CURE JM FOUNDATION

Rating: 4.96 stars   105 reviews

Issues: Health

Location: 836 Lynwood Dr Encinitas CA 92024 USA

Mission: As its name implies, the Cure JM Foundation, a 501c(3) non-profit organization, was created specifically to find such a cure, while also providing support and information for families suffering from JM.
Results: It is believed that a third of the children will suffer from JM most of their life, while another third will experience temporary remissions and the other third will experience a permanent remission (no medications, no symptoms).
Target demographics: families and patients dealing with Juvenile Myositis (JM). Including Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM).
Direct beneficiaries per year: educate and support families coping with Juvenile Myositis; educate medical professionals about JM; fund research studies into causes and best treatments of JM, including helping to fund two JM research centers.
Programs: Cure JM Foundation is a 501(c)(3) nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM). JM is a group of rare and life-threatening autoimmune conditions affecting approximately 17,000 children in the United States alone. Cure JM's mission is to provide support for families coping with JM, raise awareness of JM, and fund research that will ultimately lead to a cure.
2014 Top-Rated Nonprofit
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EIN 35-2222262
(760) 487-1079
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Community Reviews

Rating: 5 stars  

My daughter was diagnosed with Juvenile Dermatomyositis in 2010. I searched for information, but the only real information that I found was on Cure JM's web site. After a while I discovered that they are the ONLY organization that is searching for a cure specifically for the juvenile population. This non-profit is run by people that have ALL been affected by this disease. They are not just looking for money- they are truly searching for a cure. Their proceeds from their fundraisers go directly to the doctor's that are researching. Not to mention their Facebook private group for family members and people suffering have helped to draw the community closer and further educate the affected population. This non-profit has been a Godsend for us and so many others!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Now that Cure JM is coming up to their 10th anniversary, I am delighted to see that they have not wavered in funding research, educating families and the medical profession and raising awareness. I wish I could give them 10 stars instead of 5. They deserve it.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  


This all volunteer organization continues to grow. Talk about the
"little engine that could"! Parents and grandparents find time to
fundraise on top of being full-time care givers. I pray for the
day that more research will find a cure. Then we will all shout
"Take that JDM!!!"

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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1 previous review
Rating: 5 stars  

This is one of the very best, hardest working and dedicated group of volunteers I have ever seen. Accomplishments in 7 years? Amazing!
Besides research, the book Myositis and You ant the video for families in shock with this diagnosis, Cure JM has been a blessing in educating the medical profession and families coping with this debilitating disease.

I've personally experienced the results of this organization in...

My grandson has been helped by the doctors in different states working together in coordinating his medicines and treatments and connecting us with other families fighting the disease.

If I had to make changes to this organization, I would...

We need more fundraisers to continue our research in finding a cure.

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Rating: 5 stars  

A foundation that gives families hope, knowledge, and love when a JM diagnosis turns your life upside down. I don't know what I would of done after my daughter was dx last year if it wasn't for this foundation. I was lost, and I am so thankful I had somewhere to turn.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  

The Cure JM Foundation is a volunteer-managed organization dedicated to finding a cure for Juvenile Myositis (JM). JM is a group of rare and life-threatening autoimmune conditions affecting approximately 17,000 children in the United States alone.This foundation gives hope and support to familes that have to deal with JM.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

My daughter was diagnosed with JM two months ago and being a very rare disease we knew nothing about it, and knew of no one who had it. I came accross The Cure JM Foundation through a google search and reached out to them for help. Not only did they help me understand more about the disease but they helped me come in contact with other families dealing with this disease. It has been an amazing blessing having this foundation as a resource. They have inspired me to raise awareness and fundraise to one day find a cure!!!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

Excellent charity for a wonderful but undeserved cause.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

My daughter is a victim of this horrible disease and the foundation is an amazing resource!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I am so thankful for CureJM. I am so blessed to be a volunteer and doner to this nonprofit.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My son has an autoimmune disease (not JM) but we became familiar with the organization after having a hospital roommate with the disease. I have been very impressed by this grassroots organization, and wish that my son's disease had a support and fundraising network like this one. The strides these parents have made is no less than astounding, with serious contributions made to capital campaigns for serious research, networking between the affected children and parents, and providing a knowledge base that rivals some of the more well documented and supported chronic diseases. As a parent with a child who had a related illness, I have also benefited from this knowledge base, as many of the drugs and "tips" are the same. As a volunteer organization, it is well managed, and a labor of love, not burdened by ad campaigns or employee salaries. Your contribution makes a real impact on an underfunded, under-recognized, serious childhood disease here where it is needed most. As an "orphan" disease it receives little to no funding from government or healthcare sources. Supporting cure JM can really make an enormous impact, and for that reason, we are donors and supporters.

I've personally experienced the results of this organization in...

connecting with other parents, and firsthand contact with the researching doctors at Children's Memorial Hospital in Chicago.

If I had to make changes to this organization, I would...

keep the grassroots effort and feel, while trying to help them increase awareness. They are doing a great job with very limited resources.

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