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June 6, 2010

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June 6, 2010

I am proud to help out with DFI because I have seen the medical research successfully meet with milestones over the past 20 years. I am excited to hear about a new study with affected family members that once again delivers hope for family member treatment and those with HSAN1 (both present and future).

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization by witnessing family member's hardships over the years who long for a successful treatment for HSAN1.

Ways to make it better...

If I had to make changes to this organization, I would...

If I had to make changes to this organization, I would recommend it to be deleted from the "health" related non-profit list AFTER a cure has been found. :)

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to look back and see all the great medical moments that have occurred in this race to find a cure.

The kinds of staff and volunteers that I met were...

diligently working toward an end goal.

If this organization had 10 million bucks, it could...

hire doctors and medical research staff to learn more about this disease.

Ways to make it better...

HSAN1 would not affect so many people in the family.

In my opinion, the biggest challenges facing this organization are...

developing the funds to keep up with ongoing studies.

One thing I'd also say is that...

I need to redo the website, but this is a family just undertaking this task day by day.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

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