Mission: Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY. We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly.
Our goals include raising awareness with the general public, doctors, health care organizations, parent’s and loved ones.
Offering support and information to all the families to all the families out there dealing with these two conditions so they can have as much information to help them with their many options.
I have twins that have craniosynostosis and when we heard the news I headed straight for the internet! The first place I found was CAPPS. Everyone was so friendly and helpful!! Without CAPPS, I am not sure where we would be today!!
Prior to my son being diagnosed I googled every term I could think of. CAPPS was the first thing to show up in a search. It was my lifeline and armed me with the information I needed to appropriately advocate for him when so many doctors didn't know what was wrong or how to help. In raising awareness, families will not have to search so fiercly like we had to in order to find help. Every OB/GYN, every pediatrician and most definitely every pediatric neurosurgeon needs to fully understand this condition and the affects. And CAPPS is on a wonderful mission to raise awareness and support families going through it. Amy Galm is amazing and puts cranio families needs ahead of her own.