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146 Reviews
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April 18, 2013
1 person found this review helpful

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April 18, 2013
1 person found this review helpful

At CFRI, my son and I experienced professional and efficient attention to our interest in finding a researcher doing pioneering work on CF. We have a small foundation, and there were many competing organizations/individuals who could have used our assistance. Filtering our needs through CFRI proved to be a wise and satisfying decision. We appreciate the ongoing relationship.

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Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Likely

When was your last experience with this nonprofit?

2012

April 17, 2013
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April 17, 2013
1 person found this review helpful

CFRI is a fantastic organization led by Carroll Jenkins, David Soohoo and a wonderful board of directors. I have been a contributor to CFRI for their annual conference and retreat for those touched by CF. I travel from Chicago to San Francisco every summe to attend the educational conference.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

When was your last experience with this nonprofit?

2013

November 20, 2012
1 person found this review helpful

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1 previous review
February 24, 2011

From the creation of CFRI by a group of volunteer parents of cystic fibrosis children in 1975 to its present combination of volunteers, office staff, C.F. parents, patients and friends I have been pr... more

November 20, 2012
1 person found this review helpful

In 1961, I was the parent of eighteen month old twins and told they had a very serious and generally fatal disease. Naturally all I wanted was a cure for Cystic Fibrosis for them. Fortunately they continued to survive. In 1974 the name alone, Cystic Fibrosis Research, Inc. called me to join the newly formed volunteer group raising funds for CF researchers. That was how I could help!

Throughout thirty-eight years CFRI has continued its mission raising funds for peer reviewed CF research and education of the public, parents, and patients (who now may reach the median age of thirty-seven plus). Via newsletters, meetings, annual three day conferences with CF medical expert
speakers, .a summer retreat, devoted office staff and volunteers, CFRI keeps us up to date on all things pertaining to relevant issues and CF research.

And, YES, I'm proud to have been a member of Cystic Fibrosis Research Inc. all these years.

May the cure be found soon..

Sincerely,
Norma L. Stuckert

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

February 24, 2011

From the creation of CFRI by a group of volunteer parents of cystic fibrosis children in 1975 to its present combination of volunteers, office staff, C.F. parents, patients and friends I have been proud to be a member.

The Great!

I've personally experienced the results of this organization in...

Peer review and CFRI approval of our research funded contributes to my pride and gratefulness for all who have contributed so much time, efforts and of course money to our CFRI.

Ways to make it better...

If I had to make changes to this organization, I would...

None

June 8, 2011
1 person found this review helpful

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June 8, 2011
1 person found this review helpful

I first attended a CFRI event in 1990 and have followed/visited/donated at various times since then.
CFRI went throught a change in directorship several years ago and, unlike leadership transition in the many non-profit organizations I have been affiliated with, they continued to build
strongly on their original vision and previous accomplishments.
One of the unique aspects of CFRI is their blend of the professional and the personal. I have dropped by their office with no advance notice or phoned up out of the blue, and I am always given the same patient attention as if I had an appointment. This sensitive orientation to individuals is important (almost unheard of) in health care organizations and doubly so where the stresses of cystic fibrosis are often immense on consumers and their families.
Having read more CFRI newsletters than I can remember, I also appreciate the organizational transparency. Donations, annual expenses,and the fiscal aspect of the organization is always clearly spelled out. They prioritize solidly: research and service first and salaries and overhead second.
I could write more, but I will conclude by simply saying CFRI is a special organization with a great history and a dynamic vision for the future. I am proud to be affiliated with CFRI as a loyal donor.

The Great!

I've personally experienced the results of this organization in...

Since I do not live in the vicinity of CFRI, I follow their research summaries and reporting of their annual conference via on-line and mailed newsletters. I also know individuals with cystic fibrosis who have benefitted greatly from the support and contact they have had with CFRI throughout the years. I greatly appreciate their commitment to advocacy and education on CF to the greater community and the world.

Ways to make it better...

If I had to make changes to this organization, I would...

CFRI is so solid and professional, I can't think of anything to improve what they are doing.

February 28, 2011
1 person found this review helpful

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Review from Guidestar
February 28, 2011
1 person found this review helpful

On April 9, 2011, I will be 80 years old, and I have cystic fibrosis. Of all the organizations to which I donate, in my opinion, the CFRI is the best of them all. They are conscientious, dedicated, efficient, and successful. Their program to help those of us with CF, and to help the public understand the disease is excellent, and is not equaled by any other cystic fibrosis organization. I recommend CFRI to CF support groups on the internet, as CFRI makes a difference in the lives of those of us who have cystic fibrosis. I certainly am thankful they exist!

The Great!

I've personally experienced the results of this organization in...

Heroes of Hope award. 2007.

Ways to make it better...

If I had to make changes to this organization, I would...

Give themselves more pats on the back, and get more national recognition.

February 26, 2011
1 person found this review helpful

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Review from Guidestar
February 26, 2011
1 person found this review helpful

CFRI is a results driven organization that never forgets what its mission is. It focuses exclusively on getting answers to the perplexing problems that are presented by cystic fibrosis and sharing the research immediately with those who donate to the organization. It channels money into the hands of researchers and scientists and the constant flow of research and information that is immediately relayed to the community is really impressive. It does not support large marketing or advertising staffs. It is a lean, mean research machine and its impact extends beyond cystic fibrosis as the discoveries made by researchers benefit medicine overall.

The Great!

I've personally experienced the results of this organization in...

my child benefits from discoveries made here

Ways to make it better...

If I had to make changes to this organization, I would...

not a thing except perhaps spread the word so that people who are able can feel comfortable donating and knowing that their money is well spent and well directed for the benefit of many, as it should always be but often isn't when donating to other organizations.

February 25, 2011
1 person found this review helpful

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Review from Guidestar
February 25, 2011
1 person found this review helpful

CFRI is a wonderful organization that is funding important research in the field of cystic fibrosis. They also host many wonderful events that support those with cystic fibrosis through the sharing of knowledge from those in the medical field and through the sharing of information by others with cystic fibrosis. Our family really respects CFRI. They maintain a low-overhead so you know that any dollars donated to them will be used for the purposes of research or for support of cystic fibrosis patients.

The Great!

I've personally experienced the results of this organization in...

I have seen the results of the research they fund.

Ways to make it better...

If I had to make changes to this organization, I would...

I would hope that more people would donate to CFRI so that they could do more good work.

February 23, 2011
1 person found this review helpful

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Review from Guidestar
February 23, 2011
1 person found this review helpful

I had heard of CFRI for many years through an on-line cystic fibrosis support group. Finally, I wanted to see what all the hoopla was about! My daughter and I jetted from Chicago to San Francisco about six years ago for our first CFRI conference and teen/young adult retreat.

I can not
express to you how much both my daughter and I have gained from attending the CFRI conference every year! We call it our "favorite week of the year!"

We now hold an annual fundraiser with our family and friends in Chicago which helps benefit the CFRI conference and retreat!

The Great!

I've personally experienced the results of this organization in...

The smiles, laughs and stories from my daughter with CF.

Ways to make it better...

If I had to make changes to this organization, I would...

Move it to Chicago...or better yet, move me to San Francisco!

February 22, 2011
1 person found this review helpful

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Review from Guidestar
February 22, 2011
1 person found this review helpful

I feel a great attraction of CFRI is its policy of funding research in Cystic Fibrosis by young medical doctors and/or PHDs to attract them into this field of research..............I believe this brings new energy and ideas into the pursuit of knowledge about this disease........

The Great!

I've personally experienced the results of this organization in...

I've not been the recepient of any of the organization's output

Ways to make it better...

If I had to make changes to this organization, I would...

I have no suggestions for change in this organization

February 22, 2011
1 person found this review helpful

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Review from Guidestar
February 22, 2011
1 person found this review helpful

CFRI is a group dedicated to research to help find a cure for Cystic Fibrosis. They are not as publicized as the Cystic Fibrosis Foundation and does not get as much money as they do. They do hands on research and are diligent to find a cure. I will support them until they can find a cure for Cystic Fibrosis. I have a daughter with CF, so their work is especially important to me.

The Great!

I've personally experienced the results of this organization in...

their support of Cystic Fibrosis and dedication to not only finding a cure but helping patients have better quality of life.

Ways to make it better...

If I had to make changes to this organization, I would...

Give them more money so they can find a cure faster

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