DEATER FOUNDATION INC

Rating: 5 stars   4 reviews

Issues: Health, Philanthropy

Location: PO Box 255 White Deer PA 17887 USA

Mission: DFI helps provide funding for research on the hereditary sensory neuropathy, HSAN1, with the hopes of finding a potential treatment and/or cure for this disease. 
Programs:

The medical research team studying HSAN1 first had to identify the defective gene, finding its location on a specific chromosome.  

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Community Reviews

Rating: 5 stars  

1 person found this review helpful

I am proud to help out with DFI because I have seen the medical research successfully meet with milestones over the past 20 years. I am excited to hear about a new study with affected family members that once again delivers hope for family member treatment and those with HSAN1 (both present and future).

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization by witnessing family member's hardships over the years who long for a successful treatment for HSAN1.

If I had to make changes to this organization, I would...

If I had to make changes to this organization, I would recommend it to be deleted from the "health" related non-profit list AFTER a cure has been found. :)

What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to look back and see all the great medical moments that have occurred in this race to find a cure.

The kinds of staff and volunteers that I met were...

diligently working toward an end goal.

If this organization had 10 million bucks, it could...

hire doctors and medical research staff to learn more about this disease.

Ways to make it better...

HSAN1 would not affect so many people in the family.

In my opinion, the biggest challenges facing this organization are...

developing the funds to keep up with ongoing studies.

One thing I'd also say is that...

I need to redo the website, but this is a family just undertaking this task day by day.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010-6-01

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