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March 30, 2012

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March 30, 2012

Discovery Eye Foundation has helped me in many ways since I was diagnosed with AMD. In a time of great fear, it gave me comfort. I was supplied with the latest research along with the available aids & nutrition to help in my fight against this disabling disease. I am very appreciative for this organization.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

I was diagnosed with keratoconus thirty years ago. As a result my eyesight problems have gradually worsened over the years, and despite ongoing development of new rigid contact lens, my eyes have suffered repeated corneal scratches and injuries, to the point where cornea transplants seemed inevitable. The problem is sufficiently unusual and rare that even my wife did not have any real understanding of KC. Fortunately, my corneal specialists are on the leading edge of medical advances and after decades of trying new lenses, my latest scleral lenses have been injury free, and I learned about NKCF from their office. Since then, my wife and I attended a half-day program in Chicago presented by NKCF for patients and family members. One of the featured speakers was one of my doctors. Everyone who spoke helped my wife to better understand my condition, and increased my knowledge and perspective on my own condition. Patients attended from three or four states, some of spent hours travelling to the program. NKCF also has an email list of patients and professionals exchanging information to help each other. Recently, from there I learned of a new keratoconus lens available in Europe and patients' experience using it. This is another encouraging benefit of NKCF. Now I have reasons to hope that I will never need corneal transplants. NKCF has helped me improve my quality of life and hope for future years of stable and possibly improved vision. Too many people take eyesight for granted.

The Great!

I've personally experienced the results of this organization in...

Illinois as a keratoconus patient.

Ways to make it better...

If I had to make changes to this organization, I would...

Give it greater funding resources.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

Chicago Cornea

What, if any, change in your life has this group encouraged?

Having sufficient eyesight quality to read, write, and drive is critical to my professional and personal life. My hopes for ongoing functional eyesight were decling and my wife did not understand keratoconus and its impact on me until we attended a half-day program sponsored and conducted by this organization. Now my wife has a basic understanding of keratoconus and its impact on me, I have more useful knowledge to help me compensate for my condition, and I am more hopeful that I will preserve or improve my eyesight, notwithstanding my keratoconus. All of these things have improved my life and hopes for the future.

March 29, 2012

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March 29, 2012

Being diagnosed with macular degeneration is both frightening and overwhelming. A source of current information relating to this condition is extremely important to someone trying to cope with the potential for loss of vision. Discovery Eye Foundation has become that trusted source of information for me. I sincerely appreciate the frequent updates from Discovery Eye Foundation that are conveniently delivered via email. They do an excellent job of presenting the latest information on research studies and therapies in an easy to understand format.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

With this organization's newsletter I found a new hybrid contact that has essentially granted me 20/20 vision. I had no idea that I was seeing so poorly with glasses until I was fitted with this medical device. It actually won medical device of the year 2009 against even prosthetic devices. It's a miracle!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

When my mother was diagnosed with Macular Degeneration we were both very frightened. We knew so little about the disease and what she was going to face. The Discovery Eye Foundation has provided a wealth of information and support over the years. Mom can't read information on a computer anymore so I receive the monthly newsletter and read it faithfully before printing it off in large font for mom. It's given her direction on what questions to ask her eye doctor, warned her about a prescription that was tainted and advised her what to do to help. It's informed me about lifestyle changes my daughter and I can do to help decrease the odds of us getting the disease. Thank you.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

The ongoing up-to-date online information provided by Discovery Eye Foundation has greatly assisted me as a patient treated for AMD. Additionally, I have helped to disseminate the findings of research reports as well as the importance of early detection. Therefore, the organization has made it possible to impact a wider group of high-risk individuals.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

Our son was diagnosed with keratoconus in June of 2011. We had never even heard of this condition before. The National Keratoconus Foundation was an essential tool in learning about this disease, researching options for our son, and providing him with the best possible care.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

October 25, 2010

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October 25, 2010

The Discovery Eye Foundation has been a great resource for learning more about a condition I have - Macular Degeneration. My daughter signed me up to attend a Vision Seminar conducted at the UC Irvine Campus. It was very informative, and we obtained additional valuable resources that assists me to see things better. I am very greatful for the extensive research they share with all of us, and I enjoy receiving their newsletter keeping me abreast of new information they have discovered in their research.

The Great!

I've personally experienced the results of this organization in...

learning more about the research, and additiional organizations that provide service to the visually impaired.

Ways to make it better...

If I had to make changes to this organization, I would...

make sure they have enough money to continue their research.

October 5, 2010

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October 5, 2010

Discovery Eye Foundation has been a reliable source for information about my disease, the things I can do as part of the treatment to address the problem and, the latest medical research in treatment advancements.

The Great!

I've personally experienced the results of this organization in...

Initially receiving information about macular degeneration, and continuing to receive on-going research and references to information sources elsewhere, to assist in making the treatment and lifestyle changes that have literally saved my eyesight.

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If this organization had 10 million bucks, it could...

also become involved to a greater extent in educational efforts aimed at disease prevention.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

October 1, 2010

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October 1, 2010

I have been receiving useful info from DEF for many years now. They review recent research on treatment and provide helpful general advice for individuals and family members trying to live comfortably with serious vision problems. They have also responded to individual requests for information and/or help in a timely and supportive manner.

The Great!

I've personally experienced the results of this organization in...

Yes, a number of times in the last 10+ years.

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What I've enjoyed the most about my experience with this nonprofit is...

frequent and helpful info received.

If this organization had 10 million bucks, it could...

foster more important research.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
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