2 people found this review helpful
Diabetes Hands Foundation
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September 25, 2012
2 people found this review helpful
I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
January 15, 2013
I am 85 years old. A Navy veteran of WW@. I was told I was a Type 2 diabetic. Not me. No man in my family ever had diabetes. I went on my merry way addicted to SWEETS in complete denial. I moved to Florida. Found a new endo. Shocked..My A1C was 9.5. Put right on insulin. Somehow I found DHF. I met people got serious got involved and got my A1C to 5.9. I am on the Care Team helping others. I say all the time THANK GOD for DHF it saved my life. I use it daily.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
December 13, 2012
Being diagnosed as a type 1 diabetic is frightening. Once you are done at the doctors office or hospital you are left at home, with a ton of questions and very little answers. Sure you can search online, but interaction and support from actual people, those dealing with the same things you are, is what really helps. Thanks to the Diabetes Hands Foundation support like that exists 24/7. While there may be other resources, I have yet to find more comfort, welcome and information than I have from them.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
December 13, 2012
Diabetes Hands Foundation is a grassroots organization, run by diabetics, for diabetics. Their programs provide understanding and assistance to an international community with diverse needs. Their websites - TuDiabetes.org and estudiabetes.org - each have around 25,000 members, more a family than a community. It's a safe place to go to get help, give help, or just be with others who 'get' what it's like to live with diabetes 24/7/365. 25,000 people means a LOT of experience. I've learned more about diabetes from the TuDiabetes community than I have from any medical professional.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
November 26, 2012
I find the Diabetes Hands Foundation to be an incredible resource for people with diabetes and their caregivers. It is a pleasure to be associated with the organization. For 33 years I was the only type 1 diabetic I interacted with daily. With DHF I am no longer an island facing the disease by my self. I am honored to be part of the organization.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
August 13, 2012
When I found TUdiabetes i was disconnected from my disease. I had been diabetic for more than 33 years and while i was well taken care of I frankly was not doing anything for those who came after me. then I found Tudiabetes and the diabetes hands foundation. I really thought well i am not much of a joiner but maybe i know a couple of things that will help. Then I met a new member whose child that very afternoon had diagnosed with type 1. I knew what that meant, because 33 years prior I was a 16 year old and scared and angry and indifferent all at once. My parents were not so upset, my mom had been diabetic for more than 12 years by then and they were upset, but my mom knew things would be ok. This lady I met was panicked I told her to calm down, let her child learn, don't be scared in front of her 14 year daughter and most of all know there is nothing she did or did not do that caused this. Diabetic parents cannot blame themselves. The lady and I became friends over the next three years we corresponded routinely. I was able to help her know that anger, indifference and concern are typical responses for teenagers who are recent dietetics. I suggested counseling, venting, self control. I told mom that when her 18 year old gets sick and tired of being sick and tired she would act like an adult. today that young lady is in college. and yes as an adult diabetic i imagine she is worried, angry indifferent and concerned. Like me however she will get thru it. she will find he own way and yes mom has a right to be worried, upset and angry. but i also know that mom now helps young families, she is on tudiabetes and when a mom or dad comes in and says my child, or thier parent was just told that they have diabetes, then she says, hey it is ok to be scared, a diabetic needs to take control of themselves, they need to learn and if they do you and your new diabetic can make it. Just as I told her, and just as the most successful diabetics know. On Tudiabetes we do save lives. But the truth is we save families, we save sanity and we are the one trusted word who is open 24/7 where ever member helps and all 20,000 members look out for each other. No I am not a joiner, but diabetes is club I didn't join, it joined me and this is an experience I love helping others with.
The Great!
I've personally experienced the results of this organization in...
my personal and my business life. I am a better man because I belong to TuDiabetes
Ways to make it better...
If I had to make changes to this organization, I would...
Add a supply sharing center. I recently had some extra test strips I asked a few of my friends if they needed strips. I was besieged with requests. There is an awful need for help.
More feedback...
Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
How did you learn about this organization?
search engine. I typed diabetes in google
June 25, 2011
1 person found this review helpful
DHF is on of the premier sites for diabetes education int he world. The interactions and the wonderful access to practical information is absolutely the best.
The Great!
I've personally experienced the results of this organization in...
Yes. I have asked several questions over the years and have been richly rewarded with first class up to the minute answers form other participants
Ways to make it better...
If I had to make changes to this organization, I would...
add more opportunities.
June 24, 2010
I am diabetic. I have been a type 1 diabetic for the past 35 years and for the most part my wife and I have been alone. We make mistakes, learn new ideas about treatment and face the difficulties of living with a long-term chronic disease. The road has not been easy, and since I was alone, I faced all those situations by myself, and with my doctors, who I see every four months. My wife and I were alone until I found the DHF. As a client I am surrounded by people who are experiencing the same difficulties, as I. For the first time in years I have other diabetics who know what I am experiencing to ask questions, form friendships, and to whom I ask for help. It is one the great parts of my day when I log into the community and I see who has asked a question or who has answered mine. We hold hands across a great digital divide, and we care for each other and most important we get to laugh together. Laughing is the best thing we do. It is amazing to think that people, who have this disease, can laugh about it. Thank God for DHF, because when we communicate we learn, and when we learn we live, and when we live, we can laugh and when we laugh, the disease no longer controls us. Rick Phillips
The Great!
I've personally experienced the results of this organization in...
I have. The DHF has improved my life.
Ways to make it better...
If I had to make changes to this organization, I would...
Tell every diabetic in the world about it. This is the most caring online community I have ever experienced.
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What I've enjoyed the most about my experience with this nonprofit is...
The spirit of the community.
The kinds of staff and volunteers that I met were...
very supportive
If this organization had 10 million bucks, it could...
Tell every diabetic about it. Community can help people who have this disease so much, and the DHF is the correct community.
Ways to make it better...
More people were members
In my opinion, the biggest challenges facing this organization are...
Funds. our little group needs more support for tis mission.
One thing I'd also say is that...
The directors of DHF work so hard, it is blessing to know how much they work for the community.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
1 person found this review helpful
November 16, 2012
1 person found this review helpful
I find their website TuDiabetes to be a place were all types of diabetics whether they have Type 1, Type2 LADA, MODY , or any other type are welcome. It's a great resource for diabetes related information or it can be a place to discuss problems and issues common to diabetics. Heck, sometimes it's a place just to vent the flustrations of living with diabetes. A place to find understanding voices. I found TuDiabetes when I became an insulin dependent Type 2 diabetic. Without this foundation I don't know how I would have managed the transition to using insulin.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
November 15, 2012
1 person found this review helpful
Their website, tudiabetes.org, is best resource I've found for crowdsourced wisdom/experience/commiseration regarding life with diabetes. Everything from diet to devices, and lots in between is covered here.
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How would you describe the help you got from this organization?
Some
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
June 4, 2010
Diabetes Hands Foundation, through their online community TuDiabetes.org, provides a well thought out, moderated community for diabetics (and their families and caregivers) to exchange information, support, photos, stories and more. It is an online oasis for those for whom diabetes can be a challenge/burden/mystery (or all of the above). I spend more time there than any other online community (sorry facebook!)
The Great!
I've personally experienced the results of this organization in...
education, health
More feedback...
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
1 person found this review helpful
October 24, 2012
1 person found this review helpful
TuDiabetes is the first place I've found that made me feel understood and normal as a diabetic. The empathy and camaraderie I've found is invaluable to me and encourages me daily in my management of diabetes. The collective wisdom and knowledge I've found is incredible. I'd recommend that any diabetic use it.
More feedback...
How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
2 people found this review helpful
October 24, 2012
2 people found this review helpful
DHF has become the first place I go to for sound advice on diabetes, the latest news and product reviews, and a solid place for support and friendship. I'm very proud to be a volunteer there.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 23, 2012
1 person found this review helpful
As a person living with a chronic condition, I've always looked for a way to foster a positive outlook and spread it as well. Diabetes Hands Foundation gave me the tools to do this as a volunteer and the impact in my personal life has been profound - I've been able to deepen and refocus my personal my relationship with type 1 diabetes and have been able to steer my career in a direction that aligns with my passions. The work that DHF does is crucial and relevant to everyone because almost everyone today is somehow touched by diabetes - whether it is personally living with diabetes, or seeing its impact on others and on our society. I'm proud to be able to help and grateful for everything I've learned from DHF and Big Blue Test!
More feedback...
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Life-changing
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
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Hey acidrock23! This is Emily Coles, the TuDiabetes Head of Communities (formerly called the Program Manager). Thanks so much for this very thorough and thoughtful review, AND for all your great participation in the community!