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107 Reviews
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September 25, 2012
3 people found this review helpful

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September 25, 2012
3 people found this review helpful

I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

September 4, 2013

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September 4, 2013

I have only been using the tudiabetes site for a few months now, but it is fabulous! As a diabetic for 11 years, sometimes there are frustrations that only other diabetics can understand. Having this site and their forums available to read, search, and share has made a difference in how I am able to manage my day-to-day health. The Diabetes Hands Foundation enables the help that we need, and I am grateful for them being there.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

August 15, 2013
1 person found this review helpful

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1 previous review
October 24, 2012

DHF has become the first place I go to for sound advice on diabetes, the latest news and product reviews, and a solid place for support and friendship. I'm very proud to be a volunteer there. more

August 15, 2013
1 person found this review helpful

I've been a member of TuDiabetes over five years now, and it continues to be an important part of my life. We now have a chat room open 24/7, where we can have fun and talk, but if someone comes in with a problem, it can quickly turn on a dime into helping and supporting the one in need. We have regular live interviews and events (usually on Thursday afternoons) on a variety of topics, including the latest research, cooking demos, tips for dealing with the emotional side of diabetes, comedians, and medical providers. We strive for friendly, respectful interactions, and we value our wide diversity of our members from all over the world. Recently there was an orthodox Jewish member sharing how he deals with fasting to a Muslim member, recently diagnosed, who was experiencing his first Ramadan as a diabetic. We stood by with words of encouragement as a type2 member overcame his fear to take his very first insulin injection. We kept track of a type1 member, cycling the entire 1100 mile length of England, fundraising for JDRF. Just so many fascinating, helpful, friendly folks!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

October 24, 2012
2 people found this review helpful

DHF has become the first place I go to for sound advice on diabetes, the latest news and product reviews, and a solid place for support and friendship. I'm very proud to be a volunteer there.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 15, 2013
2 people found this review helpful

more


1 previous review
December 13, 2012

Diabetes Hands Foundation is a grassroots organization, run by diabetics, for diabetics. Their programs provide understanding and assistance to an international community with diverse needs. Their w... more

August 15, 2013
2 people found this review helpful

TuDiabetes literally saved my life, my health. The information I got on day-to-day management of T1 diabetes that's available here is priceless, and unique. Finding a place where I don't have to explain diabetes, explain the emotional ups and down, explain how tiring it can be to manage, is a gift.

I've had the privilege of watching people join the community who were in dire straits - and got the information and support they needed to gain control of their diabetes, rather than letting their diabetes control them. It's a pleasure and privilege to volunteer for an organization that provides so much for so many.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide more funding so it can expand.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

December 13, 2012

Diabetes Hands Foundation is a grassroots organization, run by diabetics, for diabetics. Their programs provide understanding and assistance to an international community with diverse needs. Their websites - TuDiabetes.org and estudiabetes.org - each have around 25,000 members, more a family than a community. It's a safe place to go to get help, give help, or just be with others who 'get' what it's like to live with diabetes 24/7/365. 25,000 people means a LOT of experience. I've learned more about diabetes from the TuDiabetes community than I have from any medical professional.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 15, 2013
1 person found this review helpful

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4 previous reviews - show all
November 26, 2012

I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only ... more

August 15, 2013
1 person found this review helpful

What a great organization. This is the most caring group of individuals I have ever encountered in relation to Diabetes. Upon entry volunteers greet you and direct you to the places most likely to be of interest. They let you ask questions and they care for you if you have an issue.

Ways to make it better...

If I had to make changes to this organization, I would...

Give them money so they could operate at a higher level. They cna always use a hand and these folks are so cool, they really deserve it.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

November 26, 2012

I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only type 1 diabetic I interacted with daily. With DHF I am no longer an island facing the disease by my self. I am honored to be part of the organization.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

August 13, 2012

When I found TUdiabetes i was disconnected from my disease. I had been diabetic for more than 33 years and while i was well taken care of I frankly was not doing anything for those who came after me. then I found Tudiabetes and the diabetes hands foundation. I really thought well i am not much of a joiner but maybe i know a couple of things that will help. Then I met a new member whose child that very afternoon had diagnosed with type 1. I knew what that meant, because 33 years prior I was a 16 year old and scared and angry and indifferent all at once. My parents were not so upset, my mom had been diabetic for more than 12 years by then and they were upset, but my mom knew things would be ok. This lady I met was panicked I told her to calm down, let her child learn, don't be scared in front of her 14 year daughter and most of all know there is nothing she did or did not do that caused this. Diabetic parents cannot blame themselves. The lady and I became friends over the next three years we corresponded routinely. I was able to help her know that anger, indifference and concern are typical responses for teenagers who are recent dietetics. I suggested counseling, venting, self control. I told mom that when her 18 year old gets sick and tired of being sick and tired she would act like an adult. today that young lady is in college. and yes as an adult diabetic i imagine she is worried, angry indifferent and concerned. Like me however she will get thru it. she will find he own way and yes mom has a right to be worried, upset and angry. but i also know that mom now helps young families, she is on tudiabetes and when a mom or dad comes in and says my child, or thier parent was just told that they have diabetes, then she says, hey it is ok to be scared, a diabetic needs to take control of themselves, they need to learn and if they do you and your new diabetic can make it. Just as I told her, and just as the most successful diabetics know. On Tudiabetes we do save lives. But the truth is we save families, we save sanity and we are the one trusted word who is open 24/7 where ever member helps and all 20,000 members look out for each other. No I am not a joiner, but diabetes is club I didn't join, it joined me and this is an experience I love helping others with.

The Great!

I've personally experienced the results of this organization in...

my personal and my business life. I am a better man because I belong to TuDiabetes

Ways to make it better...

If I had to make changes to this organization, I would...

Add a supply sharing center. I recently had some extra test strips I asked a few of my friends if they needed strips. I was besieged with requests. There is an awful need for help.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

search engine. I typed diabetes in google

June 25, 2011
1 person found this review helpful

DHF is on of the premier sites for diabetes education int he world. The interactions and the wonderful access to practical information is absolutely the best.

The Great!

I've personally experienced the results of this organization in...

Yes. I have asked several questions over the years and have been richly rewarded with first class up to the minute answers form other participants

Ways to make it better...

If I had to make changes to this organization, I would...

add more opportunities.

June 24, 2010

I am diabetic. I have been a type 1 diabetic for the past 35 years and for the most part my wife and I have been alone. We make mistakes, learn new ideas about treatment and face the difficulties of living with a long-term chronic disease. The road has not been easy, and since I was alone, I faced all those situations by myself, and with my doctors, who I see every four months. My wife and I were alone until I found the DHF. As a client I am surrounded by people who are experiencing the same difficulties, as I. For the first time in years I have other diabetics who know what I am experiencing to ask questions, form friendships, and to whom I ask for help. It is one the great parts of my day when I log into the community and I see who has asked a question or who has answered mine. We hold hands across a great digital divide, and we care for each other and most important we get to laugh together. Laughing is the best thing we do. It is amazing to think that people, who have this disease, can laugh about it. Thank God for DHF, because when we communicate we learn, and when we learn we live, and when we live, we can laugh and when we laugh, the disease no longer controls us. Rick Phillips

The Great!

I've personally experienced the results of this organization in...

I have. The DHF has improved my life.

Ways to make it better...

If I had to make changes to this organization, I would...

Tell every diabetic in the world about it. This is the most caring online community I have ever experienced.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The spirit of the community.

The kinds of staff and volunteers that I met were...

very supportive

If this organization had 10 million bucks, it could...

Tell every diabetic about it. Community can help people who have this disease so much, and the DHF is the correct community.

Ways to make it better...

More people were members

In my opinion, the biggest challenges facing this organization are...

Funds. our little group needs more support for tis mission.

One thing I'd also say is that...

The directors of DHF work so hard, it is blessing to know how much they work for the community.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 7, 2013
1 person found this review helpful

more


1 previous review
October 24, 2012

TuDiabetes is the first place I've found that made me feel understood and normal as a diabetic. The empathy and camaraderie I've found is invaluable to me and encourages me daily in my management of ... more

July 7, 2013
1 person found this review helpful

TuDiabetes is a place where I feel normal and understood. The emotional support it provides is so vital. It's amazing to connect with other people who are walking the same path and motivates and encourages me to manage my health proactively. I've also learnt a HUGE amount about diabetes and feel far better qualified to make well-informed decisions about my health that will ensure that I have a happy future, free from diabetic complications.

Ways to make it better...

If I had to make changes to this organization, I would...

Publicize it more, because every diabetic and their doctor should be part of this community.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 24, 2012
1 person found this review helpful

TuDiabetes is the first place I've found that made me feel understood and normal as a diabetic. The empathy and camaraderie I've found is invaluable to me and encourages me daily in my management of diabetes. The collective wisdom and knowledge I've found is incredible. I'd recommend that any diabetic use it.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 7, 2013
2 people found this review helpful

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July 7, 2013
2 people found this review helpful

DHF is an excellent resource for diabetics old and new. The experience and support from the members is fantastic. The site is user friendly. The resources and links are excellent. And I just like the folks there. 5 stars for TuD :)

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

July 7, 2013
2 people found this review helpful

more

July 7, 2013
2 people found this review helpful

Encouraging, always helpful, I can rely on both staff and other community members to get dependable and accurate information.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 7, 2013
2 people found this review helpful

more

July 7, 2013
2 people found this review helpful

Diabetes was a very solitary disease until I found TuDiabetes. I am a librarian who is very cautious about information on the internet. TuDiabetes.org, sponsored by the Diabetes Hands Foundation, has given me a new outlook. I am still very cautious, but TuDiabetes has served a population and personal patient needs that make a huge difference in the quality of life of the diabetic patient. I have found other T1 patients who have experienced the same misdiagnosis that I did. I have obtained information about research studies looking for patient volunteers and participated in 2012 and 2013. I found Insulin for Life, an organizaiton that accepts donations of diabetes supplies. I will be donating supplies this week. Simple problems ( ie Where do you put an insulin pump on a Mother of the Bride dress?) can be answered by experienced "pumpers" on TuDiabetes. Problem solved.
I have shared the TuDiabetes website with anyone who might be interested, such as an emergency room doctor in Alaska, a radiologist in Nebraska, a dentist and family members of other T1 patients. I have shared the Big Blue Test with a nurse educator who works in Haiti and college physical education teachers in NY. I have participated in the Big Blue Test for 2 years, read books recommended by the other TuDiabetes members, and participated in the webinars with diabetes experts. I am very encouraged to see diabetes patients on the website who have managed their blood glucose for decades. The TuBiabetes members and the staff of the Diabetes Hands Foundation have offered support in ways that my family and friends cannot. I have also made contributions to the Diabetes Hands Foundation.

Ways to make it better...

If I had to make changes to this organization, I would...

Clone Manny Hernandez and Emily Coles and start a Diabetes Hands Foundation office on the East Coast, USA

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 7, 2013
2 people found this review helpful

more

July 7, 2013
2 people found this review helpful

I was diagnosed with T1 diabetes 16 years ago. Since then I've managed to control the situation ok but not enough for my standards. Also sometimes felt my diabetes was controlling my life and not the other way around.

This last period turned out GREAT! I've read many books and articles.
Finally, while looking for some people struggling with the same condition I found this great community. Can't say how much this is helping me out!

It's like a group of soldiers preparing each day to face obstacles and difficulties, together.
Each and every person I've had the pleasure to meet was kind and open to discuss my issues.

Furthermore, I've got the possibility to give back the community and feel useful and share smiles with my Dmates!

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

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