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Nonprofit Overview

Causes: Philanthropy, Private Operating Foundations

Mission: DFI helps provide funding for research on the hereditary sensory neuropathy, HSAN1, with the hopes of finding a potential treatment and/or cure for this disease. 

Programs:

The medical research team studying HSAN1 first had to identify the defective gene, finding its location on a specific chromosome.  

Community Stories

1 Story from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I am distantly related to members of this family who has been individually and personally affected by a horrible disease. Reynold and Henry Deater were the first people afflicted and I remember them as a child slowly losing first toes and fingers and then half their legs. No one in the medical field could diagnose the disease, even after they volunteered themselves to be "guinea pigs" in a hospital in Philadelphia, undergoing horrific treatments including radiation to find a cure.

Review from Guidestar