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June 9, 2010

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June 9, 2010

My daughter was diagnosed with Type 1 diabetes at the age of 8 years - at the same time that her Dad was losing his life to melanoma. I remember that my daughter asked me at the time of her diagnosis how long she would have to "keep getting shots". The look on my then 8 year old's face when I told her "for the rest of your life" was heartbreaking to the point tears welled up in my eyes. Then I added, "until the time we find a cure" and I promised her we would find that cure for her during MY lifetime. My husband's death left us without health insurance. I took a part time job with an airline to provide health insurance. (I had three small children to raise - one who had just been diagnosed with a chronic disease). My family also got involved with fundraising and research for the major diabetes organization, JDRF, who is also committed to a cure. But, almost 8 years later and no cure in sight, I am somewhat disappointed in the money being spent on "treatments' for diabetes versus a true "cure". One day, not so long ago, while I was taking calls in our airline's reservations center, a passenger, Lori Weintraub, called to book tickets. When she gave me her email address, the letters in her email server got to me - DRI. For whatever reason, I saw the word "diabetes" and asked her if she was involved in any way with the chronic disease. She was suprised and added that she indeed was affiliated with the Diabetes Research Institute. We talked for a while regarding various research projects on cures and asked me to email her. She emailed me back with so much information regarding the Diabetes Research Institute and what they were doing towards a cure. Treatments are not acceptable to them. Only cures. Lori put the hope back in our lives that because of dedicated researchers at places like the DRI, a cure will be found in MY lifetime! I have begun to be an active member in helping in this process by fundraising and raising awareness of this nonprofit. Thank you Lori and DRI

The Great!

I've personally experienced the results of this organization in...

Seeing the research come front and center with results that are leading the process toward find a cure for Type 1 diabetes.

Ways to make it better...

If I had to make changes to this organization, I would...

absolutely nothing...this organization has one purpose and one purpose only - to find a permanent cure for Type 1 insulin dependent juvenile diabetes. This is my ultimate goal in life and promise to my daughter.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

They absolutely believe in their ability to find a cure for Type 1 diabetes. They are not concerned with various treatments for the disease (such as the artificial pancreas, the continuous glucose monitor, etc)...they are dedicated to finding that cure.

The kinds of staff and volunteers that I met were...

EXCEPTIONAL and totally dedicated to the organization...they believe and have the faith that the researchers of this organization will be the ones to find a cure for Type 1 diabetes

If this organization had 10 million bucks, it could...

be a HUGE step closer in the research required to get a cure to the market.

Ways to make it better...

I had more money (financial resources) to give to the organization to continue their mission to find a cure for Type 1 diabetes

In my opinion, the biggest challenges facing this organization are...

continuing the stream of income in these economic times to continue their research and efforts to find a cure for Type 1 diabetes

One thing I'd also say is that...

I know that a cure for Type 1 diabetes will be found in MY lifetime rather than the lifetime of my daughter!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 8, 2010

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June 8, 2010

My first experience with the DRI/DRIF was when I met Lori W. through email. Not only did she seem to care about my family, she made continued efforts to see how I was handling all of the emotional changes I was going through. Our "online" friendship turned into one of the best experiences of my life! I felt like I was part of her extented family and that I could always turn to her when I needed to... I will always be greatful for that! I decided that this new "family" was who I wanted to be affiliated with and decided to make the DRI our charity with our fundraising efforts. Since touring the DRI this May, it sealed the deal with whom I would be giving my money from our walk until a cure is found. The visit was the first time I felt any hope since Zach was diagnosed and I am honored to be a part of this wonderful new family!

The Great!

I've personally experienced the results of this organization in...

When I toured the DRI this May and kept being thanked for helping!

Ways to make it better...

If I had to make changes to this organization, I would...

Make every employee sign a promise to keep it personal! (They already do it now but for future employees!)

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

meeting all the wonderful people working so hard for kids like my Zachary!

The kinds of staff and volunteers that I met were...

very caring.

If this organization had 10 million bucks, it could...

still focus on keeping things very personal while finding a cure as quickly as possible!

Ways to make it better...

I could have spent a whole day watching the scientist/doctors do their stuff!

One thing I'd also say is that...

I wouldn't know where I'd be without the DRI/DRIF...they have given me so much hope and inspiration to keep going!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

June 7, 2010

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June 7, 2010

My experience at the DRIF helped me see that many roles count. I have never worked with a more dedicated team of scientists, staff, volunteers and donors. The scientific and clinical advances made by the DRI and its collaborators are a true example of the saying "it takes a village". I wish the DRI the best and I know that when the cure is found I will have been a part of it.

The Great!

I've personally experienced the results of this organization in...

the stories and people I have met who have benefited form the work being done by the DRI and the support that is offered at the DRI Foundation and clinical staff.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 4, 2010

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June 4, 2010

As a research volunteer I was involved in a few programs that assisted scientists studying the effects of diabetes know just how brittle a female who has had the disease since the age of 3 1/2 years old can be. I am 47 now and have helped by giving time and information to the researchers to improve products for those suffering with the disease. My family also was involved with raising money for this organization when I was growing up as well as starting an original chapter that began this foundation in North Miami Beach Florida. Later my Mom gave both time and money when she remarried and my Dad gave time and continues to try to help me live as productive and healthy a life as possible with the disease at this point. Please know for those who can do it with the disease it takes much effort on the part of parents and the medical community as well as the child who must learn to cope with all kinds of situations on their own. It takes so much that all we can ask for is help from the community to try to combat this disease and make it better for all.

The Great!

I've personally experienced the results of this organization in...

Better technology and better care with better trained endocrinologists.

Ways to make it better...

If I had to make changes to this organization, I would...

Get more help from the community in terms of money and hands on to make the lives of those with the disease easier. I would also love to see a cure but understand that it is being worked on it just cannot be fast enough for those living with it.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Growing up helping a greater cause effort.

The kinds of staff and volunteers that I met were...

Kind and motivating.

If this organization had 10 million bucks, it could...

Possibly find a cure faster and definitely improve technologies to assist most living with the disease.

Ways to make it better...

There was a cure.

In my opinion, the biggest challenges facing this organization are...

People aging with the disease and a lack of understanding from the community to help those living with it or suffering from it.

One thing I'd also say is that...

The disease is tough no matter how you slice it. It needs help and the people deserve the help who are coping with it.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2009

June 4, 2010

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June 4, 2010

Having visited DRI in Miami once, I was very impressed with the way the institute is set up with the goal of finding a cure as its core, resulting in the tearing of inter-departmental barriers to facilitate collaboration internally. Also, it was impressive to learn about the efforts to create a DRI Federation to facilitate collaboration with other research institutions all over the world. They are without a doubt the best hope there is for a cure for diabetes!

The Great!

I've personally experienced the results of this organization in...

my visit to their facility. They are truly obsessed (in a good way) with finding a cure for diabetes.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

their commitment to finding a cure for diabetes.

The kinds of staff and volunteers that I met were...

knowledgeable and committed to the cause!

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

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