DISCOVERY EYE FOUNDATION
October 27, 2010
I was diagnosed with keratoconus in my late 20's after visiting numerous optometrist who informed me I had severe astigmatism. It was only after visiting an opthamologist who diagnosed me with keratoconus. Since then I have been wearing RGP lenses and have had pretty good success. My plan is to have Intacs and the vitamin treatment to strengthen my cornea. The NKCF has been invaluable with information in regards to my condition; I feel I am not alone and this is a comfort in itself. Thank you.
The Great!
I've personally experienced the results of this organization in...
I have experienced a great comfort with the information I have obtained through this organization.
Ways to make it better...
If I had to make changes to this organization, I would...
At this point, I don't believe any changes are necessary as an outstanding job is being performed.
October 25, 2010
The Discovery Eye Foundation has been a great resource for learning more about a condition I have - Macular Degeneration. My daughter signed me up to attend a Vision Seminar conducted at the UC Irvine Campus. It was very informative, and we obtained additional valuable resources that assists me to see things better. I am very greatful for the extensive research they share with all of us, and I enjoy receiving their newsletter keeping me abreast of new information they have discovered in their research.
The Great!
I've personally experienced the results of this organization in...
learning more about the research, and additiional organizations that provide service to the visually impaired.
Ways to make it better...
If I had to make changes to this organization, I would...
make sure they have enough money to continue their research.
October 12, 2010
The Discovery Eye Foundation and provided up to date information on Macular Degeneration. By subscribing to the emails they distribute regularly I have been able to build hope that preventative progression of the disease may be in the near future. With my being at risk for both Glaucoma and having dry MD in both eyes I depend on these updates and health advisories to maintain and healthy lifestyle and preserve my vision as long as possible.
The Great!
I've personally experienced the results of this organization in...
Recipt of newsletters and email updates
Ways to make it better...
If I had to make changes to this organization, I would...
n/a
October 6, 2010
The Discovery Eye Foundation has helped me to understand what Keratoconus is and how to deal with the affects on my vision. The seminars are a great way to find out about new research and procedures that are available. They will also help you find trial programs with support groups. The information is always true and reliable. You can trust this foundation.
The Great!
I've personally experienced the results of this organization in...
attending the informative seminars.
Ways to make it better...
If I had to make changes to this organization, I would...
continue to send out newsletters once a year.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The helpful friendly people you meet.
The kinds of staff and volunteers that I met were...
Great.
If this organization had 10 million bucks, it could...
help out a lot of people.
Ways to make it better...
I was not walking around on crutches.
In my opinion, the biggest challenges facing this organization are...
The funds to continue to support people like me.
One thing I'd also say is that...
They are full of information.
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2010
October 5, 2010
Discovery Eye Foundation has been a reliable source for information about my disease, the things I can do as part of the treatment to address the problem and, the latest medical research in treatment advancements.
The Great!
I've personally experienced the results of this organization in...
Initially receiving information about macular degeneration, and continuing to receive on-going research and references to information sources elsewhere, to assist in making the treatment and lifestyle changes that have literally saved my eyesight.
More feedback...
If this organization had 10 million bucks, it could...
also become involved to a greater extent in educational efforts aimed at disease prevention.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
October 4, 2010
I don't know of any foundation that gives such great support, assistance and accurate information, and does it so kindly and so promptly. I am an AMD patient and the DISCOVERY EYE FOUNDATION has my unconditional gratitude.They are my prime source of comfort, advice and up to date information. I do thank them from the bottom of my heart. I hope that they will always get all the support that they need and deserve, and be able to continue to assist the visually handicapped in their very own wonderful way.
The Great!
I've personally experienced the results of this organization in...
The promptness of their responses and the accuracy of their information.
More feedback...
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
October 1, 2010
My wife has macular degeneration and she really appreciates the symposiums that are sponsored by the Discovery Eye Foundation. She has learned much from them and finds them very useful.
The Great!
I've personally experienced the results of this organization in...
I've attended symposiums sponsored by the Discovery Eye Foundation and have found them to be well organized and the presentations have been top-notch.
More feedback...
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2010
October 1, 2010
I have been receiving useful info from DEF for many years now. They review recent research on treatment and provide helpful general advice for individuals and family members trying to live comfortably with serious vision problems. They have also responded to individual requests for information and/or help in a timely and supportive manner.
The Great!
I've personally experienced the results of this organization in...
Yes, a number of times in the last 10+ years.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
frequent and helpful info received.
If this organization had 10 million bucks, it could...
foster more important research.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2010
June 30, 2010
In a world where we are constantly exposed to large foundations with a lot of support and active members in the community focused toward the foundation the nkcf continues to shine through. This non profit exists to educate and move forward with innovative ways to prevent, cure and help those with the condition. When I was diagnosed with the condition this website was my first educational exposure. Although it is such a rare disease the foundation thrives to change the rare case and often the overlooked patient. For its size the foundation has gathered a large population of followers, but would be a perfect candidate for an award - it has been life changing for me. This is true especially because since it is so rare I beleieved that there was no one out there who could understand the struggle with the condition. Nkcf helped to connect me with others and has been so inspiring to me personally that I have set up a sponsorship with the foundation to raise awareness in my community and accept donations as a sponsorted triathlete of nkcf. I have pledged to donate $1500 and when I participate in ironman rhode island (a 70 mile triathlon) I will know that I'm not running for myself, I'm running for everyone with the experience of a keratoconus diagnosis... and that's all because of this foundation! Thank you nkcf!
The Great!
I've personally experienced the results of this organization in...
See above
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
June 29, 2010
I have found the Voundation to be an invaluable ally in my quest to provide information to patients dealing with KC. I regularly refer them to the website as THE most up-to-date source of information available. I have been very grateful for the referrals I have received as well. Randy J. Esptein, MD
The Great!
I've personally experienced the results of this organization in...
Caring for my patients
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
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