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June 24, 2010

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June 24, 2010

TuDiabetes is a social networking site for people with diabetes and those who are touched by this chronic illness (parents, spouses, siblings). There is a wide range of experienced people on this site, from the newly diagnosed, to those who have had the disease for well over 50 years, to the medical community and diabetes device manufacturers and the parents and family members who are dealing with the short and long-term effects of the disease. Because of this wealth of experience, most people who spend time on the site receive a valuable experience by visiting. There is wonderful advice and truth spoken here, capped by the knowledge that the participants truly understand the frustrations of diabetes.

The Great!

I've personally experienced the results of this organization in...

The way that I manage my diabetes. I have been able to become more aggressive in treatment, resulting in improved blood glucose tests; decreasing the likelihood of long-term complications.

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What I've enjoyed the most about my experience with this nonprofit is...

The camaraderie with others who have diabetes

The kinds of staff and volunteers that I met were...

Caring, open and extremely helpful

If this organization had 10 million bucks, it could...

Improve the lives of many living with diabetes, not just those who have internet access.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010

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June 24, 2010

My daughter was diagnosed with diabetes in Dec. 2009. As soon as she was out of the hospital, I was online looking for additional information about her condition. I found TuDiabetes, which is run by the Diabetes Hands Foundation, and have visited the site nearly every day since. It's a wonderful source of information and support.

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I've personally experienced the results of this organization in...

I've learned more on this support site than from my daughter's doctor.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010
1 person found this review helpful

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June 24, 2010
1 person found this review helpful

Diabetes has reached epidemic proportions worldwide, and people are searching for answers about the disease where they have the most access--not in a doctor's office, but online. While there are many places on the Web ready to answer their questions, there are few that are as helpful and reputable as TuDiabetes. Along with beneficial information, there is also a very warm, caring feeling that emanates from the others members that is truly comforting. It is obvious that there are others there that feel the same concern, pain, worry--even joy in victories both large and small. With the diabetic population rising everyday, it is good to know that there is a community such as TuDiabetes and EsTuDiabetes that people can turn to with confidence.

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I've personally experienced the results of this organization in...

People reaching out to me to offer help and support, as I try to support them.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010

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June 24, 2010

very nice site! makes me feel better to know that I'm not the only one affected by such a horrible sickness like Type 1 diabetes. others give me the hope that all will be ok.

The Great!

I've personally experienced the results of this organization in...

very nice site! makes me feel better to know that I'm not the only one affected by such a horrible sickness like Type 1 diabetes. others give me the hope that all will be ok.

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 24, 2010
1 person found this review helpful

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June 24, 2010
1 person found this review helpful

I am terrifically impressed with the Diabetes Hands Foundation and their work to support people touched by diabetes around the US and the world. This non-profit has developed an online social networking community that nurtures ties among people affected by diabetes, perhaps our single most important public health concern. Their efforts have provided opportunity for members of the community to connect with each other in a safe environment, protected from commercial interests, to generate vital social support and shared health information to help many thousands of people address the daily requirements of managing their illness. The Foundation has also taken important steps to align their community with emerging health information technologies and research organizations seeking to improve knowledge, discovery, prevention and treatment--moving beyond an insular approach and working at a top level to support its membership. For example, they have provided opportunities for top tier health organizations such as Children's Hospital Boston, the Centers for Disease Control and Prevention and the Joslin Diabetes Center to engage with their membership and the community in a fashion that protects the integrity of the community but seeks to improve prevention practice and disease self management. They have also instituted important quality controls, welcoming new members, vetting participation to protect against unauthorized lurking, and working diligently to keep the community focused on helping itself through non-judgmental dialogue, and protecting members' private data by not selling it. These policy practices distinguish this site. In social media, it is difficult to balance competing needs of protecting the voice of members and the validity of health information, and this site has worked very hard and successfully to do this, instituting new practices with considerable opportunity for community dialogue and input. They are a great model to other nonprofits. They have also worked to influence the technology platform on which they run to insure that it remains available at low cost to other nonprofits, so that the larger non profit community can benefit from their advocacy. In this regard, their leadership works regularly with other diabetes social media groups to support their efforts--exerting a multiplier effect on the larger society. Very laudable efforts at every level.

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I've personally experienced the results of this organization in...

providing a high quality non-profit partner with which to undertake public health research; and, providing rich insight into the operation of a community based health advocacy group.

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What I've enjoyed the most about my experience with this nonprofit is...

Their ability to innovate and work within the top technical requirements of their specific media platform while simultaneously working at a high level of substantive expertise -- they work all angles really well!

The kinds of staff and volunteers that I met were...

outstanding, very helpful, in it for the community.

If this organization had 10 million bucks, it could...

seriously impact the shape of diabetes in populations today.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010

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June 24, 2010

TuDiabetes, the social network of people that are affected by diabetes, either directly or indirectly, is a wonderful source of information, tips, and simply friendship and comfort for us diabetics. Diabetes is a situation where the availability of information makes a true difference in the quality of life. TuDiabetes has a clearly established leadership in helping people from all over the world deal with their situation on a daily basis, with the help of friends who have the exact same situation to deal with.

The Great!

I've personally experienced the results of this organization in...

sharing experiences and information, and helping others make up their mind based on my own knowledge of the topics discussed

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What I've enjoyed the most about my experience with this nonprofit is...

the openness of the many diabetics from the USA and the world in discussing their problems and suggesting ideas to others

The kinds of staff and volunteers that I met were...

friendly, open and knowledgeable

If this organization had 10 million bucks, it could...

reach above and beyond just the USA, and become a worldwide reference for dealing with diabetes

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010

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June 24, 2010

Hello My Name is BiBi,I am a member,I am a diabetic since 04..since then I have had a bad battle with this sickness.I have always felt alone ,my family had no clue about this sickness or how it is effecting me.. Some how I came across their site and I'm very grateful for the foundation and its members as well. They have welcomed me and gave me inforation to seek and learn more from.. I don't feel like a lonely warrior anymore,I have people that like me,know what this disease does to us,how it changes our life for ever.thank you.BiBi

The Great!

I've personally experienced the results of this organization in...

I am so happy to have had the opportunity to have found this organization.I have people who can relate the phases I am going thru with my battle with Diabetes and the life changes..

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't do any change to it at all,everyone is great..god bless them all.

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What I've enjoyed the most about my experience with this nonprofit is...

That humanity still exists,I am battling Diabetes every day of my life and I use to feel very alone,lost and so confused.I am the only one in my family who has Diabetes.these people without know me opened up their hearts and offered their experiences .

If this organization had 10 million bucks, it could...

Be worldwide and have so much resource for people like myself that are battling with this sickness for the rest of their lives.

Ways to make it better...

I had them from the time I got sick with Diabetes back in 2004..

In my opinion, the biggest challenges facing this organization are...

Laxk of funds to help others with their needs to win the war with their Diabetes..

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 24, 2010

more

June 24, 2010

TuDiabetes provides a safe place for people who live with this overwhelming disease to find solace, comfort, support and education. There is nothing that can replace the feeling of being in a "room," virtually or physically. TuDiabetes is that "room" for people across the globe.

The Great!

I've personally experienced the results of this organization in...

Connecting with other people who live with diabetes!

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 24, 2010

more

June 24, 2010

Diabetes Hands Foundation serves diabetics fr. many demographics and needs. Members support one another w/ nutrition, diet, recipes, exercise, pet care, mental illness, etc. We not only give info regarding health, but we make one another laugh.

The Great!

I've personally experienced the results of this organization in...

Adhering to my diet and maintaining my A1c @ an accetable range.

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What I've enjoyed the most about my experience with this nonprofit is...

Meeting and help others like me.

The kinds of staff and volunteers that I met were...

Humorous, proactive, adventurous, concerned, and helpful

If this organization had 10 million bucks, it could...

support those w/o insurance or in need of devices (insulin pimps, meters etc.) to make their life better.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 24, 2010

more

June 24, 2010

TuDiabetes has been a wonderful addition to the support community for type 1 diabetics. Although information pertaining to diabetes has been available through other sources for a long time, namely, the American Diabetes Association, TuDiabetes has addressed the younger population of type 1 diabetics with their unique problems, both physically and emotionally. There is such a broad spectrum of challenges that younge type 1 diabetics deal with on a day to day basis, and focusing on this segment of diabetics has been long overdue.

The Great!

I've personally experienced the results of this organization in...

As the mother of a type 1 diabetic, I have been encouraged by the support offered through TuDiabetes regarding the younger population of type 1 diabetics.

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The kinds of staff and volunteers that I met were...

focused and dedicated to their cause of helping type 1 diabetics meet their everyday challenges with success.

If this organization had 10 million bucks, it could...

probaby "buy" the cure for type 1 diabetes.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

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