Amazing information in a constant clear description that I'm always sharing with groups and support it continuing. There are 70,000 X Family = Millions and CFRI Is a constant in helping. 65
One of my favorite organizations! They do so much for the CF community, including providing a sense of community. There aren't enough words to say what they mean to me.
I found out about CFRI through a grandmother who was crusading for her CF striken grandchild. I attended 2 conferences in 2011 and 12.
This is one of the hidden gems, working relentlessly for the cause of CF. Their 2 day annual conference and camp are an amazing forum to meet, interact with the best minds in the business. I have learnt a ton from this organisation which I am sharing with other families as we all cope with the devastating effect of CF and hope for a cure one day.
Sanjeev Bode Dallas TX
In 1982 our grand-niece was born and a few months later she was diagnosed with CF. At the time, life expectancy for those diagnosed with CF was in their mid-20s. Our grand-niece is now 30, married, and with a beautiful daughter of her own. The research CFRI does is priceless to the loved ones of people coping with CF. I hear lots of good things about CFRI from family members who have participated directly with major fundraising events and have served on the board.
CFRI has been a part of my life for many years now. My son, who is now, 19 years old was diagnosed with Cystic Fibrosis shortly after birth. Through CFRI, I have been able to educate myself and my son through newsletter and online video topics. They keep me abreast of the latest research and share heartwarming stories. The CF community benefits from CFRI even though we are a thousand miles away. Thank you CFRI.
Cfri has done an outstanding job of keeping me informed of important information from the latest ground breaking research to a wide variety of upcoming events and activities. Cfri have gone out of their way on multiple occasions to answer my questions via a personal phonecall. I have not been only very impressed with what they are able to accomplish with such a limited staff but also very grateful. -Dave Pastush
When I attended my first CFRI conference, I felt like I had come home. I was welcomed by a warm, caring, compassionate and friendly staff. I immediately knew that I wanted to become involved in this organization, which isn't easy to do while living in the Midwest. But, no matter how little I was able to do for them, the staff and volunteers were always appreciative; they always make one feel valuable. CFRI is the only venue where I'm able to hear speakers talk about the latest research as well as other topics of interest to those with CF. I've often told my husband that if we could afford a home in California, I would move there just so that I could participate and volunteer more with this most impressive association.
CFRI is a real Godsend! Great group of dedicated professionals!
CFRO is a great resource for any new or longtime cystic fibrosis patient and family. They provide much needed information and support to the CF community.
Cfri does monthly meetings which are live streamed so everyone can attend. Their yearly retreat changed the life of my daughter. Ty's nonprofit is amazing!!!