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May 4, 2010
1 person found this review helpful

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Review from Guidestar
May 4, 2010
1 person found this review helpful

I have twins that have craniosynostosis and when we heard the news I headed straight for the internet! The first place I found was CAPPS. Everyone was so friendly and helpful!! Without CAPPS, I am not sure where we would be today!!

More feedback...

If this organization had 10 million bucks, it could...

touch so many more families!!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 4, 2010
1 person found this review helpful

more

Review from Guidestar
May 4, 2010
1 person found this review helpful

Prior to my son being diagnosed I googled every term I could think of. CAPPS was the first thing to show up in a search. It was my lifeline and armed me with the information I needed to appropriately advocate for him when so many doctors didn't know what was wrong or how to help. In raising awareness, families will not have to search so fiercly like we had to in order to find help. Every OB/GYN, every pediatrician and most definitely every pediatric neurosurgeon needs to fully understand this condition and the affects. And CAPPS is on a wonderful mission to raise awareness and support families going through it. Amy Galm is amazing and puts cranio families needs ahead of her own.

More feedback...

If this organization had 10 million bucks, it could...

spread awareness on a much, much larger scale...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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