that they too can understand what Keratoconus is all about. They publish newsletters, and maintain a great chat site. They also hold seminars. Their administrator is excellent and very dedicated. I personally find the chat site interesting. It has given me a lot of insight into how patients assimilate the information they are given and what questions they often have, and in what areas there is often confusion.
I tell all my keratoconus patients about NKCF. It is the first place I send them for reliable and up to date information on their condition.
The Discovery Eye Foundation is a highly respected organization in the field of eye care. As director of MD Support, I am proud to have been partnered with Macular Degeneration Partnership, a division of Discovery, for over 10 years. Thousands of patients have received considerable benefits from this outreach under the caring and knowledgeable guidance of director Judi Delgado. Discovery Eye Foundation and MD Partnership get my highest recommendation as one of the nation's top nonprofits!
I have found the Voundation to be an invaluable ally in my quest to provide information to patients dealing with KC. I regularly refer them to the website as THE most up-to-date source of information available. I have been very grateful for the referrals I have received as well. Randy J. Esptein, MD
Since then I have had the opportunity to interact with many people seeking support and offering support to those with keratoconus. I have had the opportunity to learn and educate; to build relationships and to publish. Much of this would not have been possible without the broad base and input that the worldwide fellowship sponsored by the NKCF provided. The power of the NKCF is multiplied by an inestimable factor when the number of other support sites quoting and linkiing the NKCF site is appreciated.