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99 Reviews
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April 15, 2014

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1 previous review
June 16, 2011

My son was diagnosed just shy of 2 years ago w/ JDM. When he was dx I had never heard of this disease. I found the curejm website and cannot express how grateful I am. The people on the board as well... more

April 15, 2014

I cant say enough good things about the CureJM foundation. They have helped our family with information, guidance, and connected us to other families dealing w/ JM. They have secured grant money to help with research and funded an information book about JM. With out them we would have been lost. Thank you CureJM for all that you do!
June 16, 2011
1 person found this review helpful

My son was diagnosed just shy of 2 years ago w/ JDM. When he was dx I had never heard of this disease. I found the curejm website and cannot express how grateful I am. The people on the board as well as other parents dealing w/ this have helped me through a very rough time in our lives. If it was just to let me vent for a moment to someone who understands or to answer quetions that I couldnt find the answers to, there is always some one there. There is no cure YET, But I feel that through the curejm foundation and the parents who volunteer there will be some day soon.

The Great!

I've personally experienced the results of this organization in...

They have provided much needed support.

Ways to make it better...

If I had to make changes to this organization, I would...

None

April 15, 2014

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April 15, 2014

The Cure JM Foundation is a wonderful organization. Friends, information, resources, support, research, connections are just a few of the things that they have given our family.

When our daughter was diagnosed, 4 years ago, we got lucky and found the Cure JM Foundation, where we found
information on her disease and learned about a book that would also help educate us. We were in panic mode and had no idea what we were getting into. Lucky for us, we found all kinds of wonderful support through the Cure JM Foundation.
Our journey has been filled with may downs and some ups, but along the way, we have always had the support of our Cure JM family. Amazing!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

April 15, 2014

more

April 15, 2014

Cure JM did send a welcome folder for my daughter.
April 15, 2014

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April 15, 2014

Cure JM has been very supportive when my son past away a year go. With me doing a Benefit to help Cure JM awareness and help find a cure, they have been very helpful and supportive.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

April 15, 2014

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April 15, 2014

The Cure JM Foundation has been so helpful, beyond measure. They open the doors of hope and help to anyone affected by this terrible disease, Juvenile Dermatomyositis. Bless them all.
April 15, 2014

more


1 previous review
June 16, 2011

Cure JM is the only foundation that serves our disease. The disease is so rare that there is not any funded research except through the money raised here. Along with the money comes the support avai... more

April 15, 2014

My daughter has been diagnosed with JDM for 7 years now and I have often found peace and reprieve in the CureJM site and family. This site is completely dedicated to support of families and those effected by the disease. This is where we all come together and try to cope with this poorly known/understood/researched disease.
June 16, 2011
1 person found this review helpful

Cure JM is the only foundation that serves our disease. The disease is so rare that there is not any funded research except through the money raised here. Along with the money comes the support available to families and the reassurance offered through other peoples stories and lives.

The Great!

I've personally experienced the results of this organization in...

finding the support and information necessary to cope with my childs illness

Ways to make it better...

If I had to make changes to this organization, I would...

that more people knew about it

April 15, 2014

more


1 previous review
July 17, 2012

My daughter was diagnosed with a rare auto immune disease when she was 4 years old. We had no idea where to turn and there was not a lot of research or information for us to tap into. Our doctor sug... more

April 15, 2014

My daughter was diagnosed with Juvenile Dermatomyositis 4 years ago. We were so overwhelmed initially. There wasn't a lot of information out there on this rare disease...until we found Cure JM Foundation! We found answers, friends, and support. This is a great group run with a lot of heart.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

July 17, 2012

My daughter was diagnosed with a rare auto immune disease when she was 4 years old. We had no idea where to turn and there was not a lot of research or information for us to tap into. Our doctor suggested CureJM and we are so greatful that she did! At CureJM we have have found not only reliable information but a whole network of people who understand what we are going through when not many other people can. Cure JM helped to fund the only book written about JDM and it has been like a Bible to us as we navigate through this tricky and scary road. I think had we not come across this foundation we would be dealing with his and feeling very lonely and miserable, instead we have a second family of supportive and knowledgable people that mean the world to us.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

April 14, 2014

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April 14, 2014

I was lost until I found CureJm. My daughter was diagnosed 2 years ago. We didn't know anyone else with this rare disease. We found Cure JM, and got connected with other Texas families. I am forever grateful not only do we now have friends we have forever support and new family members. Thank you Cure JM. The Myositis and You book has been our road map to recovery
April 14, 2014

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April 14, 2014

Cure JM is an amazing organization with incredible people giving of their time and expertise to help find a cure for children diagnosed with JM. I have been involved with this fantastic non-profit group since 2001 and can't even begin to say how much they have done to help find a cure for JM. They offer education on the disease, family support, grants to help fund research and so much more. Cure JM is truly saving lives!!!!

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

April 14, 2014

more

April 14, 2014

Our daughter was diagnosed 17 years ago. She has not reached remission yet, but with an organization like Cure JM we have not given up hope. At the time of our daughters diagnosis Cure JM did not exist. When we found Cure JM they treated us like family and answered any questions we had. You would never wish this disease on anyone, but knowing that there is an organization/families out there that understand what you are going through makes the journey a bit easier.

There has never been a time that we needed something that Cure JM was not there for us.
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Help with Spreading Awareness, Family Encouragement, Fundraising, Media and Press outreach and much, much more. To learn more or get involved contact info@curejm.org. Volunteer