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June 16, 2010
1 person found this review helpful

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June 16, 2010
1 person found this review helpful

The founders of DHF have a genuine passion for people with diabetes -- and in finding ways to bring them together. DHF's community outreach and services have touched the lives of tens of thousands of people with diabetes. An organization's mission statement means nothing if the people behind the mission lack focus, drive, compassion, and integrity. DHF folks have all these leadership qualities. I cannot praise the founders and board of DHF highly enough.

The Great!

I've personally experienced the results of this organization in...

Feeling connected with others with diabetes is important to me and my family. DHF provides a unique platform for grass-roots changes in how people live with diabetes and how the "outside" world treats people with diabetes.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 14, 2010
1 person found this review helpful

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June 14, 2010
1 person found this review helpful

As I was reading an earlier review, I was struck by someone's comment that "diabetes is a very lonely disease." Having been a Type 1 diabetic for more than 22 years now, I can say that that statement resounds with me still because I remember the days when I felt very alone, isolated, weak, incompetent, and angry because of this disease. I was diagnosed well before the invention of the Internet and I lived in a community too small for a support group. Now that TuDiabetes and the Diabetes Hands Foundation have created an online community of diabetics of all stripes, I now know I'm not alone. We are an incredibly diverse community-- some of us facing challenges that I can't even imagine, the awareness of which snaps me out of my self-pity like a rubber band to the wrist. But we are also united in our common tie. Communities for people with diabetes existed online before TuDiabetes, but of the few I found, I never really felt at home-- most were geared toward parents raising diabetic kids, or older, Type 2 diabetics. On the cusp of the explosion of the social networking trend, TuDiabetes came along and began serving not only those communities, but the rest of us as well, those of us who never really felt we had a home online before now.

The Great!

I've personally experienced the results of this organization in...

connecting and uniting me with diabetic people and issues pertinent to us out in the greater world. TuDiabetes helps me feel less isolated and more in control of my health and life.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 10, 2010

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Review from Guidestar
June 10, 2010

I was reading my e-mails when I came upon Guidestar. I began to review the nonprofits and came upon yours. I am an IDDM for 15 years. I am w/c bound and spend a lot of time one the net. If I can help with typing or other tasks that I can do from home let me know.

The Great!

I've personally experienced the results of this organization in...

all the learning tools the have available on the internet and also have in my Dr.'s office. even though I am a disabled RN it still helps out.

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When was your last experience with this nonprofit?

2010

June 10, 2010

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June 10, 2010

Diabetes Hands Foundation is a cutting-edge charity in that it was founded in the age of social media and all things peer-to-peer. The founders of this organization understand the importance of and value in enabling people to discuss their health-related issues and work together using the Internet to improve their lives. The founders are very savvy in the non-profit technology space, and are whole-heartedly invested in the ideals of transparency, honesty, and peer-to-peer networking that are new to the non-profit arena.

The Great!

I've personally experienced the results of this organization in...

I have watched this non-profit's efforts over Facebook and Twitter, and have been in contact with their founder over the past two years. I have been inspired by their work and the creative, artful, and positive ways they engage the diabetes community.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 9, 2010

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June 9, 2010

The Diabetes Hands Foundation is the most innovative, forward-thinking, patient-focused group in the diabetes patient advocacy space. They know first-hand what their members' unmet needs are and work hard to develop programs to address those needs. DHF embraces the concept of partnering wth organizations that bring expert knowledge and other core competencies to the table and operates always with the best interest of people with diabete in mind.

The Great!

I've personally experienced the results of this organization in...

collaborating with them on the Making Sense of Diabetes contest and the upcoming HealthSeeker game on Facebook

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What I've enjoyed the most about my experience with this nonprofit is...

their creativity and openmindedness

The kinds of staff and volunteers that I met were...

amazing to work with during all facets of program planning and execution.

If this organization had 10 million bucks, it could...

Connect people with diabetes in ways not undertaken yet.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 5, 2010

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June 5, 2010

helping people with diabetes find community. Diabetes can be a lonely disease. I'm the only one in my family with diabetes. Testing, injecting, counting carbs, testing again - no one in my family or friends can really understand that. But ... there is a place where everyone gets it. On TuDiabetes, I can share my challenges and triumphs and learn from others and they can learn from me. It's where everybody know your game.

The Great!

I've personally experienced the results of this organization in...

helping people with diabetes find community. Diabetes can be a lonely disease. I'm the only one in my family with diabetes. Testing, injecting, counting carbs, testing again - only the people in diabetes community get that - get me.

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What I've enjoyed the most about my experience with this nonprofit is...

the relationships I've made with other people with Type 1 diabetes.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 5, 2010

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June 5, 2010

When I was 12, I was diagnosed with type one diabetes. It was a shock. Like so many others, I had only heard of type two. I thought there was only one diabetes. I didn’t know any other people- let alone teens!- with diabetes. At my school, there was no other person with diabetes. I was alone, defeated, scared. When I had to test my blood sugar, I sat in the corner of the office, away from the receptionist who was afraid of blood and needles. There was no nurse at this building in my school- and the temporary school nurse was afraid of needles. For weeks, my mom dutifully arrived at the school at noon and we took over an empty classroom, trying to understand what we were doing. For weeks I came home crying, trying to make my friends understand, trying to convince the math teacher that tests right before lunch weren’t a good idea because I was always low before lunch. Trying to fit in. Even once we got the hang of it and mom stopped coming at lunch, I was always “the girl with the disease” or “the druggie with the needles”. The weird one. The one who “couldn’t eat sweets.” I became desperate to find someone who understood. My doctors studied type one, but they didn’t get the emotional stuff. Therapists didn’t know what diabetes was. And none of these were kids. I’d scan the restaurants, just hoping to find a pump, a needle, a meter, anything that was a sign. Then I found TuDiabetes. Here was this family of people, all who had diabetes, all with their own stories, all with hope and determination. All wanting to find friends to talk to, people to help. Here were these people who lived with diabetes and did amazing things- conquered mountains, go to the Olympics, get on American Idol, the list goes on. Here were people who understood everything Diabetes- the hilariousness in the places where we find test strips, the desperation of trying to get rid of ketones. Here were diabetics all grown up- the people that I want to be. Having kids, getting jobs- living life- even with diabetes. It was TuDiabetes that opened my eyes to the diabetes world- not a world of hate and despair- but a world of hope, determination, acceptance and love. Everyday each and every one of us fights diabetes and we go on to do amazing things. We push past the difficult things- the blood sugars, the ketones, the misconceptions about diabetes- and we live life. With TuDiabetes I met my role models, my friends and my family with diabetes. I met the people that I want to be when I’m older, the other teenagers living like I am and people who have different kinds of diabetes- they helped me learn that type two diabetes isn’t all that I thought it was and that there are types like 1.5 that nearly no one knows about. My family gives me a lot of support, but they’re still learning. They don’t have diabetes, no matter how much they understand about it. Without TuDiabetes, I would be struggling to find a place right now. My pump probably wouldn’t be on my side (and I have Kristin especially to thank for that!) and I most certainly wouldn’t be scheduling CGM classes. My needles wouldn’t be taken with confidence and my head wouldn’t be held high. Today when I walk down the street, through the hallway, around the mall, wherever I am, I walk proudly with diabetes- my pump on my side, my meter in my backpack and a little blood stain on my finger. I like who I am, and I’m that person because of the TuDiabetes family and the support they have given me. TuDiabetes has truly taught me that while I have diabetes, I am not a diabetic. It’s amazing what you can do, what you can get past, when you have this support.

The Great!

I've personally experienced the results of this organization in...

changes in myself- My overall blood glucose averages for the past 3 months (since I have joined) have been lower, because I am more willing to test and make changes to my insulin. I have met role models who've helped me with "diabetes emergencies", etc!

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What I've enjoyed the most about my experience with this nonprofit is...

I've made friends, received support, learned new things about my disease and I've learned how to have fun and laugh about the things I go through every day.

The kinds of staff and volunteers that I met were...

Knowledgeable, kind, and caring.

If this organization had 10 million bucks, it could...

Reach out to even more people with diabetes and provide more awareness of all types of diabetes to those who do not have diabetes.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 4, 2010
1 person found this review helpful

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June 4, 2010
1 person found this review helpful

Diabetes Hands Foundation is a thought leader in using social media for social good. They care deeply for their mission, and they've proven they can put the resources, skills and talent together to do great things. They are playing a crucial role, blazing a trail that other non-profits working in other areas can follow.

The Great!

I've personally experienced the results of this organization in...

How they muster the resources, skills and talent and Make Things Happen.

Ways to make it better...

If I had to make changes to this organization, I would...

Bring what they are doing to the attention of a wider audience. More people need to hear about how they do the great work they're doing.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their willingness to think creatively.

The kinds of staff and volunteers that I met were...

Extremely hardworking.

If this organization had 10 million bucks, it could...

Make a real difference in the lives of many more people, using social media to connect people with their fun and meaningful applications.

Ways to make it better...

They had a larger base of staff to work with. So much multitasking is difficult to manage.

In my opinion, the biggest challenges facing this organization are...

Their size. It's hard to scale an organization, and with more scale, they could accomplish great things.

One thing I'd also say is that...

DHF is helping define the future of social media and communities of purpose online. The sponsors and funders that work with them believe in what they're doing. Watch closely as they develop a new set of best practices for advocacy online.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 4, 2010

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June 4, 2010

The Diabetes Hands Foundation truly does touch & improve the lives of diabetics through their many unique projects. I've been a member of Tu Diabetes for several years. I feel honored to be part of such a dynamic on-line community. Nowhere else is there this level of support & information as is shared daily on Tu Diabetes. The Tu D atmosphere of respect, diversity & caring is unparalleled & exemplary. This is entirely due to the commitment of the Diabetes Hands Foundation, founder Manny Hernandez & their volunteer administrators. The Diabetes Hands Foundation & Tu Diabetes is a lifeline for 15,000 members dealing with a complex & devastating disease. Only through support & exchanging information can we handle the daily struggles diabetes demands of us. Tu D offers all this & more. I was fortunate to find Tu D shortly after diagnosis & no longer feel alone.

The Great!

I've personally experienced the results of this organization in...

Improved health & emotional well-being. I've learned more from Tu Diabetes & the Diabetes Hands Foundation than I did from my healthcare providers.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 3, 2010

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June 3, 2010

DHF has been very special for me. It has allow me to meet some incredible people that are touch by diabetes. Their stories have inspired me every day to be accepting but resilient. We have seen the power of connecting people to help each other. It's been quite a journey.

The Great!

I've personally experienced the results of this organization in...

the way it has shaped the lives of its members for the better. In the participation of the events we promote and in the support that we receive every day.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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