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Nonprofit Overview

Causes: Education, Health, Voluntary Health Associations & Medical Disciplines

Mission: Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY.  We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly. Our goals include raising awareness with the general public, doctors, health care organizations, parent’s and loved ones. Offering support and information to all the families to all the families out there dealing with these two conditions so they can have as much information to help them with their many options.

Geographic areas served: Worldwide

Community Stories

4 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

As someone from the uk, I only wish I had found CAPPS sooner. My son had an operation for Metopic Cranio back in March 2004. I had never heard of such a condition and was really scared. Although this was 6 years ago, I still feel very strongly about the lack of support that some people receive and that fact that there are delays in children being diagnosed. In my case, my son wasn't diagnosed until he was 18 months and was operated on at 2 years old. Thanks to CAPPS, questions can be answered and families can share their stories and support each other. A truly wonderfull organisation.

Review from Guidestar

1

General Member of the Public

Rating: 5

I am so thankful to have CAPPS in my life. I have support at my fingertips at anytime. Having a child with cranio, and him going through surgery was a very frightening thing, but knowing that there are people out there with such huge hearts makes things that much easier. I have met many wonderful families with similar stories because of CAPPS. xo

Review from Guidestar

5

General Member of the Public

Rating: 5

CAPPS is an amazing organization that provides much needed support and information to families facing a tough diagnosis. I don't know what I would have done if I hadn't found a support group after my daughter was diagnosed with craniosynostosis and we found out she needed surgery. CAPPS provided a place to turn to and get my questions answered as well as a place to help me feel that I wasn't alone.

Review from Guidestar

8

General Member of the Public

Rating: 5

CAPPS is a great organization that has helped my family tremendously from day 1, through the surgery, recovery, and beyond! I don't know where we would be without their support and knowledge. My family has met other great families and we have made life long connections. Thanks CAPPS!

Review from Guidestar