Our daughter was diagnosed 16 years ago with juvenile dermatomyositis. Cure JM was in its infancy but was so supportive and helped guide us through a very difficult time. Even though our daughter is in remission we are still involved with the Cure JM Foundation. We are so grateful for all the guidance and knowledge we have received over the years. There is no better nonprofit around!!
I have been involved with Cure JM for about 10 years or so in one way or another. I was on the board for a year or two and enjoyed that role. I am currently a Family Support Network volunteer. Cure JM has offered tons of information on JM and helped in countless ways to find a cure for this disease.
Cure JM is a fantastic non-profit that focuses on patients, without pricy overhead, therefore passing along a maximum percentage of donations to finding a cure and patient care.
Have always been impressed by the CureJM family. Will continue to support and gladly so.
Cure JM has been a lifesaver for my daughter and myself since the diagnosis of my granddaughter a little over two years ago. Hearing that she had juvenile dermatomyositis was confusing and frightening and Cure JM helped us with lots of information as well as a book. We have made lots of connections and helped raise funds for Cure JM, alongside many other families in the same situations. The conferences are a great place to connect and learn more. I am continually impressed with the determination and heart of Cure JM and the research that is being funded for a cure. I support this organization wholeheartedly and will not stop until we Find A Cure!!
A foundation that gives families hope, knowledge, and love when a JM diagnosis turns your life upside down. I don't know what I would of done after my daughter was dx last year if it wasn't for this foundation. I was lost, and I am so thankful I had somewhere to turn.
The Cure JM Foundation is a volunteer-managed organization dedicated to finding a cure for Juvenile Myositis (JM). JM is a group of rare and life-threatening autoimmune conditions affecting approximately 17,000 children in the United States alone.This foundation gives hope and support to familes that have to deal with JM.
My daughter was diagnosed with Juvenile Dermatomyositis in 2010. I searched for information, but the only real information that I found was on Cure JM's web site. After a while I discovered that they are the ONLY organization that is searching for a cure specifically for the juvenile population. This non-profit is run by people that have ALL been affected by this disease. They are not just looking for money- they are truly searching for a cure. Their proceeds from their fundraisers go directly to the doctor's that are researching. Not to mention their Facebook private group for family members and people suffering have helped to draw the community closer and further educate the affected population. This non-profit has been a Godsend for us and so many others!
Now that Cure JM is coming up to their 10th anniversary, I am delighted to see that they have not wavered in funding research, educating families and the medical profession and raising awareness. I wish I could give them 10 stars instead of 5. They deserve it.
This all volunteer organization continues to grow. Talk about the
"little engine that could"! Parents and grandparents find time to
fundraise on top of being full-time care givers. I pray for the
day that more research will find a cure. Then we will all shout
"Take that JDM!!!"