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86 Reviews
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March 29, 2012

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March 29, 2012

When my mother was diagnosed with Macular Degeneration we were both very frightened. We knew so little about the disease and what she was going to face. The Discovery Eye Foundation has provided a wealth of information and support over the years. Mom can't read information on a computer anymore so I receive the monthly newsletter and read it faithfully before printing it off in large font for mom. It's given her direction on what questions to ask her eye doctor, warned her about a prescription that was tainted and advised her what to do to help. It's informed me about lifestyle changes my daughter and I can do to help decrease the odds of us getting the disease. Thank you.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

I live in Ontario, Canada & have received the emails from Discovery Eye Foundation since I was diagnosed with ARMD & have been encouraged by the research information & general eye care information I have received. Not only do I have the benefit of first class research information but I share with others as I am a volunteer with our local CNIB (Canadian National Institute for the Blind). Thank you for this service. Meg Slater.

The Great!

I've personally experienced the results of this organization in...

forward research updates

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Will you volunteer or donate to this organization?

Unlikely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

search on web sites

March 29, 2012

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March 29, 2012

The ongoing up-to-date online information provided by Discovery Eye Foundation has greatly assisted me as a patient treated for AMD. Additionally, I have helped to disseminate the findings of research reports as well as the importance of early detection. Therefore, the organization has made it possible to impact a wider group of high-risk individuals.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

The charity that I'm writing to you about is the National Keratoconus Foundation. My name is Dan Rinaldi and I never realized that there was a couple of procedures out there to help me, until I came across this website. I'm a Providence, RI firefighter and I'm the type of person that you'd have on a website as far as testimonials, because I've had a lot of exposure as a firefighter and it would give any non-profit audience of over a million career and volunteer firefighters around the country. I'm also an amateur competitive cook. I was voted the best firefighter cook in America from 2002-2004 by Tabasco and the Food Network. I've been on the Food Network several times as well as: The Rossie O'Donnell Show, The Tonight Show with Jay Leno, Live with Regis&Kelly and the Today Show. I've also received 13 department medals with the Providence Fire Department, one of the busiest fire departments in the country, for rescues that I've made. I was also a member of FEMA's Urban Search And Rescue Task Force out of this region(MATF-1), but I had to resign due to my condition. We could be deployed anywhere in the world at any time and having an eye disability wasn't safe for me or the rest of the task force. It's kind of like having a Navy SEAL with one good eye, it just doesn't happen. I'm only 43 and I didn't want to retire from the job that I've committed my life to. That's where this website came in and I've had it's links put on a bunch of firefighter websites. I've gone through with the surgery for my condition since seeing and education myself with this site. I'm happy to say that I had my one month follow up visit this week and my vision went from continually deterioration to not only being stabilized, but actually reversing. My vision started out at 20/400 and I'm now at 20/100 and I still have eleven months of healing with continued improvements expected. I put a couple of website links below so that you can see the real impact this site has had on me as well as the people that I will continue to save for the next 18 years on the fire department. http://www.wpri.com/dpp/on_air/street_stories/street-stories-providence-firefighter-keratoconus-dan-rinaldi-recipe-winner http://www.wpri.com/dpp/on_air/street_stories/street-stories-update-recipe-for-cure-for-firefighter

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

March 29, 2012

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March 29, 2012

Our son was diagnosed with keratoconus in June of 2011. We had never even heard of this condition before. The National Keratoconus Foundation was an essential tool in learning about this disease, researching options for our son, and providing him with the best possible care.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

March 7, 2012

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March 7, 2012

My husband has an eye disease that is not common so we have a hard time finding information or specialists. Through DEF we have received email newsletters about conferences near us and where we can find specialists. It has been wonderful. The newsletters also include tips on daily life with a particular disease which we really like.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

October 27, 2010

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October 27, 2010

I was diagnosed with keratoconus in my late 20's after visiting numerous optometrist who informed me I had severe astigmatism. It was only after visiting an opthamologist who diagnosed me with keratoconus. Since then I have been wearing RGP lenses and have had pretty good success. My plan is to have Intacs and the vitamin treatment to strengthen my cornea. The NKCF has been invaluable with information in regards to my condition; I feel I am not alone and this is a comfort in itself. Thank you.

The Great!

I've personally experienced the results of this organization in...

I have experienced a great comfort with the information I have obtained through this organization.

Ways to make it better...

If I had to make changes to this organization, I would...

At this point, I don't believe any changes are necessary as an outstanding job is being performed.

October 25, 2010

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October 25, 2010

The Discovery Eye Foundation has been a great resource for learning more about a condition I have - Macular Degeneration. My daughter signed me up to attend a Vision Seminar conducted at the UC Irvine Campus. It was very informative, and we obtained additional valuable resources that assists me to see things better. I am very greatful for the extensive research they share with all of us, and I enjoy receiving their newsletter keeping me abreast of new information they have discovered in their research.

The Great!

I've personally experienced the results of this organization in...

learning more about the research, and additiional organizations that provide service to the visually impaired.

Ways to make it better...

If I had to make changes to this organization, I would...

make sure they have enough money to continue their research.

October 12, 2010

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October 12, 2010

The Discovery Eye Foundation and provided up to date information on Macular Degeneration. By subscribing to the emails they distribute regularly I have been able to build hope that preventative progression of the disease may be in the near future. With my being at risk for both Glaucoma and having dry MD in both eyes I depend on these updates and health advisories to maintain and healthy lifestyle and preserve my vision as long as possible.

The Great!

I've personally experienced the results of this organization in...

Recipt of newsletters and email updates

Ways to make it better...

If I had to make changes to this organization, I would...

n/a

October 6, 2010

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October 6, 2010

The Discovery Eye Foundation has helped me to understand what Keratoconus is and how to deal with the affects on my vision. The seminars are a great way to find out about new research and procedures that are available. They will also help you find trial programs with support groups. The information is always true and reliable. You can trust this foundation.

The Great!

I've personally experienced the results of this organization in...

attending the informative seminars.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to send out newsletters once a year.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The helpful friendly people you meet.

The kinds of staff and volunteers that I met were...

Great.

If this organization had 10 million bucks, it could...

help out a lot of people.

Ways to make it better...

I was not walking around on crutches.

In my opinion, the biggest challenges facing this organization are...

The funds to continue to support people like me.

One thing I'd also say is that...

They are full of information.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

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